Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Looking For Fellow Athletes?


Spunky007

Recommended Posts

Spunky007 Apprentice

One of the most difficult things with overcoming for me is my passion for athletics. While it is a prime motivator for me to get healthy [i'm underweight, anemic, and can barely function at times through the flareups--makes it really hard to participate in sports for longer than a few good months until I'm out sick/injured again]...it can also be the biggest challenge when it comes to sticking to my diet.

I want so bad to be "normal." I love sport nutrition and sometimes just think if I just "eat healthy" everything will heal. Suffice it to say I have found repeatedly that it doesn't work to eat all the nutrients, calories in the world when my body can't digest it. Still, I feel like having such picky intolerances sets me a part and makes me the "sick girl" instead of the athlete.

In reality I know it's not this way--if I learn to eat what I need, I can build the body and life of the athlete I dream of being. And it would really help to hear stories of other athletes who have or are coming through these kinds of hurdles too--both for friends with similar goals, and so that I know that Celiac doesn't make me a living invalid, but that treating the condition can keep me from being just that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tinku Newbie
One of the most difficult things with overcoming for me is my passion for athletics. While it is a prime motivator for me to get healthy [i'm underweight, anemic, and can barely function at times through the flareups--makes it really hard to participate in sports for longer than a few good months until I'm out sick/injured again]...it can also be the biggest challenge when it comes to sticking to my diet.

I want so bad to be "normal." I love sport nutrition and sometimes just think if I just "eat healthy" everything will heal. Suffice it to say I have found repeatedly that it doesn't work to eat all the nutrients, calories in the world when my body can't digest it. Still, I feel like having such picky intolerances sets me a part and makes me the "sick girl" instead of the athlete.

In reality I know it's not this way--if I learn to eat what I need, I can build the body and life of the athlete I dream of being. And it would really help to hear stories of other athletes who have or are coming through these kinds of hurdles too--both for friends with similar goals, and so that I know that Celiac doesn't make me a living invalid, but that treating the condition can keep me from being just that.

If you are serious about trying anything please read Eat To Live by Dr Joel Fuhrman. The book literally changed my life.

I lost 15 pounds, shed my headaches, hypoglycaemia and gained great muscles at the gym.

It is hard to stick with so you have to decide how commited you are to being healthy.

It has vegan/meat eating menu plans and the author does not allow grains, just lots and lots of healthy vegetables. The reason you should read the book is to learn why that is healthiest.

See testimonials: Open Original Shared Link

It was actually ridding myself of all the chemicals in my diet that made me realize that I was so sensitive to gluten.

Now I'm a total gym rat and I love how strong I am getting despite my digestive problems.

Also try sublingual B12 for more energy.

Spunky007 Apprentice

Tinku,

Thank you for responding! I guess I rambled a bit and was confusing in my entry though...

The thing is, I know a lot about nutrition and how to eat healthy, especially for athletics--the part I have a hard time with is the fact taht standard healthy eating DOESN'T WORK if my gut can't take it. So I need to first focus on eating to heal and finding what I can tolerate before everything I can apply about sport nutrition even matters.

In any case, I'd still love to hear from any other athletes out there, roaring strong [or building to that] despite a touchy gut!

StephanieSD Apprentice

Celiacs disease didn't slow me down a bit once I got used to the changes I had to make. You have to change your view of what "healthy" eating is, because it's different for you now. I run, hike, backpack, kayak, just started tennis lessons, planning to climb Kilimanjaro in 2 months, ... I've become more active since I was diagnosed because I have more energy now that I know how to eat for me.

There are loads of gluten-free pastas and breads out there to substitute for the "regular" stuff that's recommended eating for athletes. And a lot of nutritional eating revolves around fruits, vegetables, and protein.

For pasta, I love the Ancient Harvest quinoa pastas. Quinoa is high in protein, and they're so tasty my husband eats them too.

IChaseFrisbees Explorer

It's been pretty tough for me. Normally I'm at practice 3 times a week and in the gym another 3 days, but if I get glutened then everybody has to count me out for at least 2 days, which can get pretty frustrating. The worst part is in team sports, when the rest of the guys are working really hard and I don't feel well enough to run at all. Generally my teammates are understanding, but I feel like I'm letting them down.

As far as lifting goes I'm completely off any protein supplements, because even the gluten-free ones mess me up pretty bad (I must have some other allergy...) but that hasn't kept me from increasing in strength, even if my size is dwindling because I can't get enough food in.

Whenever there's something I can eat in the dining hall I just dominate it, because I never know if I'll get something else later.

And finally I know exactly what you mean about wanting to be normal! Today I was whining to my friends about some...less than pleasant experiences I've been having and one of my buddies made a comment about my life being a shamble of what it once was, and it's so true; this condition is miserable. But hey, what can we do? Everybody's got something, so I just keep working as hard as I can to make up for the times when I'm not 100 percent.

*Daniella* Apprentice

Hello!

I understand your frustrations. Before I got diagnosed I played softball for my military team, ran half marathons, lifted 4 days a week and was thinking about doing a figure competition. This was with all my physical celiac issues (my symptoms aren't as severe as yours though). It was not without having to skip a few games and some runs. Let me tell you, doing long runs with celiac GI issues was NOT fun. Lots of pit stops along the way. I never deviated from my routes because I knew where every porta john was at. Softball games were always torture. I never could get through one without my tummy going crazy. Lucky for me I played outfield so nobody would have to suffer along with me. I didn't want this mystery illness take over my life so I was determined to be somewhat normal.

Anyway, since I got diagnosed I had to change my atheletic dietary needs. Getting the right balance of carbs, proteins and fats has been a struggle. As a result, I have lost 7 lbs in 2 months. Pounds I didn't want to lose. I am 5'2" and 105 lbs. At the beginning I lost a lot of energy and my fitness suffered as well. Now, my diet is getting on track and I'm back to running/lifting etc. It seems like this has been a hard struggle to get on track.

You can be an athlete. The fact is we/you have health issues, just know your limitations and accomadate for it.

GF avenger Apprentice

Ugh, I can so relate!

I was rowing 4-5 days a week, big bike rides 2-3 days, bike commuting 4-5 days, doing massage 4 days and 4 hours/day/week... And running when I felt like it.

Of course, this coupled with some crazy family stress may have set off the celiac.

The best thing I've found to do is to just go with my body - if I'm tired, headachey, feeling anemic, I don't work out.

Right now I'm exercising very lightly - fun hikes, walking around the neighborhood, XC skiing down the street in this crazy snowstorm has been about my speed. I really can't push it without feeling it for a couple days, but I'm glad to say that my energy overall is up, and I'm finally gaining some weight!

I am disappointed that it's taking so long to get back to uber-competitiveness, but I feel in my gut (ha!) that lots of rest, and lots of good food, is exactly what I need.

Hang in there, y'all. Maybe we could form a celiac intramural eating team? The Gut Busters?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
JAX555 Newbie
One of the most difficult things with overcoming for me is my passion for athletics. While it is a prime motivator for me to get healthy [i'm underweight, anemic, and can barely function at times through the flareups--makes it really hard to participate in sports for longer than a few good months until I'm out sick/injured again]...it can also be the biggest challenge when it comes to sticking to my diet.

I want so bad to be "normal." I love sport nutrition and sometimes just think if I just "eat healthy" everything will heal. Suffice it to say I have found repeatedly that it doesn't work to eat all the nutrients, calories in the world when my body can't digest it. Still, I feel like having such picky intolerances sets me a part and makes me the "sick girl" instead of the athlete.

In reality I know it's not this way--if I learn to eat what I need, I can build the body and life of the athlete I dream of being. And it would really help to hear stories of other athletes who have or are coming through these kinds of hurdles too--both for friends with similar goals, and so that I know that Celiac doesn't make me a living invalid, but that treating the condition can keep me from being just that.

Hey Girl,

Fellow athlete here...and I understand. Beating this Celiac thing is a mindset. You have to accept it, make the adjustments, and move on. Don't let this thing define you or restrict you. By dipping into the cookie jar, you might get some satisfaction out of rebelling against the diet restrictions - but in the end you lose. Just decide that it doesn't matter that you need to avoid a handful of foods, enjoy everything else that you CAN safely eat, and focus on living your life. Every war is won in the mind...

JAX

Montreal, Canada

bigbird16 Apprentice

Spunky,

Give yourself time. I've only been gluten free since mid-November, and it has made such a difference already in my performance in class, rehearsals, and shows. I'm a dancer. I've always been the fat one. No matter what I did, I couldn't lose weight, and in spite of any efforts, it crept up and up. (All of my group's dancers are of a healthy weight, none the too thin type; we all eat healthy, nosh well, dance a lot, and thoroughly enjoy our food.) Especially over the past three or four years, the weight, lethargy, joint pain, breathing difficulties, headaches, balance issues, clumsiness, tummy troubles, etc. increased. It all impacted the dancing. I dreaded even going for a hour class because I wanted to stay in bed and sleep like a dead woman and was already, before even donning the dance shoes, in so much pain. I was doing less and less and branded as lazy and not trying hard enough, even though I came to every class or rehearsal and pushed as hard as I could. Felt like a lot to me, but I kept falling behind.

I went gluten free and steadily I'm improving. I'm keeping up in classes better; dancing a straight 20 minute set doesn't knock me down; my joints only hurt in old injury spots; my turns are improving; I'm remembering sequences better and don't have to ask for repetition; I WANT to get up and dance; I'm more motivated and energetic. I can't wait to see how I'm doing in 6 months. There's a lot to catch up on. Fellow dancers have been great (and they've noticed the changes). Much of our downtime together revolves around food, yet not one has looked at me like an odd man out. Whatever it takes to keep healthy. The weight is slowly shedding; I've lost about an inch. Four more to go. (I'm not trying that hard lose right now; making sure I listen to my body is more important at this particular nanosecond.)

You will figure out what your body needs. You will gain weight. You will improve. You will be strong, healthy, and happy. Keep us updated on your progress!

Kat

munchkinette Collaborator

I agree, it does take some time. Sometimes it's hard for me to distinguish between overtraining and glutening because both make me feel run-down and both cause me to sleep poorly. I only figured out my diet 3 years ago, but now I've healed enough that I'm running a half marathon in a few weeks. (I ran 12 miles today.) One thing that helped was figuring out that it isn't just gluten that gets me. I also have to cut out dairy AND take my probiotics (so that I'm not completely wrecked from all the iron supplements I take).

It took a lot of trial and error, but I'm finally able to train hard again. It's really only been in the last 6 months that I've gotten everything under control. A big reason is that I've finally accepted that I can't go out to restaurants like I used to, because I get glutened. I cook a lot more, both because of my gluten intolerance and my training. I make an effort to go to bed on time, so I don't end up with a sleep deficit right before a big workout.

One thing I've learned is to work around issues. For example, my asthma flares up when I do sprinting, so I sort of fell into (slower) distance running. The other thing I've learned is that sometimes I need to skip a workout and take a nap or eat extra.

The one thing that's really tough is all the carbo-loading events in running. My running club has monthly breakfasts (gluten fest) and a lot of races host pasta parties the night before. Trying to translate nutrition articles in Runner's World is challenging... although last month they had a little blurb about an olympic steeplechase winner who is gluten intolerant.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,092
    • Most Online (within 30 mins)
      7,748

    Buy Diazepam Online Truste
    Newest Member
    Buy Diazepam Online Truste
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Kathleen JJ  I am based in the UK.  The following link is to a website for UK based consumers but even post-Brexit, we are still importing from and exporting to a vast array of mainland European-manufactured goods, so chances are some of the products mentioned in the link are from the same factory.  So what your son eats would likely be the same product that I eat when it comes to eating sweets. https://libereat.com/2021/07/gluten-free-sweets/#:~:text=Haribo Gold Bears are gluten,Starmix   But always check the ingredients lists first.  When doing this, what you need to avoid (usually printed in bold in the ingredient list) are: Wheat, barley and rye. These grains all naturally contain gluten. Coeliacs must also avoid products which state, "May contain traces of wheat, barley and rye" or products where the statement occurs: "Made in a factory which also handles wheat, barley and rye"    However, one other thing to think about:  oats.  In the UK, we do produce quite a few cakes and some candy which contains oats.    Oats do not naturally contain gluten, but as the crops are often grown alongside wheat, barley and rye, or processed in the same plants, cross-contamination can occur and they pick up gluten 'en route'.   The good news is that some food producers now grow oats away from these crops, and process them in oat dedicated plants, so you end up with a product called "pure oats" which are suitable for the majority of coeliacs (a minority react to avenin, the oat protein, in the same way they would to gluten, but I won't go into that here - just making you aware in case down the line you think it could be a problem).   So increasingly, in the UK at least, manufacturers are now printing oats in bold.   In candy production, you might find vegan chocolate which contains oat milk, hence I mention it here.  Unless such a candy bar stated that it was suitable for coeliacs,  your son would have to avoid it.   Incidentally, I think the idea of having a party after your holiday is a very wonderful, positive start to your son's gluten-free diet journey.  I was symptomatic by the time I was finally diagnosed with Coeliac Disease and was quite keen to start the diet straight away.  But just a few days after my endoscopy I was due to visit Normandy.  My consultant said to me, "Don't bother about taking up the diet until you get back".   I did try to start it in France but back then French catering establishments didn't seem to appreciate coeliac customers (something my gastroenterologist seemed to know something about!) so I was so glad he told me not to worry until I came home!
    • Kathleen JJ
      @cristiana Do you have any suggestions for the gummy bear type of candy? Because that is what is getting passed around. Someone told me "you will have to read all labels thoroughly from now on" but to be honest: I don't know what I'm looking for that should or should not be there? And is the notion "gluten free" trustable? And what about "may contain residual gluten"? Is that safe?
    • Kathleen JJ
      @trents The first thought indeed I had was 'thank god it's not cancer' and of course, there are many, many, many worse diagnoses to get. But this doesn't mean it doesn't come as a shock. I read a lot of the time 'the most common symptoms are...' and then all the things he doesn't have, but never do I find a list of less common symptoms (bar @Wheatwackeds examples - and also non of these are present). I get that severe pains can be a symptom, though the fact that they were omnipresent for 10 days (the exact time his viral values were up) and then 6 weeks later 1 episode also when the family was going through a stomach bug, and since then (nor ever before) none, this logically seems more related to a virus then a symptom of Coeliac, as I'd think this would have to be more present on a regular basis? He always has loved gluten-containing food and at that time was rather having less of it (due to the bug and feeling a little under the weather so eating more yoghurt and the likes then cookies) then more of it. It just doesn't sound all that logical. That being said, I comprehend AND accept that things can not always be logical.   I am trying to understand what you are saying about the tolerance - so as long as he eats gluten, he will have some tolerance to it, but when he stops, and say accidentally ingests something, he will react more as the tolerance is lower? It sounds so illogical (hmm, I see a pattern with myself: really looking for logic in a very illogical condition). And how do you interpret the values very 6 months as you maybe don't know there has been an accidental intake?  Do the values ever go down to zero or is it a question of getting them mainly lower and can they never go down to normal rates?   Normally results of his biopsy are coming in on monday, a little chance they come in today. I've been checking my mail every 10 seconds 🤦🏻‍♀️, this will not be a productive working day I fear 🙄. Then we know the values, but we only have an appointment with the specialized pediatrician and dietitian on December 6d (which in Belgium is a children's holiday comparable to Santa Clause). So we'll get the full "introduction" to the disorder and approach then.   I did talk to the pediatrician and gastrointestinal doctor who did the gastroscopy asking their advice about a plan I was having: to wait to start the diet after the holiday season, we will be abroad in a hotel and to start there in this very new world feels quite stressful for us, but even worse: it will start this journey in a lot of negativity. So our plan is to have a "yummy" party after we return from our trip, during Christmas holidays, inviting some of his friends and buying and making a vast array of gluten free goodies and having them sample and score it. This way it feels like a festive thing AND we can immediately find some things (hopefully) he genuinely like.   Both doctors agreed with this approach as this was truly an accidental find and hadn't we tested his blood 2 weeks ago chances were we'd only have found out in a year or 2 so those extra few weeks will not make the difference.   So now I'm gathering information, talking to people to know where there's good stuff...     But what keeps on being quite ununderstandable to me (I hope this will get explained on December 6th) is how it works. So it's auto-immune, meaning gluten trigger an immune response. Is this a black and white thing? Does 1 grain of wheat trigger the same response as a full bowl of spaghetti? And I mean this on a bowel and organs level, not on a symptoms level, as I gather (is this correct?) that not having any symptoms does not mean that his bowel doesn't get attacked?   I know it all could be worse, I truly do, but to be honest, this is the 4th "anvil falling on my head out of a clear blue sky" diagnosis that I got for one of my most loved people. First my mother was diagnosed with presenile dementia without anyone in the family having it. Then my unborn daughter turned out to have a chromosomal defect that made that she could only live inside of me and died when she was born, then my sister turned out to have (a tested non genetic 🤯) form of presenile dementia as well, with me being her only caretaker as my mother passed away a few years ago and she has no family of her own. And now this. And this is absolutely not only the least of this row but of course not even in the same ball park. But for my resilience and bearing capacity this just feels not little as it affects the life of my little boy...    
    • Wheatwacked
      Could be the Ozampic is masking your expected symptoms.  Like an analgesic masks pain.  Qzampic slows digestion to lower the rate glucose enters the intestine to slow its effect on glucose level.  It seems it might also slow down the gluten entry into the intestine, reducing its trigger level for the antibodies.  Ultimately the damage from gluten is the same, just not as fast so the pain is less.  Sourdough bread has less gluten.  Ozampic siows its entry.
    • Wheatwacked
      You can sell it better if the whole family does gluten free.  If he does have Celiac Diease, it is genetic so either you, your spouse, or both have a 40% chance of also having Celiac.  There are over 200 non classic symptoms also caused by celiac disease not often considered by doctors. Joint pain, muscle pain, muscle cramps, osteoporosis, and allergies for starters.  
×
×
  • Create New...