Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk.


Bell

Recommended Posts

Bell Apprentice

I've been off gluten for about 2 months, and feel much better for it. D has stopped, and my mind feels clearer, which i'm sure you'll understand, is an enormous relief! The only thing is, now I think I'm allergic to milk. Or intolerant perhaps. When I drink milk I feel within about 30 mins or so that I need to clear my throat. Every 2 minutes or so. It's not painful, but a big old pain nonetheless. The thing is, before going gluten-free this never happened as a response to drinking milk. I've experimented a bit, by changing to soy milk - it stopped the mucus immediately, but when I eat a bit of cheese it does not really come back. I'm a bit green about how this works, but my impression was that lactose tends to be the allergen that makes you mucosy. I then read lots of anti-soy literature saying it would cause tumours and was generally bad for you, and tried to find a middle ground by using goats milk instead. But exactly the same thing happened. I'm clearing my throat constantly after a small cup of tea earlier today!

I can't research much because my internet connection is "wireless" and stops working, or slows right down when I move toward the computer (I'm not joking! it works for my boyfriend!) so could anyone help me? Is it normal to be come intolerant of something else after eliminating gluten?

bell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

Bell Apprentice

I know it sounds daft, but I'm still surprised, and comforted by the fact that my experiences are so familiar to the folks here. I still feel embarrassed to be "picky" when I'm out with my friends, but here i know it's understood. I will find it hard I think to find a replacement for milk, but actually I would like to give up cheese too for the time being. I always thought that lactose caused the mucus, and the lactose was far less in goats milk and cheese too. But I expected if anything to be instead be sensitive to the casein since that is similar in structure to gluten. I'm not sure what the symptoms of casein intolerance are.

What else is a good substitute for milk? I like soy, but have read too much bad press. Almond milk is lovely but too weak and expensive. I love full fat milky tea! perhaps I should invest in a nut milk making machine, because I can't afford almond milk in the quantities I'd drink it! And cheese - how on earth can I replace that? My diet is rapidly shrinking. Luckily, drinking milk and coughing and swallowing my own mucus makes me less inclined to eat anything at all, which is a relief.

X

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

AliB Enthusiast

Soy milk is VERY mucous-forming. I can't tolerate soy at all.

It is very common for other intolerances to become apparent. It may be a mask effect, but it may also be, as I suspect, down to rogue bacteria adapting from their original food source - gluten-based carbs - to other sugars/carbohydrates.

Lactose is a milk sugar.

It depends on the type of cheese as to whether you can tolerate it or not. Certain cheeses that have been cultured using lactic bacteria that digest the lactose are usually ok, like Brick, Cheddar, dry curd cheese, Gruyere, Havarti, Manchego, Monterey Jack, Provolone, Swiss, can usually be tolerated ok and some like blue cheeses, Danish and Stilton, Brie and Camembert, Edam, Gouda, Gorgonzola, Gruyere, Muenster, Parmesan, Port du Salut, Romano and Roquefort may be able to be tolerated occasionally. It is probably a matter of experimentation.

Milk is best avoided unless you can find a source of raw unpasteurised and are prepared to drink it, as pasteurisation kills the very enzymes in the milk that are there to help us digest it. Homogenisation also changes the fat structure in the milk, rendering it into a form that may be damaging to the body (not enough is known about what it does). They break the fat down so it will stay mixed into the milk but its effect is unknown.

I also use coconut milk and now actually prefer it to cows milk.

I had to avoid dairy too after going gluten-free and also most carbs as I can't digest them properly either which is also very common. I was actually Lactose intolerant for years - constantly clearing my throat - other foods can do that but dairy was the worst, and if I ate a dessert with gluten, cream and sugar, I would be coughing for hours. Like Shay and others I have been following the Specific Carbohydrate Diet and am gradually healing and recovering.

Bell Apprentice

I don't find soy milk to be mucous forming for me at all, but I am quite dubious about its supposed health benefits. I think I'd rather try and give up milk completely than drink as much soy as I would habitually have in my tea every day.

Coconut milk - isn't that really thick and creamy? lovely too, but surely you can't put it in hot drinks?

I am very interested in the specific carbohydrate diet, as I have noticed that although my stomach isn't upset, I feel more anxious and forgetful when I have rice and corn. But if I remember rightly, the SCD allows milk. I was worried about what to eliminate and what to keep. It seems everything is troublesome unless I try to ignore some of the more "mental" symptoms!

ShayFL Enthusiast

SCD only allows 24 hour fermented homemade yogurt. And can sub goat milk or coconut milk to make the yogurt if you dont tolerate Cow. A few cheeses to that have no lactose or casein.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    5. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,593
    • Most Online (within 30 mins)
      7,748

    creak
    Newest Member
    creak
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.