Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Being Glutened?

fran641

By fran641
in Coping with Celiac Disease

Recommended Posts

fran641 Contributor
fran641
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? Do you experience the same symptoms as before you became gluten free? Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ladywinger Newbie
ladywinger
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? "got glutened" for me is accidentally ingesting gluten. If you continue to "get glutened" you will eventually damage so many of your organs....immune system and you could get Lymphoma....I was misdiagnosed for many many years, since birth until diagnosis...(59 years)...when I finally got the diagnosis of Lymphoma is when they discovered celiac disease.

Do you experience the same symptoms as before you became gluten free? For me Yes!!

Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. Yes, I have to know where every bathroom is when I am away from home.

This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out. For me yes. I have been able to get out and do more lately....Some of my running to the bathroom so often now is also contributed by the chemo that I am on.

Like I said, I can do more now....just a lot of pre-planning.

spinsterwitch Rookie
spinsterwitch
Posted

Yes, almost the exact same symptoms...and you start to see how sensitive you really are when it happens.

The internet is your friend. Whole Foods and Trader Joe's have gluten-free shopping lists. You can download them, or ask the nice store manager. Walgreens has a gluten-free list of the medications they sell. Seriously, consult this before taking anything.

If in doubt, call the manufacturer or the restaurant.

1morething Explorer
1morething
Posted

I actually just got glutened this past Saturday at a restaurant. I was so careful about ordering my steak without spices, my desert chocolate moose without cookie, but I didn't ask about the salad dressing. Well 1 hours after having the salad, the cramps and bloating came back. I was so in pain. Yesterday I was so tired and today the diarrhea. So yes, those are the same symptoms I had before starting the diet which was 2 months ago. I was feeling so good since going gluten free. Now I know if I accidentally eat something, I'll feel it.

Good luck

Rachel

cat3883 Explorer
cat3883
Posted

My symptoms are acutally worse than before I was diagnosed. I get an instant migraine and it goes downhill from there. I hope I never have that poison in my body again.

fran641 Contributor
fran641
Posted
  • Author

Ladywinger, I am sorry to hear about your diagnosis of lymphoma. I pray you will have a good recovery. That was actually my next test when they found the Celiac. If I'm not improved by my Dec. 30 visit the doc will consider a lymph gland biopsy. But right now it looks like the gluten-free seems to be helping. Today I have been sorting and cleaning out the spice cupboard and now I have nausea. I guess it's the spice dust that gets on the shelves. But I am relieved it's done.

Thanks to everyone who responded, I so appreciate the help.

  • 2 weeks later...
lokinetworks Newbie
lokinetworks
Posted

My first sign that I was glutened was depression. I woke up and laid in bed praying to god that he just take me. The whole day I experienced stomach cramps and nausea. I couldn't figure it out until I read the label on the spaghetti sauce

I ate the night before. For the next 48 to 72 hours I felt like I was hit by a bus. I could hardly walk.Everything ached, even my jaw!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bremac Apprentice
bremac
Posted

I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

fran641 Contributor
fran641
Posted
  • Author
I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

It's funny that you should mention vomiting, well not funny you know what I mean. The one symptom I had tonight was a lot of nausea. :( I didn't get that very often before this gluten-free diet. I can't track any gluten I had but I think it may be some super sweet brownies I made that are gluten-free. Or I just overate. Anyway I'm crawling in bed to get over the sick stomach and hope to wake up good as new.

IMWalt Contributor
IMWalt
Posted

I usually can tell by an excess of gas and cramps. Then the next day I'll have D a few times, and then loose stools for anywhere from 3 to 5 days. Lately I also seem to get dizzy for a while. Luckily I have not yet vomited, and I don't get the extreme fatigue many experience.

Walt

TES Newbie
TES
Posted

I am newly self diagnosed. Since going gluten free, My symptoms which include gut, brain, and skin, all are improving, except when I get gluten back in my system, not quite as bad, but still miserable. I am having trouble with labels stating they are gluten free, but have either white vinegar, vanilla or food coloring, which all give me gluten symptoms. I decided I could make my own candy for Christmas and the Karo syrup with real vanilla gave me symptoms. Contacted Karo syrup, they said vanilla was lab produced, no grain alcohol was and gluten free. Made me sick????

ang1e0251 Contributor
ang1e0251
Posted

Did they add coloring to their vanilla? I found I am sensitive to some food products with caramel coloring even though it shouldn't be a problem in the US. My reactions vary but always have D and gas but other symptoms can crop up. It is more severe than before the gluten-free diet. But that was true when I went off fresh dairy too. Hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,137
    • Most Online (within 30 mins)
      7,748
    Kimberley Ogle
    Newest Member
    Kimberley Ogle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Katya773
      Wholefoods 365 Organic Wheatgrass Powder

      By Katya773 · Posted

      Ohh gotcha , thank you! Makes sense why I got so sick 😕 Definitely avoiding this in the future 
    • pmarklesparkle
      Best apps for people with celiac

      By pmarklesparkle · Posted

      Thank you, Hopeful!  I've downloaded both of those apps and will try them out.  Much appreciated!
    • Thelma Cadieux
      Cycle of dermatitis herpetiformis

      By Thelma Cadieux · Posted

      Thanks but I will check it out with my doctor, usually stress will trigger it,
    • Hopeful1950
      Cycle of dermatitis herpetiformis

      By Hopeful1950 · Posted

      Has any doctor suggested taking a round of Dapsone?  If you have dermatitis herpetiformis, dapsone will clear it fairly quickly.  It is not a drug you would want to take forever, but when all else failed my doc had me take it as a way to determine if it was dermatitis herpetiformis.  Sure enough it worked like a miracle and itch stopped and after 2 months the rash cleared.  Then I embarked on figuring out how to eat to avoid the breakouts.  It is my understanding that once you expose to gluten, the reaction happens and antibodies are deposited in your skin.  They can blister right away or hang around for a long time and get "activated" by other things like your monthlies, pressure, stress etc.... It makes it difficult to diagnose and difficult to manage.
    • Hopeful1950
      Best apps for people with celiac

      By Hopeful1950 · Posted

      I use an app called Spoonful where you can scan labels and it will tell you whether it is safe, questionable (and why) and also something you can substitute.  It also makes it easier to see what is on the label.  There are some ingredients that I avoid in addition to gluten. You can also search the app by a category.  I just searched on "cosmetics and a few things popped up as compliant.  I think the app is mainly focused on food.  When I first started out reading labels was a nightmare and it took me so much time at the store.  This app has really helped me when I am looking at something new.  They update frequently, and if something isn't in their data base there is an AI function where you can enter the information from the label and it will analyze it right away for you. I have used an app called Find Me Gluten Free in the past when I am traveling to find restaurants.  People's reviews are very helpful because even when a restaurant claims to be able to accommodate, often people will find out differently and they report it on reviews. Hope this helps.
×
×
  • Create New...