Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Night From Hell


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

We had a snow day yesterday, so it was my dh's turn to stay home with the kids while I braved the roads to work. I worked a 12 at the hospital and at about 6, dh called and said my 3yo son felt really warm (but was wearing 2 tshirts and a sweatshirt) and had not made it to the bathroom 3x in the last hour--he NEVER pees his pants. I asked him to remove his shirts and take his temperature. Now to preface, dh is an amazing dad and loves his kids more than anything, however, he thinks I'm over the top neurotic with the kids AND he doesn't believe in medicating the kids for anything--and I only do WHEN it's necessary. On ds's 1st birthday, he spiked a temp of 105 3 hours into a dose of Motrin and had a seizure in my arms. He's very susceptable to these high fevers and needs to be medicated sooner rather than later, hopefully by age 5 this will get better.... Anyway, I get home, it's snowing so hard at this point. I walk into the house and the poor kid, still in 2 tshirts, is laying on the couch completely lethargic. DH is working on the computer. I ask what the temp was, he says, "I don't know, I didn't take it, he was fine an hour ago" I say he's burning up, DH says "so" (because he thinks I'm over-reacting at this point). Temp is 103, I give him Motrin and call the dr. We end up in the emergency room, luckily not too busy, and they determine he has a UTI and want to put him on antibiotics--the nearest pharmacy open at 1130pm is 20 minutes away and it's still snowing and now frozen (we had to wait another half hour for the pharmacist to find one that's gluten-free and he's allergic to penacillin). I decide to monitor him during the night and keep up with the meds, go to check on him, he's 2 hours from needing more Motrin, and he's burning up again-I got at least 104 before he started writhing around. Of course we had no Tylenol to piggyback wwith the Motrin, DH now sees how dire this is and he braved the roads to get me the Tylenol. I knew it would be about a 1/2 hour before he came back, so I used the kangaroo hold I used when they were babies and basically used skin to skin contact to calm him and TRY to keep the temp down (I spooned his back against my torso), it actually brought the temp down a 1/2 degree. Gave the Tylenol and then 3 hours later gave the Motrin, finally feeling I could sleep at 3-4am. He's doing mildly better this morning, but now I have to figure out how to get to the pharmacy because we got a couple more inches of snow last night. I'm so glad he's even a little better this morning, he scared me!! And, DH apologized and thanked me for realizing how sick he really was......I'm still a little frustrated though <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Oh Rachelle--what an awful night :( I hope the worst is over and your son recovers quickly. I was scared for you as I read this.

Jestgar Rising Star

Gads! Stupid men. None of 'em would survive without women to take care of them.

Mother of Jibril Enthusiast

How awful! :(

Have you ever tried a lukewarm bath? My son was running a temperature as high as 104 degrees this summer (even on Tylenol)... he ended up having meningitis. The baths really helped bring his fever down for a while. Just make sure the water is not too cold, otherwise his fever will spike again from the shivering.

celiac-mommy Collaborator

He was shivering already right before I did the skin to skin. He wasn't seizing yet, but I could tell that he wasn't far off. I managed to get the antibiotics this morning, so he's had one dose and I'm managing to keep his temp around 101. I did let him go out in the snow for a bit this morning and he had a blast, but now he's tired again. To add insult to injury, I came into the kitchen after I had settled him in (in the middle of the night) and my dh had spaced it out and following the directions on his chinese food dinner-not gluten-free-grabbed the 10 inch skillet, which happens to be cast iron and is NEVER supposed to touch gluten, big NO NO in the house (and he knows that) not only cooked his dinner in it, but left it to make a nice crust in the bottom of the pan. That's about the point where I lost it. Here it was, after midnight, and I'm trying to boil off the remnants and then scour all of the seasoning I've been working so hard to make. If he had been standing in front of me at that point, I probably would have hit him with it :huh: I'm not really sure how they'd ever survive without me (God willing, they'll never have to)......not that I'm perfect by any stretch, but at least I have all my ducks in a row, even if it's more on the side of OCD ;)

DingoGirl Enthusiast

Your poor baby! :o And poor you! What a scary time!

Men! <_< glad you're there and on top of this, what a terrible worry......

now - step away from the skillet...... :lol:

jerseyangel Proficient
now - step away from the skillet...... :lol:

:lol: Yes! I admire the restraint it took not to bean him with it!

I'm sure he's normally a very nice guy, though ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac-mommy Collaborator
:lol: Yes! I admire the restraint it took not to bean him with it!

I'm sure he's normally a very nice guy, though ;)

Yes, normally a nice guy. He's one of the smartest people I've ever met in my life, he just doesn't give things a lot of thought before doing or saying-how it will affect anyone other than himself, not that he's selfish at all, just doesn't think sometimes. I'm over-emotional and he's very under-emotional. We've been married for over 10 years, we must fit somehow... :blink: maybe by year 20 I'll figure it out :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,670
    • Most Online (within 30 mins)
      7,748

    Karen MM
    Newest Member
    Karen MM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      g/L, a weight per volume unit, would be a very unusual unit for a celiac specific (EMA) test.   1.24 g/L would be in the normal range if this was a TOTAL IgA test. Best to ask the doctor.
    • Lieke
      Hi Hi! I am looking for a PCP in the Portland ME area. I have been dealing with Celiac disease for 30 years. My specialist Celiac MD is in Boston, but I want somebody closer by. Am thinking of an MD working in functional medicine/integrative medicine who is willing to ‘walk the journey’ with me. Despite a strict gluten-free diet, I still have challenges, am ‘super sensitive celiac’ with at time cross contact issues when going out to dinner.  any suggestions?  much appreciated! lieke
    • knitty kitty
      Part of the body's immune reaction to gluten is to release histamine.  This tastes salty, just like tears and snot.        
    • knitty kitty
      I've had dry eye symptoms.  The eye drops did not help me.  What did help was making sure I was consuming Omega Three fats like flax seed oil and olive oil, and taking essential B vitamins, especially Riboflavin, Thiamin, and Vitamin C, as well as Vitamin A, one of the fat soluble vitamins.   Newly diagnosed Celiac can have trouble absorbing fats and absorbing B vitamins.  Most gluten free processed foods contain saturated fats which the body can't utilize. Gluten free processed foods are not enriched with vitamins like gluten containing products.  The eyes make a film of healthy omega three fats which keeps the eyes lubricated.  Insufficient omega threes can show up as dry eyes.  Most newly diagnosed Celiac are low in Vitamin D, as well as Vitamin A, both fat based vitamins.   Thiamin Vitamin B 1 and Riboflavin B 2 are needed for eye health and optic nerve health.  Taking a B Complex vitamin supplement is beneficial.  Since the B vitamins are water soluble, any excess that the body doesn't need is excreted easily in urine.  The gluten free diet is low in essential B vitamins because gluten free processed foods that replace gluteny breads are not required to have vitamins and minerals added to them in order to replace vitamins and minerals lost in processing as is required with gluten containing products.   Other things that are helpful is to refrain from using highly perfumed products (hair care, body washes, deodorants, room fresheners, cleaning products, etc.).  These can dry out the eyes, too.   Staring at computer screens can be detrimental because you STARE and don't blink.  The tear ducts that keep the eyes lubricated are in the corners of the eyes.  Take breaks from staring at the computer screen.  Look out of the corners of your eyes to the right and blink several times, then look to the left and blink to help the tears spread over the whole eye.   My eyes have sustained permanent damage because of nutritional deficiencies.  My ophthalmologist and my doctors did not connect any of my health problems with nutritional deficiencies which occurred with undiagnosed Celiac Disease.  My optic nerve shuts down and I lose my vision if I spend too much time looking at computer screens, led lights, and TV.  My vision goes gray and dim.  It's much worse than "optic snow".  It can take  hours or days for my vision to return.  My ophthalmologist said my vision might not come back from that sometime.  My ophthalmologist said the flash rate, refresh rate, is registered by the optic nerve which gets over stimulated and shuts down.  The optic nerve uses lots of Thiamine.  Thiamine insufficiency will cause permanent optic nerve damage unless corrected promptly.  My thiamine insufficiency/deficiency was not corrected promptly and I have this permanent damage and light sensitivity.  I take Benfotiamine, a form of Thiamine that also is beneficial for healing the intestinal tract.  Riboflavin,  Pyridoxine B 6,  and Vitamin A are also needed for eye health.   Thiamine insufficiency can also cause anxiety.  Thiamine and magnesium will relieve muscle cramps. Talk to your nutritionist and doctor about supplementing with essential vitamins and minerals while your intestines are recovering.  Hope this helps!  
    • cristiana
      UPDATE I've been asked for an update by someone who sent a PM, but It's best to post health info publicly because this means fellow Mods can make sure I'm staying on the straight and narrow path with any advice I'm giving out! Alex...   Yes, my symptoms did slowly improve.  They started around October, from memory.  Approaching Christmas I remember the feeling as if there were feathers irritating my chest in my lower throat and in my lungs, and things like scented candles made things even worse.  I had a endoscopy and they found nothing wrong, I also had a chest X-Ray because of the cough which lasted more than six weeks and nothing showed. In the end I think the end it settled because I was doing the following: following a reflux/gastritis diet  (you can find lots of these diets on line, which focus on a low fat, low acidndiet, avoiding spices etc, avoiding alcohol and coffee etc) not eating three hours before I went to bed, which means going to bed with an empty stomach sleeping with a wedge pillow, which I still do, five years on... taking Gaviscon Advanced before bedtime, and after meals (not much, just a large teaspoon) using a blue Salbutamol inhaler, I think it was two puffs in the morning and two puffs at night. I felt a lot better after about three or four months.  I then only used the inhaler and Gaviscon when I had to, if I started to feel my chest was getting irritated again. I find keeping on top of reflux symptoms the way forward.  My gastroenterologist told me that the cough was to do with reflux/gasses in the gut coming up that can irritate the throat and airways and the fact I noticed improvement when using Gaviscon showed that that was what was causing it, because it provides a barrier that stops this happening. From the Gaviscon UK website: "It creates a protective barrier or raft over the Stomach contents (which is mostly acid, but also pepsin and bile)." https://www.gaviscon.co.uk/#:~:text=It creates a protective barrier,water and other neutral substances. This protective barrier stopped the contents of my stomach from coming up to irritate my throat, as I understand it, and allowed any irritation in my throat to settle. I do still take Gaviscon if I eat a late meal but not every day.  I hope this helps.  Do come back to me on this thread if I can help further. Cristiana    
×
×
  • Create New...