Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk.


Bell

Recommended Posts

Bell Apprentice

I've been off gluten for about 2 months, and feel much better for it. D has stopped, and my mind feels clearer, which i'm sure you'll understand, is an enormous relief! The only thing is, now I think I'm allergic to milk. Or intolerant perhaps. When I drink milk I feel within about 30 mins or so that I need to clear my throat. Every 2 minutes or so. It's not painful, but a big old pain nonetheless. The thing is, before going gluten-free this never happened as a response to drinking milk. I've experimented a bit, by changing to soy milk - it stopped the mucus immediately, but when I eat a bit of cheese it does not really come back. I'm a bit green about how this works, but my impression was that lactose tends to be the allergen that makes you mucosy. I then read lots of anti-soy literature saying it would cause tumours and was generally bad for you, and tried to find a middle ground by using goats milk instead. But exactly the same thing happened. I'm clearing my throat constantly after a small cup of tea earlier today!

I can't research much because my internet connection is "wireless" and stops working, or slows right down when I move toward the computer (I'm not joking! it works for my boyfriend!) so could anyone help me? Is it normal to be come intolerant of something else after eliminating gluten?

bell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

Bell Apprentice

I know it sounds daft, but I'm still surprised, and comforted by the fact that my experiences are so familiar to the folks here. I still feel embarrassed to be "picky" when I'm out with my friends, but here i know it's understood. I will find it hard I think to find a replacement for milk, but actually I would like to give up cheese too for the time being. I always thought that lactose caused the mucus, and the lactose was far less in goats milk and cheese too. But I expected if anything to be instead be sensitive to the casein since that is similar in structure to gluten. I'm not sure what the symptoms of casein intolerance are.

What else is a good substitute for milk? I like soy, but have read too much bad press. Almond milk is lovely but too weak and expensive. I love full fat milky tea! perhaps I should invest in a nut milk making machine, because I can't afford almond milk in the quantities I'd drink it! And cheese - how on earth can I replace that? My diet is rapidly shrinking. Luckily, drinking milk and coughing and swallowing my own mucus makes me less inclined to eat anything at all, which is a relief.

X

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

AliB Enthusiast

Soy milk is VERY mucous-forming. I can't tolerate soy at all.

It is very common for other intolerances to become apparent. It may be a mask effect, but it may also be, as I suspect, down to rogue bacteria adapting from their original food source - gluten-based carbs - to other sugars/carbohydrates.

Lactose is a milk sugar.

It depends on the type of cheese as to whether you can tolerate it or not. Certain cheeses that have been cultured using lactic bacteria that digest the lactose are usually ok, like Brick, Cheddar, dry curd cheese, Gruyere, Havarti, Manchego, Monterey Jack, Provolone, Swiss, can usually be tolerated ok and some like blue cheeses, Danish and Stilton, Brie and Camembert, Edam, Gouda, Gorgonzola, Gruyere, Muenster, Parmesan, Port du Salut, Romano and Roquefort may be able to be tolerated occasionally. It is probably a matter of experimentation.

Milk is best avoided unless you can find a source of raw unpasteurised and are prepared to drink it, as pasteurisation kills the very enzymes in the milk that are there to help us digest it. Homogenisation also changes the fat structure in the milk, rendering it into a form that may be damaging to the body (not enough is known about what it does). They break the fat down so it will stay mixed into the milk but its effect is unknown.

I also use coconut milk and now actually prefer it to cows milk.

I had to avoid dairy too after going gluten-free and also most carbs as I can't digest them properly either which is also very common. I was actually Lactose intolerant for years - constantly clearing my throat - other foods can do that but dairy was the worst, and if I ate a dessert with gluten, cream and sugar, I would be coughing for hours. Like Shay and others I have been following the Specific Carbohydrate Diet and am gradually healing and recovering.

Bell Apprentice

I don't find soy milk to be mucous forming for me at all, but I am quite dubious about its supposed health benefits. I think I'd rather try and give up milk completely than drink as much soy as I would habitually have in my tea every day.

Coconut milk - isn't that really thick and creamy? lovely too, but surely you can't put it in hot drinks?

I am very interested in the specific carbohydrate diet, as I have noticed that although my stomach isn't upset, I feel more anxious and forgetful when I have rice and corn. But if I remember rightly, the SCD allows milk. I was worried about what to eliminate and what to keep. It seems everything is troublesome unless I try to ignore some of the more "mental" symptoms!

ShayFL Enthusiast

SCD only allows 24 hour fermented homemade yogurt. And can sub goat milk or coconut milk to make the yogurt if you dont tolerate Cow. A few cheeses to that have no lactose or casein.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Second chance

    3. - cristiana replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    4. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,562
    • Most Online (within 30 mins)
      7,748

    Hannah Kelch
    Newest Member
    Hannah Kelch
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I found some articles that illustrate the immune reaction to casein and gluten. Bovine milk caseins and transglutaminase-treated cereal prolamins are differentially recognized by IgA of celiac disease patients according to their age https://pubmed.ncbi.nlm.nih.gov/19290628/   Gliadin and Casein Metabolism: Synthesis of Gliadomorphin and Casomorphin and Their Biological Consequences https://www.researchgate.net/publication/397908713_Gliadin_and_Casein_Metabolism_Synthesis_of_Gliadomorphin_and_Casomorphin_and_Their_Biological_Consequences   Effects of milk containing only A2 beta casein versus milk containing both A1 and A2 beta casein proteins on gastrointestinal physiology, symptoms of discomfort, and cognitive behavior of people with self-reported intolerance to traditional cows’ milk https://pmc.ncbi.nlm.nih.gov/articles/PMC4818854/#:~:text=Results,lactose tolerant and intolerant subjects.   Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://pmc.ncbi.nlm.nih.gov/articles/PMC8345738/   Brain Opioid Activity and Oxidative Injury: Different Molecular Scenarios Connecting Celiac Disease and Autistic Spectrum Disorder https://pmc.ncbi.nlm.nih.gov/articles/PMC7407635/  
    • Mari
      Ijmartes71 I  son't think you are crazy by any psycoligical s=defination but you are obsessive. you may have considerable brain fog  , a problem that affects celiacs and many other people. . With this obsession you have abd being braun dogged you arw not abke to take any advice people are giving you to help you. To take advice you need to reduce your anxieties abd think more clearly. .Stop taking your herbs for at least one week because some of them will have side ellectsif you take them too long. You can add them back if you don't notice any good changes. Be more careful about being strictly gluten free.  
    • cristiana
      Just to say that I too was hesitant to come off dairy products completely @dsfraley.  Milk, yoghurt and soft cheeses definitely caused bloating.  This bloating gave me rib and pelvic pain, and I remember  the pain was so horrible at times it was almost a sick feeling., kind of like the sort of aches you get with flu.   Milk, yoghurt and soft cheeses also gave me diarrhea, but I noted I could still eat small amounts of hard cheese like cheddar without any issues. Re: milk, my gastroenterologist told me at that time that I could just by lactofree products, and should be fine, but when my gut was still very damaged they went right through me regardless. Thankfully I am able to tolerate milk very well again, although I have noted that too much of it can have a slightly laxative effect. The other thing that made me feel off were heavy iron supplements, which contributed to bloating and diarrhea.  In the end a GP told me to take ferrous gluconate, which is a much gentler supplement, with water an hour before breakfast in the morning.  That was helpful.  If your son is supplementing  (which needs to be under medical supervision as too much iron can cause issues) Floravital fruit syrup is another alternative, but make sure you don't buy Floradix as it contains gluten. Lastly, all oats, soya products and certain pulses also made my stomach sore.  Apart from the oats (which need to be certified 'pure' aka gluten free ones) I was able to eat these things again some months after adopting a gluten-free diet. I would say keeping a food diary might be worth a try, noting any negative symptoms following eating.  Patterns start to emerge which might otherwise be difficult to identify.
    • trents
    • Wheatwacked
      Anyway, I have no problem with grass fed milk other than the price.  Maybe I should move to Ireland or New Zealand.  They're the only countries that don't feed grains to their cows to increase milkfat and milk volume. A side note: I just came back trom the vascular surgeon about the scan of my carotid arteries done last week.  A year ago I had over 90% stenosis in the right artery and 80% in the left.  Tcar procedure done in the right with a stent.  The results today were right side downgraded to Moderate stenosis and the surgeon did not expect to see as much improvement on the left. (untouched). I must be doing something right.  Recheck in six months.   Mucosal reactivity to cow's milk protein in coeliac disease This paper proves that cassein is the protein in cow's milk is the trigger but the study did not differentiate as grass fed milk.  I haven't found any studies specific to grassmilk. The study does not differentiate alpha or beta cassein.  Google says: some clinicians speculate that grain-based proteins could potentially pass into the milk, though scientific studies typically find no detectable gluten or gliadin fragments in bovine milk regardless of the cow's diet. So given alpha cassein as the trigger, grass fed A2 cassein; thought to be easier to digest and less likely to trigger the specific inflammatory pathways associated with standard commercial dairy; plus the omega 6:3 ratio of grain fed milk is 5.8:1 vs grass fed ratio of 1:1, grass fed milk is less inflammatory.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.