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- cristiana replied to Vickey Matteson's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Celiac diagnosis
@trents @Vickey Matteson Trents makes a very interesting point. I did not have gastric symptoms initially but about six months before my diagnosis I had very odd liver function test results, iron deficiency and anxiety. I developed gastric symptoms just prior to my diagnosis - I honestly think that if I hadn't, my doctors would still be wondering what... -
- trents replied to Vickey Matteson's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Celiac diagnosis
Welcome to the forum, @Vickey Matteson! What you describe is actually very common in the celiac community. We call it "silent celiac disease". Silent in the sense of not causing significant discomfort or distress. After diagnosis, many silent celiacs look back and realize they did have some symptoms but they were so minor as to not grab their attention...- 1
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- Vickey Matteson posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Celiac diagnosis
Hi all, I've been diagnosed Celiac. I don't have symptom's if I eat gluten and the doctor's don't know why. Has anyone heard of this happening? I am on a gluten free diet because of the diagnosis but it doesn't make any sense if I don't have symptom's. I was diagnosed when I was 60, I am now 70, so what happened my first 60 ? Any thoughts... -
- cristiana replied to Sarah Grace's topic in Related Issues & Disorders8
Sarah Grace
Good point, they should never have cut this from the syllabus. -
- knitty kitty replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6abnormal weight loss
Hello, @glucel, I lost sixty pounds in six weeks. It was shocking. Fat loss as well as muscle wasting. Thiamine is needed to turn carbohydrates, fats, and protein into energy. With insufficient Thiamine, the body uses a shortcut to save thiamine. The body stores carbohydrates as fat, and later burns the stored fat for energy, a process which...
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@trents @Vickey Matteson Trents makes a very interesting point. I did not have gastric symptoms initially but about six months before my diagnosis I had very odd liver function test results, iron deficiency and anxiety. I developed gastric symptoms just prior to my diagnosis - I honestly think that if I hadn't, my doctors would still be wondering what was causing those other issues.
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Welcome to the forum, @Vickey Matteson! What you describe is actually very common in the celiac community. We call it "silent celiac disease". Silent in the sense of not causing significant discomfort or distress. After diagnosis, many silent celiacs look back and realize they did have some symptoms but they were so minor as to not grab their attention or they were symptoms of a nature that they would not have connected with celiac disease. Given enough time, and as damage to the small bowel villous lining progresses, symptoms will eventually appear. Who knows how long before your diagnosis the onset of your celiac disease occurred. The time between onset and diagnosis may have been many years or only a few. You were born with the genetic potential for developing celiac disease but that doesn't mean you had it from birth. Almost 40% of the population has the genetic potential to develop celiac disease but only about 1% actually develop it. It takes both the genetic potential and some kind of triggering environmental or health event that turns the genes on, such as a viral infection or frequent antibiotic treatments. So, since you say you can eat gluten and not have a reaction and you have no symptoms, how is it that you got diagnosed with celiac disease? What led to that? There must have been some lab work or health issues that prompted your physician to test you for celiac disease. There are over 200 known symptoms associated with celiac disease and most of them have nothing to do with GI distress. Most people (and unfortunately, many physicians) only think of classic GI symptoms when considering celiac disease. What led to your being tested for celiac disease?
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By Vickey Matteson · Posted
Hi all, I've been diagnosed Celiac. I don't have symptom's if I eat gluten and the doctor's don't know why. Has anyone heard of this happening? I am on a gluten free diet because of the diagnosis but it doesn't make any sense if I don't have symptom's. I was diagnosed when I was 60, I am now 70, so what happened my first 60 ? Any thoughts? Thanks, Vickey -
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By knitty kitty · Posted
Hello, @glucel, I lost sixty pounds in six weeks. It was shocking. Fat loss as well as muscle wasting. Thiamine is needed to turn carbohydrates, fats, and protein into energy. With insufficient Thiamine, the body uses a shortcut to save thiamine. The body stores carbohydrates as fat, and later burns the stored fat for energy, a process which uses less thiamine. Unfortunately, this leads to fatty weight gain seen in obesity, NAFLD, POTS, and metabolic syndrome. With a diet high in carbohydrates, but low in Thiamine, High Calorie Malnutrition is the result. The more carbohydrates you eat, the more Thiamine is needed. One of the most important concepts to keep in mind about Thiamine is that high doses are required to correct Thiamine deficiency disorders. The body responds amazingly when high doses of Thiamine are taken. There are changes seen in high dose Thiamine not seen at lower doses. The best results are obtained by taking more than 500 mg/day of Thiamine Hydrochloride or Benfotiamine. I had taken a multivitamin for years, but it wasn't until I started taking high dose Thiamine that improvements were seen. More than 100 mgs are needed. I took 300 mg of Benfotiamine with each meal. Our bodies can absorb about 300 mgs every three hours. If all the extra energy keeps you awake at bedtime, take the last dose in the early afternoon. Thiamine supplementation should be continued for three months minimum. Subtle health improvements continue to surface with continued thiamine supplimentation. Thiamine interacts with all the B vitamins, so taking a B Complex in addition is important. Thiamine needs magnesium to make enzymes, so take a magnesium supplement as well. (Magnesium Glycinate or Magnesium chelate, or Magnesium Threonate are great. Avoid magnesium oxide as it pulls water into the intestines, relieving constipation, but is not absorbed well.) Dr. Derrick Lonsdale and Dr. Chandler Marrs on their website hormonesmatter.com have been sharing information about Thiamine for years. Cheers to you for eating liver! My favorite food! Do keep us posted on your progress! I'm excited to hear about your progress!
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