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Another Celiac Patient Joining The Group! Labs Came Out Positive

TiredofTums

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TiredofTums Rookie
TiredofTums
Posted

:( Hi friends! I was on the forum last week and the week before suspecting Celiac after my doctor I went to see because of getting sick alot with my intestines and he ordered labs and I am scheduled tomorrow for an Endoscopy and Colonoscopy. He wanted to check for Celiac.

My labs were positive! And he did confirm Celiac Disease. I ordered the grocery shopping guide and am glad I did. It will be very helpful in helping me get well again. I was hoping I wouldn't have to have the other two tests but because of my age and cancer running in my family, he still wants to check me out really good. I got some major damage and have been this way for years never knowing it was Celiac. And have been a very sick female! 27 years I have suffered with this mess and went from doctor to doctor complaining. Now it is official! I have Celiac!

Thank-you so much for helping me! Now I have to learn all about this disease and how to control it by stopping all glutens!

Another thank-you to Lisa for getting me in the forum and telling me all about Celiac! My sister took her son in yesterday because he has been sick for two years now. Poor boy has been vomiting for 3 weeks and gets headaches all the time. Plus he has other things going on. We are just about positive he too has Celiac. Then my mother to is having the same problems. She has been sick for alot longer than me!

Thanks to Lisa for guiding me in the right path! Those labs came in handy and now I am officially a Celiac Patient!

This site really gave me alot of help and I appreciate everybody that took the time to help me!

God bless!

Linda That Is Tired Of Tums

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ravenwoodglass Mentor
ravenwoodglass
Posted

I am so glad you finally know and can start healing. I hope things improve quickly for you.

ShayFL Enthusiast
ShayFL
Posted

What a relief!! And not that I hope other family members of yours have it, but if they do, you can ALL get healthy together. :) And eat at each others houses without worry. There are blessings along with the curse. May you find them all!

Lisa Mentor
Lisa
Posted

Linda,

Welcome to the Club! ;)

I am so glad you found the right path toward recovery. The theme around here and nationwide is "Celiacs Helping Celiacs", so pay it forward and reach out to others. Your family looks like a great place to start. :)

You have exciting days ahead, full of recovery and good health. I'd be willing to bet you will be seeing improvement in your other issues and your diagnosis of Lupus may be reversed.

Best of health to you and looking forward to seeing you here!

happygirl Collaborator
happygirl
Posted

Congratulations, Linda! I'm happy you have finally found your much needed answers. A great Christmas blessing.

ang1e0251 Contributor
ang1e0251
Posted

Congrats on your diagnosis. It's a great relief to put a name to your seemingly disjointed problems and finally have an action plan. I was so relieved and grateful. I know you are on an exciting journey to improved health. Have a healthy holiday and New Year!!

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      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
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      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
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