Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Genetic Factor's & Celiac Scary!

TiredofTums

By TiredofTums
in Coping with Celiac Disease

Recommended Posts

TiredofTums Rookie
TiredofTums
Posted

Well family! First I got diagnosed and now my nephew got diagnosed so there are 2 official family members with Celiac Disease! Now my mom is getting tested for we think she too has it! Not to mention a few others in my family that I also think may have it because of certain symptoms!

My gastrologist told me that it can be genetic and other family members can also have this disease and advised that all get tested.

Every single child in the family and every single sibling! Wow! I just thought it was only me and everybody else in my family would have something else. But two of us now are positive results! Amazing!

First my mother told me she was already to far gone to get tested. Now after two of us got tested positive she is wanting the test! LOL! Funny how I tried telling my family to get tested and none would listen to me. Now that my nephew tested positive they are all going to get checked out.

Going to start my gluten free diet starting New Years Eve!

This should be interesting not having those Glutens anymore but am glad that I finally have a name of what has been going on with me!

But a bit sad! For now I wonder if my children are Celiac and my Grandchildren!That has me worried so badly. I just hope they listen to me too and get tested. I have a feeling two of them are positive Celiac disease. But hope and pray the rest are not!

Then I have a great Nephew that I think has Celiac also. He has ADHD and my niece suspects he is Bi-Polar! Could it be Celiac causing his behavior?

How many in here have more than one family member with Celiac? Just curious if I am the only family or if there are more just like my family!

Going to be tough but I plan on getting well! Ohh I can't wait to see myself feeling better! I hope I see that happen and the damage is not where it can't be reversed.

But at least my children and family have that chance that I may not get because they are younger.

Got some money for Christmas and getting ready to go gluten free shopping!

Linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taweavmo3 Enthusiast
taweavmo3
Posted

It is startling how strong the genetic factor is with Celiac. I ended up putting all of my children (and myself) on the diet after my daughter was diagnosed. We have all seen improvement. We also have loads of auto immune diseases in our family, autism, as well as family members with depression, ADD, and bi-polar disorder. I would love for everyone in my family to get tested....I think there would be several who came back positive.

lisa25 Rookie
lisa25
Posted

It is scary how genetic celiac is! I have celiac, I suspect my mom and grandpa do as well as a lot of other relative on my mom's side of the family. My mom doesn't want to get tested or change her diet. My fiance has celiac as well as his mom and two sisters, aunt, and they suspect his uncle and grandma do as well based on their symptoms. The only nice thing, is that we can all be gluten free together! It definitely helps a little bit to have other's support.

TiredofTums Rookie
TiredofTums
Posted
  • Author

My mom has been the stubborn one about getting tested after I told her what my doctor suggested. But when she found out about my nephew she called me today asking me about certain foods in her home! LOL! She knows I ordered the Gluten Shopping Guide! She actually tossed her wheat bread she has been eating over 40 years in the trash can! ROFL!

Two weeks ago she told me she was too far gone and nothing could help her feel better! Now she is ready to get tested!

Worse part! She gets up in the mornings and has Wheat Toast. Lunch time she has Wheat Sandwich, Dinnertime she ends up getting a Stouffors Lasagna~ And then tells me how bad she feels every day! I wonder why?

There is no doubt in my mind she too is Celiac! Her symptoms have been identicle to mine for years and she has been suffering alot longer than I!

I suspect a whole lot more in my family! Who knows we might all be on this site before long~ LOL! It's not funny but I have to laugh to keep from crying!

This stuff had me so scared that I actually thought I was dying! I have been one sick pup!

The vomiting for me has been terrible, not to mention the upset stomachs that felt like labor pains. Even caused a Hiatial Hernia that might have to be surgically repaired now. Seeing a surgeon the 14th of January with my regular doctor to decide my fate there! So I am not out of the woods just yet! My hernia is very large!

Well better get offline and get ready for Christmas! Merry Christmas to all!

Linda

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,273
    • Most Online (within 30 mins)
      7,748
    Alisa Kline
    Newest Member
    Alisa Kline
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Monte Carlo Fine Taste
      Intolerance after eating certified pasta gluten free could be caused by additives & or stabilaiser added in the composition of the pasta ingredients, even in the best brands please ceck well before buyng & eating

      By Monte Carlo Fine Taste · Posted

      Intolerance to certified gluten-free pasta may be due to additives or stabilizers included in the pasta's ingredients, even among the top brands. It's important to check thoroughly before purchasing and consuming; you can find the actual ingredients listed in the detailed component descriptions on Amazon.  
    • BoiseNic
      Skinesa

      By BoiseNic · Posted

      Thank you for this information and your post. I have tried just about every diet there is. I have been experimenting with diet for years and years. I am a vegan, so the diet you mentioned is not an option. Fasting always works for me. Probably because I am detoxing and not feeding candida or parasites. Meat eaters have a higher prevalence of parasites, just so you know. I have a feeling that every time I break out on probiotics it's due to some kind of war with my gut biome. I definitely need to find a system of flushing out my gut so that the probiotics don't have to fight as hard to populate.
    • bharal
      Sommersby cider, alcohol generally

      By bharal · Posted

      I'm unsure if sommersby cider is likely to have cross contamination issues, given its made by a beer company. Does anyone have any thoughts on this? I'm assuming wine generally is ok, as it's bottled in a vineyard, but what about other (ostensiblygluten free) liquors?  
    • knitty kitty
      Skinesa

      By knitty kitty · Posted

      @BoiseNic Have you tried the Autoimmune Protocol Diet?  This Paleo diet cuts out most everything except meat, veggies and some fruits.  By cutting out all the carbohydrates, especially processed ones, the carbohydrate loving bacteria and fungi like Candida get starved out and die off.  After that, taking probiotics to help repopulate the gut is beneficial.  The new strains of bacteria don't have to fight the established unhealthy yeasts and bad bacteria which causes a rise in histamine levels which can make one feel sick.   Certain vitamins help keep bad bacteria and fungi at bay.  Thiamine is one.  Antibiotics can deplete Thiamine stores.  The Gluten free diet can be low in Thiamine and the other vitamins and minerals needed for healthy skin and digestive tract.  Vitamin C, Vitamin D, zinc, and Niacin B 3 are important to skin health.  Niacin is especially helpful in Dermatitis Herpetiformis.  I like the kind that flushes (Nicotinic Acid - not the same as nicotine in cigarettes).  The flushing gets less and less the longer it's taken, but Niacinamide which doesn't cause flushing can be taken instead.     Here's an interesting article.  Compare the bacteria mentioned in the article with your Skinesa and then with the Visbiome probiotics.   The Role of Probiotics in Skin Health and Related Gut–Skin Axis: A Review https://pmc.ncbi.nlm.nih.gov/articles/PMC10385652/ Visbiome https://www.visbiome.com/collections/all/products/visbiome-capsules  
    • Wheatwacked
      gluten-free and continued upper left side pain after drinking wine

      By Wheatwacked · Posted

      The short answer is if it hurts, don't do it. Yogurt may help sooth your gut and repopulate it with benificial bacteria.  I prefer whole milk yogurt because it is not processed and the no fat yogurt is processed dehydrated milk powder with guar gums and water added to make it mouth feel like fat.  Especially in early healing there may be other foods you cannot tolerate for a while.
×
×
  • Create New...