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Being Glutened?

fran641

By fran641
in Coping with Celiac Disease

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fran641 Contributor
fran641
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? Do you experience the same symptoms as before you became gluten free? Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out.

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ladywinger Newbie
ladywinger
Posted

Still new, only 6 days. I hear the phrase "got glutened" often and I understand that it would mean you accidentally ingested gluten but my question is what happens to your body? "got glutened" for me is accidentally ingesting gluten. If you continue to "get glutened" you will eventually damage so many of your organs....immune system and you could get Lymphoma....I was misdiagnosed for many many years, since birth until diagnosis...(59 years)...when I finally got the diagnosis of Lymphoma is when they discovered celiac disease.

Do you experience the same symptoms as before you became gluten free? For me Yes!!

Like a week ago I had pain, cramps, bloating, the Big D and nasty gas (don't I sound like the ideal date? if I were single) panic attacks for fear of accidents in public. Yes, I have to know where every bathroom is when I am away from home.

This was with almost every meal. Is that what I have to look forward to if I ingest gluten once I'm cleared out. For me yes. I have been able to get out and do more lately....Some of my running to the bathroom so often now is also contributed by the chemo that I am on.

Like I said, I can do more now....just a lot of pre-planning.

spinsterwitch Rookie
spinsterwitch
Posted

Yes, almost the exact same symptoms...and you start to see how sensitive you really are when it happens.

The internet is your friend. Whole Foods and Trader Joe's have gluten-free shopping lists. You can download them, or ask the nice store manager. Walgreens has a gluten-free list of the medications they sell. Seriously, consult this before taking anything.

If in doubt, call the manufacturer or the restaurant.

1morething Explorer
1morething
Posted

I actually just got glutened this past Saturday at a restaurant. I was so careful about ordering my steak without spices, my desert chocolate moose without cookie, but I didn't ask about the salad dressing. Well 1 hours after having the salad, the cramps and bloating came back. I was so in pain. Yesterday I was so tired and today the diarrhea. So yes, those are the same symptoms I had before starting the diet which was 2 months ago. I was feeling so good since going gluten free. Now I know if I accidentally eat something, I'll feel it.

Good luck

Rachel

cat3883 Explorer
cat3883
Posted

My symptoms are acutally worse than before I was diagnosed. I get an instant migraine and it goes downhill from there. I hope I never have that poison in my body again.

fran641 Contributor
fran641
Posted
  • Author

Ladywinger, I am sorry to hear about your diagnosis of lymphoma. I pray you will have a good recovery. That was actually my next test when they found the Celiac. If I'm not improved by my Dec. 30 visit the doc will consider a lymph gland biopsy. But right now it looks like the gluten-free seems to be helping. Today I have been sorting and cleaning out the spice cupboard and now I have nausea. I guess it's the spice dust that gets on the shelves. But I am relieved it's done.

Thanks to everyone who responded, I so appreciate the help.

  • 2 weeks later...
lokinetworks Newbie
lokinetworks
Posted

My first sign that I was glutened was depression. I woke up and laid in bed praying to god that he just take me. The whole day I experienced stomach cramps and nausea. I couldn't figure it out until I read the label on the spaghetti sauce

I ate the night before. For the next 48 to 72 hours I felt like I was hit by a bus. I could hardly walk.Everything ached, even my jaw!!

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bremac Apprentice
bremac
Posted

I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

fran641 Contributor
fran641
Posted
  • Author
I was diagnosed 7 and a hal years ago and rarely get accidentally "glutenated" but I make mistakes especially with cross contamination. I would say I am more sensitive now and have worse reactions. I tend to vomit and then have diarrhea...NICE :P But the more you heal and your villi start to come back, you will feel better and only get sick when accidents happen.

It's funny that you should mention vomiting, well not funny you know what I mean. The one symptom I had tonight was a lot of nausea. :( I didn't get that very often before this gluten-free diet. I can't track any gluten I had but I think it may be some super sweet brownies I made that are gluten-free. Or I just overate. Anyway I'm crawling in bed to get over the sick stomach and hope to wake up good as new.

IMWalt Contributor
IMWalt
Posted

I usually can tell by an excess of gas and cramps. Then the next day I'll have D a few times, and then loose stools for anywhere from 3 to 5 days. Lately I also seem to get dizzy for a while. Luckily I have not yet vomited, and I don't get the extreme fatigue many experience.

Walt

TES Newbie
TES
Posted

I am newly self diagnosed. Since going gluten free, My symptoms which include gut, brain, and skin, all are improving, except when I get gluten back in my system, not quite as bad, but still miserable. I am having trouble with labels stating they are gluten free, but have either white vinegar, vanilla or food coloring, which all give me gluten symptoms. I decided I could make my own candy for Christmas and the Karo syrup with real vanilla gave me symptoms. Contacted Karo syrup, they said vanilla was lab produced, no grain alcohol was and gluten free. Made me sick????

ang1e0251 Contributor
ang1e0251
Posted

Did they add coloring to their vanilla? I found I am sensitive to some food products with caramel coloring even though it shouldn't be a problem in the US. My reactions vary but always have D and gas but other symptoms can crop up. It is more severe than before the gluten-free diet. But that was true when I went off fresh dairy too. Hope you feel better soon.

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    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
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      By RMJ · Posted

      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
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      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
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