Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If Something Has Been Missed

Amber M

Recommended Posts

Amber M Explorer
Amber M
Posted

Hi everyone, I have been (I am pretty sure) gluten free for over 4 months now and have been on a roller coaster. I start feeling better and then right back down hill. I am depressed and moody today. I feel like crap. My neuro symptoms are back and I have had a lower colon ache with lower back ache for 3 days. The only thing I could have been glutened or soyed by is Lays Potatoe chips.

They say they are gluten free, but made in the factory with other gluten. The equipment is washed, blah, blah, blah.......Does anyone else get a reaction from that?

Then I had a the annual Christmas party last night. Everyone brings something. My counters were covered with GLUTEN stuff. I had my own home made chicken drummets and fresh veggies. Oh Yea!!! I didn't think I'd be jelous, but I was because I felt like crap already. I guess if I felt better, I'd be less bothered by it. I made sure I washed me and my kitchen well, but I could smell the pizzas half the night even though they were out of the house.

I just want to be well and I woke up several times last night wondering if something has been missed and got full of worry like, am I full of cancer or something. I just feel so bad off and on and I don't understand this. How can I feel good and then so bad? I am just sick of being sick.

This is normal is it?? And what about the Lays Plain Chips? Any input? Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

Lisa Mentor
Lisa
Posted

Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Amber M Explorer
Amber M
Posted
  • Author
Many people here react to Frito/Lays Products, even though they are gluten free,. The cross contaimination during manufacturing seems to cause a problem for some.

Thanks, I suspected the chips because I seem to recall the last few times I'd eaten them before this time, I had a reaction to. Well, there's one more thing down.

Amber M Explorer
Amber M
Posted
  • Author
Hi Amber,

I'm sorry that you're feeling so bad!

DQ7 is associated with gluten intolerance, casein intolerance, and grass/pollen allergies... Is there anything you started eating a lot more of when you went gluten-free? I noticed in your signature that you went soy-free 30 years ago... what about corn? You could also try things like dairy, nuts, citrus, nightshades, tapioca, coconut... or even go on the SCD or the anti-candida diet. Once your body heals you might be able to tolerate a lot more foods again.

When I stopped eating gluten I started eating a LOT more corn than usual... corn chips, corn cakes, corn bread. Plus a lot of the gluten-free goodies have cornstarch. When I stopped eating corn for my son's benefit I was amazed at how much it helped me too. :)

I know it can be hard to sleep when you're worried and thoughts are racing through your mind. What kind of pre-bedtime habits do you have? A cup of tea or a warm shower really helps me unwind so I can sleep better. If I'm exhausted life can seem so overwhelming.

I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I prepare all of my sweets myself so I know whats in them and never eat the prepared stuff. Most of the gluten free prepared stuff has soy, so I never got into it. I have used corn starch to thicken some things. Why does the corn bother?

I got tested on the dairy and came back okay.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I hardly eat any corn now because I was feeling less well after eating it. I only eat corn tortillas about every 3 or 3 weeks when I make tacos. I will have to think about that too. I am going to check out the candida thing, I don't know much about it.

I'm still feeling bad today, but better than yesterday. I just want to cry right now alot. Thanks for your help.

Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

Amber M Explorer
Amber M
Posted
  • Author
Corn seems to be a common IgG allergen (just like gluten, dairy, and soy)... probably because it's difficult for the body to digest. The corn we eat today is very different from the original plant. It's also one of the most heavily genetically-modified foods <_< I'm checking into the candida thing too... I'm planning to try the SCD starting in January. Corn is in everything! If you get rid of corn syrup, corn starch, corn oil, etc... that eliminates a LOT of processed foods.

Another idea for you... vitamin D. I'm taking 4000iu per day and I feel a LOT more emotionally stable. :)

I am on the vit. D (400 IU) for the last 2 months. It is probably one the threads holding my brain together right now! LOLI

I am not eating any processed foods right now at all. Very basic seems to be the best, and I still screw up now and then. Like the Lays potato chips. Done with those! Rice seems to work the best on my stomach right now. (rice flower, pasta, etc.)

I started the "Oil Pulling" 3 days ago after researching it. I has already cleared my fluid biuldup out and whitened my teeth. When I start my dentist regimen in Feb., I'll be anxious to see if it changes my gum disease. It is suppose to detox the body too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

400iu of vitamin D is better than nothing, but that's just the RDA (which really needs to be revised). You need at least 2,000iu per day to raise your blood levels... depending on your weight you could take even more. Anything under 10,000iu is considered safe for long-term use.

Check out this website:

Open Original Shared Link

I'm glad to hear that the oil treatment seems to be helping! :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,204
    • Most Online (within 30 mins)
      7,748
    DreDre
    Newest Member
    DreDre
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      I also have food particles left on toiet paper when i wipe and my stool is light yellow not absorbing fats. I urinate about 15 times a day and have very sticky snot,dry throat.
    • kopiq
      starting to heal, vitamin d deficiant but cannot tolerate vitamins. what to do? also multiple ongoing issues.

      By kopiq · Posted

      Hi all, I was diagnosed by blood work about 2 months ago and have since went on a strict gluten free diet. I have an endoscopy in January and the GI dr said nothing about staying on gluten for it; hes aware i went no gluten. starting to heal symptoms include: (this is huge) sensation coming back to genitals and when having a bowl movement. everything has been numb for a long time down there including lower belly button area. good size (not abnormal) bowel movements once a day or every two days. small dot size wart just fell off my finger that was there for years. have not broke out with a cold sore this winter (every winter prior for years i would develop a cold sore on my lip) Ongoing issues I don't sweat. not from my hands, or armpits or feet. I do not get butterflys in stomach. my hands have been so dry for years ive been using a crack cream as they crack and bleed very severely in the fall and winter.  (since going gluten free ive not used crack cream but they are still very very dry and chapped/flaky, no sweat or moisture in palms of hands at all. I dont crave food. i have no cravings at all, not for pizza, ice cream , nothing. my cravings are dead. smell of foods kinda make me hungry, but my stomach blocks it. pins needles in feet get weak legs standing up from sitting and dizzy, things almost turn black. i cannot tolerate veggies or vitamins. Iam vitamin D deficient according to my Dr and Ive tried vitamin D pills. they give me a massive migraine for 8 hours and upset my stomach. the heat from the direct sun make me extremely tired to the point of wanting to pass out. again i don't sweat. broccoli gives me a migraine headache as well. mushrooms, bell peppers burn my stomach. fruits burn my stomach, fats (peanut butter, any oil or fat from meats make me sick to my stomach for a couple hours or longer. salt and pepper burns my stomach. all these issues cause pain at my belly button area and expand to the rest of my upper stomach and sides the more i ingest through out the day. I currently eat bland basmati rice, chicken, pork chops (fat trim), boiled russet potatoes no skin for three meals a day. my snacks are gluten free ground buckwheat flour pancakes. (just water, no oil , salt, dairy.) how am i to get vitamins in my system if i cannot tolerate them in my stomach? i mentioned epidermal vitamin patchs but dr said no. why cant i stand the heat from the sun ? why cant i sweat? thanks for any info.                
    • trents
      Celiac Maybe a Possibility?

      By trents · Posted

      Because you have significantly reduced your gluten intake over a considerable amount of time, it is likely that you will test negative on the antibody tests. However, if the $112 for the Quest test is not a burden, it wouldn't hurt to try. It tests for total IGA (to ascertain if you are IGA deficient) and tTG-IGA. If total IGA is deficient, it can result in false negatives in other IGA tests. The tTG-IGA is the single most popular test ordered by physicians. The Quest test is not a complete celiac panel by any means (refer to the linked article above) but it might be a good place to start. Personally, I think you know enough to conclude that you need to get serious about avoiding gluten, whether you have celiac disease or NCGS. Human nature being what it is, however, many people seem to need an official diagnosis of celiac disease in order to stay on the bandwagon. Otherwise, they seem to rationalize cheating on the gluten-free diet. And there is this misconception out there that NCGS is inconvenient and uncomfortable but not harmful so it's okay to cheat. The more we learn about gluten-related disorders the more they seem to not fit into our neat little black and white categories. By the way, celiac disease is not a food allergy. It is classified as an autoimmune disorder.
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      These responses are all extremely helpful, ty.  Really good reminder about omega 6.  I also know I'm low in zinc; I took the zinc test where I drank it on a spoon and couldn't taste it.  To that end, I try to eat a lot of oysters.  I do think it would be a good idea to get the blood test.  Two questions: 1-  Is there any reason you wouldn't recommend that I just buy and take a test like this as a first step? 2- I've been somewhat gluten free since ~Jan 2023 (technically organic, gluten free, soy free, light on dairy).  I eat a lot of meat, vegetables, rice -- a common breakfast for me is three eggs and a sausage link, and I can't remember the last time I had a sandwich or bread.  However, because in my mind I didn't think I had an allergy, and I more was doing gluten free to avoid artificially iron-enriched foods, I do make exceptions.  I'll eat breaded calamari.  When my Dad visits, I split mozzarella sticks with him because he loves them so much.  I'll eat the "gluten sensitive" items at a restaurant and if they asked, "is cross contamination ok?",  I always said yes.  Based on that, since I never probably fully eliminated gluten, but it was significantly reduced... is that good enough to take the blood test?  Because the pain in my side gets SO bad (really sometimes I can't function, and I absolutely thought I was dying), I am hesitant to do the gluten challenge.  Would it make sense to take the test, and if it's negative, then consider doing the challenge and seeing if I can deal with eating the bread every day? Thanks again!
    • Yaya
      Muscle Twitching

      By Yaya · Posted

      For me, with osteoporosis, Celiac and more than 1 heart condition, the slower, safer route is preferable.  I'm on 5 meds per day.  Too much of anything can disturb absorption of this or that. Have a Happy Thanksgiving.  I'm gone for a few days.  
×
×
  • Create New...