Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Allergy?

Bridy

Recommended Posts

Bridy Apprentice
Bridy
Posted

I have a question about my daughter. I have posted here a few times before but this is a little history.

She is 2.5 years old and has always had constipation/bowel issues from birth, things got worse with food introduction.

We have had her tested for Hirschsprung's Disease/negative.

She had a blood test for Celiacs/negative

But she had a blood test for allergies and it came back that she was allergic to gluten. Wheat was high but it was still negative, barley was negative, buckwheat negative.

How is this possible?

I don't see how she could be allergic to gluten and not wheat. Can anyone make sense of this?

We are seeing a different specialist in March for a second opinion on the allergy tests.

But I do have concerns about her. We were told she was allergic to dairy, so we took her off dairy. Saw some changes in her BM's for a few months but now she is back to having issues again.

Her ribs stick out, she does have a extended tummy and she is small for her age, 23lbs

I am just very concerned about her. She is extremly moody as well. Its not funny, but we joke around that she is Bipolar because she can be one way one minute and telling us "I happy now", I happy now" and then start crying a moment later. She is okay when we are out and she is busy, but she does have temper tantrums so easy. Her moods are very hard to manage.

Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Poor baby!

I don't see how she could be allergic to gluten and not wheat. Can anyone make sense of this?

An allergy is an antibody response (IgE). Your body makes antibodies to pieces of proteins. If your daughter has antibodies that recognize a piece of wheat that has a different shape when it's cooked, a test that uses raw protein will register as negative. The gluten peptide may 1) not have a different shape when cooked, or 2) be recognized by an antibody that is sequence specific, not shape specific.

Bridy Apprentice
Bridy
Posted
  • Author
Poor baby!

An allergy is an antibody response (IgE). Your body makes antibodies to pieces of proteins. If your daughter has antibodies that recognize a piece of wheat that has a different shape when it's cooked, a test that uses raw protein will register as negative. The gluten peptide may 1) not have a different shape when cooked, or 2) be recognized by an antibody that is sequence specific, not shape specific.

So do you think that she is allergive to wheat as well but the test just couldn't detect it?

We have to wait till march to see the other specialist, it will be a long few months.

Jestgar Rising Star
Jestgar
Posted

Well, if she's allergic to gluten she's allergic to at least one part of wheat.

The tests are not very good. The best way to test her is to take her off wheat and gluten (wheat and also barley and rye) and see if she feels better. Most people stop eating oats as well, at least initially.

Bridy Apprentice
Bridy
Posted
  • Author

Thank you for being online!

She LOVES oatmeal, its her favorite food.

So should I just take out wheat, barley, and rye and see how she does. if she isn't okay in a few months then take out oats too?

Jestgar Rising Star
Jestgar
Posted

At least find gluten free oatmeal. I can't offer any suggestions, because I've never been an oatmeal fan, but maybe someone else will chime in.

You could also try quinoa as a breakfast food, or cream of rice.

I went my entire life not realizing that your tummy wasn't supposed to hurt after eating. I only discovered it when I stopped eating gluten. Maybe your baby loves oatmeal because it's the only food that doesn't make her uncomfortable. ( I say this to suggest that she might be open to new foods, if they don't make her tummy hurt.)

Bridy Apprentice
Bridy
Posted
  • Author

thank you.

I make Quinoa but she wont touch it. I am going to try and make it with other flavours and maybe mix it into things.

But I will buy cream of rice as well and see how she likes it.

is gluten free oatmal labeld that way?

There is a gluten free store in my City, I should probably call them to see what they have for oatmeal.

Thank you for all the suggestions, I really appreciate it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Gluten free oatmeal should be labeled as such.

I hope you find what's making things so difficult for her. Feel free to ask questions here. There are a lot of people with multiple food intolerances, and chances are you'll find someone that can help you.

I'm kinda hoping that taking away gluten will make everything better for her :)

Jess

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,101
    • Most Online (within 30 mins)
      7,748
    Danielle Krucker
    Newest Member
    Danielle Krucker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Being a burden to family/friends

      By trents · Posted

      Matthew 18:21-35
    • CatS
      Being a burden to family/friends

      By CatS · Posted

      I understand your frustration about socializing while having celiac disease. I also have allergies to nuts, dairy, all forms of gluten including oats, strawberries and MSG. I get anxiety while grocery shopping and really take my time to read all labels. I always carry a magnifying glass with me wherever I go to read labels. Many products are labelled Gluten Free but contain Oats, and apparently this is becoming more common. I almost bought some gluten free flour but read that it contained oats. A certain percentage of Celiacs have this complication. I can’t help feeling offended and excluded when others act like I am being “high maintenance”. I am becoming better at being an advocate for myself.  I have had diverticulitis 3 times and each time hospitalized-once, the attending nurse didn’t know what celiac means-she had to research...  If others around me make comments I try to enlighten them, those who don’t get it are not my friends anymore. Be very careful about cross-contamination. I was sick recently for 10 days after a meal was contaminated while I was on holiday. If servers say they have gluten free buns or bread, ask if they use a toaster specifically reserved for gluten-free, or don’t chance it. On a positive note, I didn’t find out I had Celiac Disease until I was 60. Eating a gluten free diet means no more terrible headaches, hives, rashes, intestinal bloating and irregularity, Gastro Intestinal Reflux….when I follow a strict diet and mostly always eat at home, I feel great! I also weeded out “friends” who weren’t worth being around.
    • Kwinkle
      Update on Gaviscon

      By Kwinkle · Posted

      Thank you, Trents- are there any safe alternatives?
    • Scott Adams
      Delayed reaction

      By Scott Adams · Posted

      I agree with @trents, it's not typical for gluten exposure to cause symptoms as delayed as a week or two after ingestion. In most cases, reactions to gluten occur within hours to a few days, depending on individual sensitivity and how much gluten was consumed. The delayed symptoms you describe—stomach cramping in the mornings and flaky stool—might suggest that something else is contributing to your discomfort. Cross-contamination is a common challenge, especially when dining out, and it's great that you're doing your best to stay gluten-free. However, the inconsistency of your symptoms and the long delay between exposure and reaction could warrant further investigation. It's possible that another gastrointestinal condition, such as IBS, a food intolerance, or a reaction to something else in your diet, might be contributing to your symptoms. You might consider keeping a detailed food and symptom diary to identify potential patterns or triggers. Additionally, consulting your gastroenterologist could provide clarity. They may suggest testing to rule out other issues, such as small intestinal bacterial overgrowth (SIBO), microscopic colitis, or other sensitivities. If you suspect cross-contamination is a significant issue, you could also ask for follow-up bloodwork (e.g., tTG-IgA) to check if your antibodies are elevated, which might indicate ongoing gluten exposure.
    • Scott Adams
      Polly-O all cheese products are gluten free?

      By Scott Adams · Posted

      Good to know, here is their website: https://polly-o.com/
×
×
  • Create New...