Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk.


Bell

Recommended Posts

Bell Apprentice

I've been off gluten for about 2 months, and feel much better for it. D has stopped, and my mind feels clearer, which i'm sure you'll understand, is an enormous relief! The only thing is, now I think I'm allergic to milk. Or intolerant perhaps. When I drink milk I feel within about 30 mins or so that I need to clear my throat. Every 2 minutes or so. It's not painful, but a big old pain nonetheless. The thing is, before going gluten-free this never happened as a response to drinking milk. I've experimented a bit, by changing to soy milk - it stopped the mucus immediately, but when I eat a bit of cheese it does not really come back. I'm a bit green about how this works, but my impression was that lactose tends to be the allergen that makes you mucosy. I then read lots of anti-soy literature saying it would cause tumours and was generally bad for you, and tried to find a middle ground by using goats milk instead. But exactly the same thing happened. I'm clearing my throat constantly after a small cup of tea earlier today!

I can't research much because my internet connection is "wireless" and stops working, or slows right down when I move toward the computer (I'm not joking! it works for my boyfriend!) so could anyone help me? Is it normal to be come intolerant of something else after eliminating gluten?

bell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

Bell Apprentice

I know it sounds daft, but I'm still surprised, and comforted by the fact that my experiences are so familiar to the folks here. I still feel embarrassed to be "picky" when I'm out with my friends, but here i know it's understood. I will find it hard I think to find a replacement for milk, but actually I would like to give up cheese too for the time being. I always thought that lactose caused the mucus, and the lactose was far less in goats milk and cheese too. But I expected if anything to be instead be sensitive to the casein since that is similar in structure to gluten. I'm not sure what the symptoms of casein intolerance are.

What else is a good substitute for milk? I like soy, but have read too much bad press. Almond milk is lovely but too weak and expensive. I love full fat milky tea! perhaps I should invest in a nut milk making machine, because I can't afford almond milk in the quantities I'd drink it! And cheese - how on earth can I replace that? My diet is rapidly shrinking. Luckily, drinking milk and coughing and swallowing my own mucus makes me less inclined to eat anything at all, which is a relief.

X

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

AliB Enthusiast

Soy milk is VERY mucous-forming. I can't tolerate soy at all.

It is very common for other intolerances to become apparent. It may be a mask effect, but it may also be, as I suspect, down to rogue bacteria adapting from their original food source - gluten-based carbs - to other sugars/carbohydrates.

Lactose is a milk sugar.

It depends on the type of cheese as to whether you can tolerate it or not. Certain cheeses that have been cultured using lactic bacteria that digest the lactose are usually ok, like Brick, Cheddar, dry curd cheese, Gruyere, Havarti, Manchego, Monterey Jack, Provolone, Swiss, can usually be tolerated ok and some like blue cheeses, Danish and Stilton, Brie and Camembert, Edam, Gouda, Gorgonzola, Gruyere, Muenster, Parmesan, Port du Salut, Romano and Roquefort may be able to be tolerated occasionally. It is probably a matter of experimentation.

Milk is best avoided unless you can find a source of raw unpasteurised and are prepared to drink it, as pasteurisation kills the very enzymes in the milk that are there to help us digest it. Homogenisation also changes the fat structure in the milk, rendering it into a form that may be damaging to the body (not enough is known about what it does). They break the fat down so it will stay mixed into the milk but its effect is unknown.

I also use coconut milk and now actually prefer it to cows milk.

I had to avoid dairy too after going gluten-free and also most carbs as I can't digest them properly either which is also very common. I was actually Lactose intolerant for years - constantly clearing my throat - other foods can do that but dairy was the worst, and if I ate a dessert with gluten, cream and sugar, I would be coughing for hours. Like Shay and others I have been following the Specific Carbohydrate Diet and am gradually healing and recovering.

Bell Apprentice

I don't find soy milk to be mucous forming for me at all, but I am quite dubious about its supposed health benefits. I think I'd rather try and give up milk completely than drink as much soy as I would habitually have in my tea every day.

Coconut milk - isn't that really thick and creamy? lovely too, but surely you can't put it in hot drinks?

I am very interested in the specific carbohydrate diet, as I have noticed that although my stomach isn't upset, I feel more anxious and forgetful when I have rice and corn. But if I remember rightly, the SCD allows milk. I was worried about what to eliminate and what to keep. It seems everything is troublesome unless I try to ignore some of the more "mental" symptoms!

ShayFL Enthusiast

SCD only allows 24 hour fermented homemade yogurt. And can sub goat milk or coconut milk to make the yogurt if you dont tolerate Cow. A few cheeses to that have no lactose or casein.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

    2. - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    3. - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

    4. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

    5. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748

    rolland mcclay
    Newest Member
    rolland mcclay
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.