Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please

KaidensMummy

By KaidensMummy
in Food Intolerance & Leaky Gut

Recommended Posts

KaidensMummy Rookie
KaidensMummy
Posted

Hi there, I am desperate for advice about my 2 yr old son.

When my son was a baby we switched him Soy formula because he was reacting to regular & the doc said he must have been allergic to milk. So, the symptoms seemed to go away until he started eating solids.

We have been now suspecting Celiac disease and the doc suggested starting a gluten free diet. We started it 3 days ago & today was his 1st official solid poop.....YAY! Ive never been so happy to see poop before ..Lol :)

Anyway, not 5 mins, later I layed him down for a nap & he always has a drink of his soy milk & takes it to bed. He dranks his milk & then came out & said "mommy poop" I couldn't believe he would have pooped again. So, this poop was liquid. Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

I know it can be frustrating. I think your instincts are right on and the solid poop is a first sign. But just cutting the gluten isnt the answer for everyone. For many, dairy must go at least for a little while until the villi in his intestines are all healed (try removing the dairy for a few months and then challenging it to see if he reacts). If he reacts, you can try goat or sheep dairy (some tolerate them much better than cow.)

Your Doc. probably doesnt want you to remove dairy because most believe it is the only source of calcium. Not so!!! Here is a list:

Open Original Shared Link

And you can give him a calcium supplement during the elimination trial. It s only for a few months.

Unfortunately SOY is one of the top 10 allergens. It is very hard to digest even for a healthy person. Asians have been eating soy for eons, but they "ferment" it to make it digestible. Americans invented "soy milk" and "soy formula".

Be careful when looking at cheese "alternatives" as most contain casein (the milk protein that is the problem).

It can seem daunting, but there are perfectly healthy people who grew just fine without ANY dairy, gluten or soy.

AliB Enthusiast
AliB
Posted

I agree with Shay. You don't need dairy. Ironically, the nations who drink the most milk also have the highest incidence of Osteoporosis.

You might like to try your little one on the Specific Carbohydrate diet. Many of us who cannot tolerate either gluten or many other carbs are doing well on it. It is a healing diet, not for weight-loss.

There is an SCD thread on this section, but the best sites to look at are 'breaking the vicious cycle' and 'Pecanbread'. Pecanbread is designed to help kids, specifically with autism but the SCD helps children and people with so many other health issues that it is a mine of info for all.

Most processed soy and corn products are pretty evil. Processed soy products are very mucous-forming. I love chocolate soy milk but it makes me sick and I get instant catarrgh.

Other options instead of milk is pure well-diluted fruit juices (better still home-juiced as the commercial ones are devoid of valuable enzymes for digestion), water of course, almond milk, and the one I love, coconut milk. I make that myself and have posted the instructions on the SCD recipe page in the recipe section. It is gorgeous. Give me a glass of coconut milk over dairy any day. You can buy it in cans, dried in powder form, make it from fresh coconuts or dessicated (try to find a source of that with no preservative if possible) or from the hard blocks of coconut cream you can buy which can be chopped up and mixed with hot water.

  • 2 weeks later...
bear6954 Apprentice
bear6954
Posted
Hi there, I am desperate for advice about my 2 yr old son.

When my son was a baby we switched him Soy formula because he was reacting to regular & the doc said he must have been allergic to milk. So, the symptoms seemed to go away until he started eating solids.

We have been now suspecting Celiac disease and the doc suggested starting a gluten free diet. We started it 3 days ago & today was his 1st official solid poop.....YAY! Ive never been so happy to see poop before ..Lol :)

Anyway, not 5 mins, later I layed him down for a nap & he always has a drink of his soy milk & takes it to bed. He dranks his milk & then came out & said "mommy poop" I couldn't believe he would have pooped again. So, this poop was liquid. Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help :)

My son is 2 1/2 and when we went gluten free he had his first solid poop! I was thrilled. A few months later I noticed his poops were getting softer and it was burning his bottom. After the process of elimination, I found that sugar and fruit causes his to have very runny poops and it burns his bottom. I do not give him juice and he has never really liked fruit. I also use crystal light instead of koolaide. My son does not like milk, but he will eat yogurt and grilled cheese sandwiches. Try keeping a recored of when he eats, what he eats and when he poops and the type of poop. This helped my with my son. Good luck

Ken70 Apprentice
Ken70
Posted

I would keep him off milk, wheat and soy. You are not a bad parent if you don't give your kid a creamy white liquid to drink several times a day. I know from experience you will feel like one but rest assured you are not.

Your child also needs enough sunshine and probiotics to begin the gut healing process. I gauge my children's health based on what's in the twins diapers and what's in the bowl for the older two. Sugar absolutely destroys my older twos poop. I think sugar causes inflammation in the gut but I can't be sure. It does it to both of them. It is remarkable what you can learn from poop though isn't it?

Good luck.

AliB Enthusiast
AliB
Posted

I agree very much about the sugar. I have just been reading about it. It is evil stuff. In its pure form as molasses, raw honey, maple syrup, etc., and in the form that is in fruit and vegetables it is full of nutrients and enzymes and is beneficial, but in the refined form it is evil.

It robs the body of essential nutrients, encourages pathogens like Candida, contributes to many health issues and diseases, like diabetes, feeds Cancer and tumours, and just takes from the body without giving anything except an addictive craving.

It takes tremendous willpower to resist the stuff - especially when we are surrounded by it, by other people stuffing it down their throats (oblivious to the damage they are doing to their bodies), and food containing it, all of which is designed to tempt us every time we see or smell it.

curlyfries Contributor
curlyfries
Posted

Ditto on the sugar. I get major bleeding.........and I've had my share of colonoscopies. Unfortunately, fruit does it , too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nasalady Contributor
nasalady
Posted
Could it be that he is allergic to the Soy milk???

For lunch he had a grilled cheese sandwich on gluten free bread.(about 1/2 hour before his nap) Now, the doc said to me that I can't cut dairy out of his diet, he told me just to cut the milk out. Could this be from the cheese?? or the soy??

I am SO frustrated with the doc & this whole situation!!! Can anyone offer some advice of what I should be doing now?? I was SO super happy that I thought the gluten free diet was the answer but now Im not so sure....but then why did he have his 1st solid poop of his life today?? COul he be allergic to soy & be a celiac?? or maybe he is allergic to dairy? Do you think I should be insisting on an allergy test?? TIA for any help :)

My daughter is allergic to both dairy and soy; we don't allow her to have cheese or any dairy products. She drinks rice milk and does well on it. You do have to read labels with rice milk to make sure it's gluten free (Rice Dream is not gluten-free but Trader Joe's rice milk is).

You may want to try what the previous posters said: no gluten, dairy, soy, or sugar.

Good luck!

JoAnn

AliB Enthusiast
AliB
Posted
Ditto on the sugar. I get major bleeding.........and I've had my share of colonoscopies. Unfortunately, fruit does it , too.

If your gut was healed you likely would not have the issues with fruit. Gradually over the years I lost the ability to tolerate most fruit apart from an occasional banana, but over the last 9 months since I have been on the Specific Carb Diet and my gut has started healing properly I have gradually been able to reintroduce more fruit.

I can now eat bananas, apples, grapes, lemon, pears, blueberries, a little orange, and some of the more exotic fruits like kiwi, persimmon, dragon fruit, etc.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,096
    • Most Online (within 30 mins)
      7,748
    John.B
    Newest Member
    John.B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      Ground meat absolutely full of gluten?

      By Wheatwacked · Posted

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      Your symptoms would not be typical celiac disease symptoms, but still could be related due to possible nutrient deficiencies.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
×
×
  • Create New...