Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Symptoms


Ilan75

Recommended Posts

Ilan75 Newbie

Hi everyone,

I have some weird symptoms that puzzle every doctors i've seen,

so i was wondering if it could be Celiac :

For three years (i'm 23 y/o) i've had great difficulties sitting at

a chair that isn't reclined because of an uneasyness in the

small bowel region. The same happen when i stand straight.

When i'm laying on my back i feel the same thing and if i press

on some spots (on the left and middle) i feel an horrible pain that

goes away as soon as i stop pressing.

This occurs 24/24 7/7 but sometimes it hurts when i press even when

i'm not on my back.

When i walk or sit for a long time i have a mild diarreah or mucus in

stools (nothing when i stay in bed at home) and a continuous mucus

leak from my behind (but no incontinence at all).

My blood/fecal tests (a very comprehensive) showed nothing.

Anti-gliadin antibodies are <20

I've done a fibroscopy/colonoscopie last week that showed nothing visually

but i'm waiting for the biospy results (12 samples from all the GI lining)

My GI-logist told me the symptoms doesn't really match anything,

so i'll do a CT soon to check for tumors or pancreas/spleen problems.

I was wondering if anybody with celiac had that kind of symptoms ?

Could that be IBS ? (the first doctors i've seen told me that without

any tests and when i talked about celiac they all told me ridiculous things

like "you would have skin rashes all over your body" or "it would have

been detected in childhood" ...)

Thank you very much,

Ilan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

There are 200+ symptoms that can come with celiac and everyone is different. What they told you about celiac is absolutely false. There are people that haven't been diagnosed for years. Also some people with celiac also do not get symptoms which makes it harder to diagnose. Doctors commonly make a diagnosis of IBS when it is in fact celiac. Celiac is commonly missed. I would get tested for it if I were you along with what they are testing you for it can't hurt to be tested. Good luck :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,904
    • Most Online (within 30 mins)
      7,748

    AC21
    Newest Member
    AC21
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Well, I have the opposite problem. My LDL has been moderately high for years. I eat healthy and exercise regularly but can't seem to move that meter. I used to be on a statin (and my doctors want me to go back on one) and it brought both HDL and LDL down but the ratios never changed. I think a lot of that cholesterol stuff is just baked into the genes.
    • knitty kitty
      Wow, @plumbago, Curiouser, and curioser... Have you been fasting?  Apparently HDL levels increase after fasting... https://ajcn.nutrition.org/article/S0002-9165(23)31185-7/abstract   I must say it, try taking some Thiamine.  Thiamine helps regulate lipoproteins... Thiamine helped lower HDL in this study whether they had diabetes or not. https://pmc.ncbi.nlm.nih.gov/articles/PMC3921172/#:~:text=Serum thiamine and its derivatives,supplementation (p %3D 0.009).
    • trents
      Welcome to the forum, @Tyoung! I would assume for the time being that the mild gastritis and the celiac disease are connected and that once you get a good handle on gluten free eating and experience significant healing in the lining of your duodenum, you will also see improvement in the gastritis as well. Gastritis is more often than not an accompanying finding that is commented on in the post scope/biopsy notes when people are positive for celiac disease. 
    • Tyoung
      Hello! I was recently diagnosed with celiacs and mild chronic gastritis was noted on my EGD as well. My GI did not even bring up the gastritis and when I asked she brushed it off. I really want to heal my gut completely not just from celiacs but also the gastritis. Did anyone else have this at diagnosis? Were you able to treat it? Was it associated with celiacs or something entirely different? Thank you!!
    • plumbago
      The last time my vitamin D was very low, according to a lab test, was before I was diagnosed with celiac disease. I've been supplementing ever since, and now the numbers on the lab tests are within their normal ranges, oftentimes way above. I've also been supplementing with methylcobalamin (B12) since I was low before diagnosis in 2010, and now I'm fine. I'm surprised I ever requested a folate level, but I did, in 2019. Result 9.4 ng/mL (range >3.0).    
×
×
  • Create New...