Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk.


Bell

Recommended Posts

Bell Apprentice

I've been off gluten for about 2 months, and feel much better for it. D has stopped, and my mind feels clearer, which i'm sure you'll understand, is an enormous relief! The only thing is, now I think I'm allergic to milk. Or intolerant perhaps. When I drink milk I feel within about 30 mins or so that I need to clear my throat. Every 2 minutes or so. It's not painful, but a big old pain nonetheless. The thing is, before going gluten-free this never happened as a response to drinking milk. I've experimented a bit, by changing to soy milk - it stopped the mucus immediately, but when I eat a bit of cheese it does not really come back. I'm a bit green about how this works, but my impression was that lactose tends to be the allergen that makes you mucosy. I then read lots of anti-soy literature saying it would cause tumours and was generally bad for you, and tried to find a middle ground by using goats milk instead. But exactly the same thing happened. I'm clearing my throat constantly after a small cup of tea earlier today!

I can't research much because my internet connection is "wireless" and stops working, or slows right down when I move toward the computer (I'm not joking! it works for my boyfriend!) so could anyone help me? Is it normal to be come intolerant of something else after eliminating gluten?

bell


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

Bell Apprentice

I know it sounds daft, but I'm still surprised, and comforted by the fact that my experiences are so familiar to the folks here. I still feel embarrassed to be "picky" when I'm out with my friends, but here i know it's understood. I will find it hard I think to find a replacement for milk, but actually I would like to give up cheese too for the time being. I always thought that lactose caused the mucus, and the lactose was far less in goats milk and cheese too. But I expected if anything to be instead be sensitive to the casein since that is similar in structure to gluten. I'm not sure what the symptoms of casein intolerance are.

What else is a good substitute for milk? I like soy, but have read too much bad press. Almond milk is lovely but too weak and expensive. I love full fat milky tea! perhaps I should invest in a nut milk making machine, because I can't afford almond milk in the quantities I'd drink it! And cheese - how on earth can I replace that? My diet is rapidly shrinking. Luckily, drinking milk and coughing and swallowing my own mucus makes me less inclined to eat anything at all, which is a relief.

X

Yes....many of us have experienced the same thing. The theory is that the gluten intolerance "mask" others. And once that main irritant is removed, the others come to light. It can be a bit frustrating.....but listen to your body. Stop drinking the milk. Milk is hard to digest in general (even for healthy folks). Fermented dairy is a better choice (cheese, kefir and yogurt). You said the cheese doenst bother you. So here is your clue that what I am saying is correct.

For "milk" I use coconut milk or almond milk. I also enjoy Hemp milk. The hemp has the good fats we need.

The reality is that you dont need SOY or DAIRY to be very healthy. Dairy is a myth. The countries that consume the most dairy have the most osteoperosis. Go figure. The countries that consume the most vegetables and sea vegetables have very little osteoperosis. Those same veggie countries eat soy but ONLY fermented (natto, tempeh, miso, etc.). The U.S. invented soy milk. It isnt natural and it is not a health food IMO.

AliB Enthusiast

Soy milk is VERY mucous-forming. I can't tolerate soy at all.

It is very common for other intolerances to become apparent. It may be a mask effect, but it may also be, as I suspect, down to rogue bacteria adapting from their original food source - gluten-based carbs - to other sugars/carbohydrates.

Lactose is a milk sugar.

It depends on the type of cheese as to whether you can tolerate it or not. Certain cheeses that have been cultured using lactic bacteria that digest the lactose are usually ok, like Brick, Cheddar, dry curd cheese, Gruyere, Havarti, Manchego, Monterey Jack, Provolone, Swiss, can usually be tolerated ok and some like blue cheeses, Danish and Stilton, Brie and Camembert, Edam, Gouda, Gorgonzola, Gruyere, Muenster, Parmesan, Port du Salut, Romano and Roquefort may be able to be tolerated occasionally. It is probably a matter of experimentation.

Milk is best avoided unless you can find a source of raw unpasteurised and are prepared to drink it, as pasteurisation kills the very enzymes in the milk that are there to help us digest it. Homogenisation also changes the fat structure in the milk, rendering it into a form that may be damaging to the body (not enough is known about what it does). They break the fat down so it will stay mixed into the milk but its effect is unknown.

I also use coconut milk and now actually prefer it to cows milk.

I had to avoid dairy too after going gluten-free and also most carbs as I can't digest them properly either which is also very common. I was actually Lactose intolerant for years - constantly clearing my throat - other foods can do that but dairy was the worst, and if I ate a dessert with gluten, cream and sugar, I would be coughing for hours. Like Shay and others I have been following the Specific Carbohydrate Diet and am gradually healing and recovering.

Bell Apprentice

I don't find soy milk to be mucous forming for me at all, but I am quite dubious about its supposed health benefits. I think I'd rather try and give up milk completely than drink as much soy as I would habitually have in my tea every day.

Coconut milk - isn't that really thick and creamy? lovely too, but surely you can't put it in hot drinks?

I am very interested in the specific carbohydrate diet, as I have noticed that although my stomach isn't upset, I feel more anxious and forgetful when I have rice and corn. But if I remember rightly, the SCD allows milk. I was worried about what to eliminate and what to keep. It seems everything is troublesome unless I try to ignore some of the more "mental" symptoms!

ShayFL Enthusiast

SCD only allows 24 hour fermented homemade yogurt. And can sub goat milk or coconut milk to make the yogurt if you dont tolerate Cow. A few cheeses to that have no lactose or casein.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    2. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    3. - Scott Adams replied to Jmartes71's topic in Doctors
      7

      Second chance

    4. - Russ H replied to EssexMum's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Concerning GP advice

    5. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,648
    • Most Online (within 30 mins)
      7,748

    anonymous54
    Newest Member
    anonymous54
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
    • Jmartes71
      Thats the thing, diagnosed in 1994 before foods eliminated celiac by biopsy colonoscopy at Kaiser in Santa Clara  now condo's but it has to be somewhere in medical land.1999 got married, moved, changed doctor's was with former for 25 years told him I waz celiac and that.Fast forward to last year.i googled celiac specialist and what popped up was a former well known heard of hospital. I thought I would get answers to be put through unnecessary colonoscopy KNOWING im glutenfree and she wasn't listening to me for help rather than screening me for celiac! Im already diagnosed seeking medical help.I did all the appointments ask from her and when I wanted my records se t to my pcp, thats when the with holding my records when I repeatedly messaged, it was down played the seriousness and I was labeled unruly when I asked why am I going through all this when its the celiac name that IS what my issue and All my ailments surrounding it related. I am dea6eoth the autoimmune part though my blood work is supposedly fabulous. Im sibo positive,HLA-DQ2 positive, dealing with skin, eye and now ms.I was employed as a bus driver making good money, I loved it for the few years my body let me do until I was yet again fired.i went to seek medical help because my body isn't well just to be made a disability chaser. Im exhausted,glutenfree, no lawyer will help and disability is in limbo thanks to the lax on my health from the fabulous none celiac Google bay area dr snd team. Its not right.
    • trents
      Welcome to the celiac.com community @EssexMum! First, let me correct some misinformation you have been given. Except in the case of what is known as "refractory" celiac disease, which is very rare, it is not true that the "fingers" will not grow back once a consistently gluten free diet is adopted. Celiac disease is an autoimmune condition whereby the ingestion of gluten triggers an inflammatory process that damages the millions of tiny finger-like projections that make up the lining of the small bowel. We call this the "villous lining". Over time, continued ingestion of gluten on a regular basis results in the wearing down of these fingers which greatly reduces the surface area of this very important membrane. It is where essentially all the nutrition from what we eat is absorbed. So, losing this surface area results in inefficiency in nutrient absorption and often to medical problems related to nutrient deficiencies. Again, if a gluten-free diet is consistently observed, the villous lining of the small bowel should rebound. "We was informed that her body absorbs the gluten rather then rejecting it and that is why she doesn't react to the gluten straight away, it will be a build up and then the pains start. " That sounds like unscientific BS to me. But it does sound like your stepdaughter may have a type of celiac disease we know as "silent" celiac disease, meaning, she is asymptomatic or at least the symptoms are not intense enough to usually notice. She is not completely asymptomatic, however, because you stated was experiencing tummy aches off and on. Cristiana gives some good suggestions about ordering "safe" food for your stepdaughter from restaurant menus in Europe. You must realize that as the step parent who only has her part of the time you have no real control over how cooperative her other set of parents are with regard to your stepdaughter's needs to eat gluten free. It sounds like they don't really understand the seriousness of the matter. This is very common in family settings where other members are ignorant about celiac disease and the damage it can do to body systems. So, they don't take it seriously. The best you can do is make suggestions. Perhaps print out some info about celiac disease from the Internet to send them. Being inconsistent with the gluten free diet keeps the inflammation smoldering and delays or inhibits healing of the villous lining. 
    • Scott Adams
      Here are some articles on cross-reactivity and celiac disease:      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.