Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Totally Crazy?


Adelle

Recommended Posts

Adelle Enthusiast

Ok so years ago I had a sleep study done, and the doc called me... "wonky". Yup, I have really irregular sleep cycles (I didn't even hit every stage of sleep and almost none of the time did I reach them in any kind of order...). They sent me on my way without any idea what to do except deal with it (yeah, doctors rule... :angry: ).

FFWD 3 years. I've been gluten-free for over 2 years and things are good. I don't sleep well, but we've adjusted to it. About 2 months ago a new local wine shop opened in our teeny town and I've discovered a new love for wine. I took to drinking 1-2 (4oz) glasses of wine just before bed and I slept like a DREAM (I actually did dream regularly for the first time in years!). I slept through the night (something I haven't done my whole life) and felt probably 10X more rested in the morning and I don't even need to nap or rest every single afternoon. So as a little "challenge" this last 4 days I haven't had a drop. Oh man, I'm exhausted. Back to my old sleep habits. So big is this difference that DH has insisted that I take up wine immediately. And that I never do this again. <_<

Am I totally insane? Am I the only one? I kind of think that as long as I'm not overdoing it and getting plastered every night, what's the harm? Oh man, I need a nap! Gah!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

Many with celiac disease have problems with their adrenal function. From what I understand, one of the things that it does is send out the hormones that tell you when to sleep and when to wake up. I have a family member that has adrenal fatigue. Was diagnosed through a wonen's health center. From what I understand the doctors often don't test enough. Hers dismissed the clear results indicating a problem so she went to the women's center where they helped her. Took special supplements and is now having more normal sleep patterns.

ShayFL Enthusiast

Ideally you would "heal" your body instead of just giving it a drug. But believe me, I understand the temptation to just drink. ALL of the studies suggest women shouldnt drink more than 1 little glass of alcohol a day. So if you are going to imbibe, I would keep it to 1 (one) 4 oz glass in the evening and not 2.

Find a good Holistic doctor who can help you heal your adrenals and fix your circadian cycle. Did you ever try Melatonin before bed? GABA? These can help regulate your body and get it back on track. Then you ween off of them.

Adelle Enthusiast

the problem is I have tried all of the sleep aids on the market (natural and perscription) and they just make me feel sick. I also suffer from extreme sleep paralysis and they just make that problem happen 5+ times/night instead of once. So those are out. I've also had my adrenals and thyroid extensively tested and I'm all good there. The problem is really that for some reason my body doesn't sleep correctly (I've always been a "bad sleeper" from the day I was born).

I can't afford a holistic doctor, and I'm kind of done with doctors anyway. I'm just so tired of any medical professional, I'm not going to see them anymore.

I just feel like doctors can't help me, so I'm trying to figure out how to help myself you know?

nasalady Contributor
Ok so years ago I had a sleep study done, and the doc called me... "wonky". Yup, I have really irregular sleep cycles (I didn't even hit every stage of sleep and almost none of the time did I reach them in any kind of order...). They sent me on my way without any idea what to do except deal with it (yeah, doctors rule... :angry: ).

FFWD 3 years. I've been gluten-free for over 2 years and things are good. I don't sleep well, but we've adjusted to it. About 2 months ago a new local wine shop opened in our teeny town and I've discovered a new love for wine. I took to drinking 1-2 (4oz) glasses of wine just before bed and I slept like a DREAM (I actually did dream regularly for the first time in years!). I slept through the night (something I haven't done my whole life) and felt probably 10X more rested in the morning and I don't even need to nap or rest every single afternoon. So as a little "challenge" this last 4 days I haven't had a drop. Oh man, I'm exhausted. Back to my old sleep habits. So big is this difference that DH has insisted that I take up wine immediately. And that I never do this again. <_<

Am I totally insane? Am I the only one? I kind of think that as long as I'm not overdoing it and getting plastered every night, what's the harm? Oh man, I need a nap! Gah!

NO! You are NOT insane, nor the only one! I too have developed a habit of drinking a glass or two of wine in the evening to help me sleep better. My sleep problems aren't as extreme as yours, but I don't sleep deeply and I wake up exhausted every morning. This is supposed to be "normal" for people with fibromyalgia though. :(

The wine does help me sleep more deeply, and I don't wake up as frequently during the night which definitely helps my daytime energy levels.

The problem with wine (for me) is that I have autoimmune hepatitis; my immune system has damaged my liver. So wine every night is not a good answer for me. My hepatologist said I could have wine twice a week, but he would definitely frown on imbibing vino every night. DH is not happy with it either; he's worried about my liver.

I've also read the studies that say that women shouldn't drink more than one small glass of wine per day, if that much. But, of course, because of the liver issues, I have to be careful about taking medications to help me sleep.

I don't have any answers for you, but wanted to reassure you that you are not alone!

Take care,

JoAnn

Adelle Enthusiast

I'm glad I'm not alone! I usually stick to 1 small glass unless it's homemade gluhwein which is cut with 1/2 water (and some of the alcohol cooks off) I took a hydrometer reading and it's about 8% alcohol so I'm getting the same amount of booze, but with more flavor and bulk in a warm mug. Mmmm.... Anyway. I do hope you get your health issues worked out. Stay in good health!

one more mile Contributor

I think one big problem with people that have trouble with sleep is they try to fit on someone else time table. After years of trying to get sleep I finely figured that I do not sleep before 12:30 am and I do not wake up till 9 am. I have had to change my job and life around to make it work but there is no way I can attempt to sleep "normal hours." I have also finely figured out that I do not drive a car before 8 am, unless it is to get away from a fire. I had to many times where I drove some place and do not remember it when I drove before 8 am.

I struggled with sleep for about 12 years before I found what works for me. Please keep trying. You will find it sooner or later.

If there is a history of drinking problems in your family the Wine before sleep may not be a good idea. Needing a drink to sleep is an early stage of the diagnosis of alcoholism. I do not know a thing about normal drinkers though so good for you for asking on this board if it is a good idea or not.

One more mile


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,830
    • Most Online (within 30 mins)
      7,748

    Mary Katherine
    Newest Member
    Mary Katherine
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...