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Another Celiac Patient Joining The Group! Labs Came Out Positive


TiredofTums

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TiredofTums Rookie

:( Hi friends! I was on the forum last week and the week before suspecting Celiac after my doctor I went to see because of getting sick alot with my intestines and he ordered labs and I am scheduled tomorrow for an Endoscopy and Colonoscopy. He wanted to check for Celiac.

My labs were positive! And he did confirm Celiac Disease. I ordered the grocery shopping guide and am glad I did. It will be very helpful in helping me get well again. I was hoping I wouldn't have to have the other two tests but because of my age and cancer running in my family, he still wants to check me out really good. I got some major damage and have been this way for years never knowing it was Celiac. And have been a very sick female! 27 years I have suffered with this mess and went from doctor to doctor complaining. Now it is official! I have Celiac!

Thank-you so much for helping me! Now I have to learn all about this disease and how to control it by stopping all glutens!

Another thank-you to Lisa for getting me in the forum and telling me all about Celiac! My sister took her son in yesterday because he has been sick for two years now. Poor boy has been vomiting for 3 weeks and gets headaches all the time. Plus he has other things going on. We are just about positive he too has Celiac. Then my mother to is having the same problems. She has been sick for alot longer than me!

Thanks to Lisa for guiding me in the right path! Those labs came in handy and now I am officially a Celiac Patient!

This site really gave me alot of help and I appreciate everybody that took the time to help me!

God bless!

Linda That Is Tired Of Tums


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ravenwoodglass Mentor

I am so glad you finally know and can start healing. I hope things improve quickly for you.

ShayFL Enthusiast

What a relief!! And not that I hope other family members of yours have it, but if they do, you can ALL get healthy together. :) And eat at each others houses without worry. There are blessings along with the curse. May you find them all!

Lisa Mentor

Linda,

Welcome to the Club! ;)

I am so glad you found the right path toward recovery. The theme around here and nationwide is "Celiacs Helping Celiacs", so pay it forward and reach out to others. Your family looks like a great place to start. :)

You have exciting days ahead, full of recovery and good health. I'd be willing to bet you will be seeing improvement in your other issues and your diagnosis of Lupus may be reversed.

Best of health to you and looking forward to seeing you here!

happygirl Collaborator

Congratulations, Linda! I'm happy you have finally found your much needed answers. A great Christmas blessing.

ang1e0251 Contributor

Congrats on your diagnosis. It's a great relief to put a name to your seemingly disjointed problems and finally have an action plan. I was so relieved and grateful. I know you are on an exciting journey to improved health. Have a healthy holiday and New Year!!

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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