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I Feel Sick. It's Been 7 Days.

mr. moore

By mr. moore
in Meet Up Room

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mr. moore Explorer
mr. moore
Posted

i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

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ShayFL Enthusiast
ShayFL
Posted

Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

mr. moore Explorer
mr. moore
Posted
  • Author
Going gluten-free "before" labs can get you a false negative. If you want proper Celiac testing you MUST eat gluten beforehand for a good few months to hope for more accurate testing.

It is VERY COMMON to feel like crap for a few weeks while you are "detoxing" from gluten. Yes, it is a toxin. And it is addictive as well. It fits nicely into our opiate receptor sites in our brains. That is why it is "comfort" food. It is a drug.

So ride it out, the yucky feelings will pass. It took me a good 6 weeks before I actually started feeling BETTER than I had in MANY years. Some feel better sooner. Hold on!!

OR eat gluten for awhile and get tested.

holy cow that was fast! haha. i don't know if there's any way you can get me on that stuff after i accidently ingested some, but i will prolly slip up come xmas, though i'll try my aunts are cooking and they're just pro, so ill tell them about my special needs. hopefully they'll understand. im gonna keep going gluten free, because im sure my intestines or villi or whatever are still messed up. im sure of that.

mr. moore Explorer
mr. moore
Posted
  • Author

ok i feel like i have the flu and have no energy. is this a good sign?

Anna and Marie Newbie
Anna and Marie
Posted
ok i feel like i have the flu and have no energy. is this a good sign?

It is when your detoxing, I've been like this for six months but it'll get better. I had to stop running for awhile because I was so drained. it hurt to walk up three steps, let alone run a couple miles. I'd advise you to keep going or you'll just have to go through it all again. That would be incredibly painful :D

~Anna

ang1e0251 Contributor
ang1e0251
Posted

This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

mr. moore Explorer
mr. moore
Posted
  • Author
This is what you feel like when you get glutened. If you eat more gluten at Christmas, you'll start the detox all over again. Write down what you're eating and how you feel when you eat it as well as later symptoms, then show it to your gastro when you go. It could help him to see the cause and effect of what you're trying to explain to him.

well ive been a good week in it. so if i screw up once it's like im screwed?

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DingoGirl Enthusiast
DingoGirl
Posted

You know, you actually might have the flu or some sickness.... 'tis the season... :)

CeliacAlli Apprentice
CeliacAlli
Posted
You know, you actually might have the flu or some sickness.... 'tis the season... :)

Uh..yeah. It may not be the detoxing at all =(.

It is normal to feel that way though........

mr. moore Explorer
mr. moore
Posted
  • Author
You know, you actually might have the flu or some sickness.... 'tis the season... :)

yeah i guess. this is also the season where i've gone full blown hypochondriac! im not even gonna mention the things i thought i had before i got to this website! im gonna try not having anything with aspartame, the stuff in sugar free stuff, and see ho it goes. because from what i've observed on this site, people with bad probles usually are addicted to what's ailing them. and i get cravings for certain chewing gums, in fact i've always chewed sugar free since i got my fillings (6 in all, gotta catch em all!) but i guess nothing is safe! especially after reading the wikipedia on it.

ang1e0251 Contributor
ang1e0251
Posted

All those sugar subs make me sick and give me tremors.

MNBeth Explorer
MNBeth
Posted
well ive been a good week in it. so if i screw up once it's like im screwed?

Hate to say it, but, yeah, pretty much. You really need to do this all the way and very carefully to get an accurate read on whether it makes a difference.

princessnoel Newbie
princessnoel
Posted
i feel so damn crummy right now. 7 days since i've had my favorite comfort food. My bones hurt and i feel like i have a cold. worst is i told a friend that i went three days without gluten, had a cracker and that my stomach hurt and i fell asleep. he was like "well dude thats what happens when you don't have any food in that group for days". i hope this all isn't in my head! i, thinking of quitting. but im gonna see a GI doctor. you woulnd't believe the BS, i have to just TALK to him the first time, so he knows my symptoms, even though all i want is the straight up lab work. im paying the guy to tell him what i already know and i don't like that seeing as how i owe so many doctors money in the first place. should i go and still do it? even though my family probably thinks its all a waste.

My advice is to get this test done: Open Original Shared Link

order the Gluten-sensitivity test for $99. the test comes to you in the mail and you send it back in the mail. the results are emailed to you and you never have to leave your house. the best part is you DON'T have to be on a gluten diet to do it. I did it after 2 months of being off gluten and it came back 99 points positive. Then, after you get this test done (which is more accurate than blood test) you can still go to a GI if you want to. But I've had no need to. I just don't eat gluten and i'm fine. This way i know it's not just in my head.

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    • Ann13
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      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your food isn't what's causing the issue. I am checking with symbicort manufacturer to check their ingredients.  Good bye... I'm done with this. 
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      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community generally suffers from gut dysbiosis. So it would be easier for celiacs using inhalers to develop thrush.
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      Re food,  I said the gluten free thing isn't necessarily about gluten itself, but chemical sprays they use on GRAINS which cause allergic throat & vocal cord issues regardless of the inhaler you're using.  Your issue may not be the inhaler but eating gluten free food that still will bother you because they have been sprayed with certain chemicals. Barley & oats cause vocal and throat issues with me as well as gluten free flours. We didn't have gluten issues in the world yrs ago...the food changed somehow or they're using sprays that cause reactions in some people.  Re inhaler: Symbicort is registered as gluten free but companies can change their ingredients at any time so you may want to check with the company who makes it and get an ingredient list.  I don't believe I'm reacting to the inhaler...I believe it's a gluten free pasta I've been eating so I'm taking it out of my diet. I've used the inhaler for over 1 year and no problems up until now so I suspect it's the pasta. 
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      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
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      By trents · Posted

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