Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had The Biopsy

angelschick

Recommended Posts

angelschick Apprentice
angelschick
Posted

Doc had a cancellation and so I didn't have to wait till Feb - yay!! I was scared but the Doc was good at reassuring me and I don't remember a thing about the procedure. Now my question - is it normal for them to not see anything if you have celiac? The waiting for pathology is gonna drive me nuts :-( He said if it's negative, I will know by Wed or so if it's positive they send it to U of M pathology for a second opinion. Not sure why they do that only if it's positive. He also said if it's not celiac he has a plan for me and for me to come back and see him. I guess it's just a waiting game now.....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sbj Rookie
sbj
Posted
is it normal for them to not see anything if you have celiac?

Depends, I suppose.

For me, my gastro thought everything looked fine. He took only a single biopsy. Pathology came back a week later with results and my gastro was surprised that they had seen indicators of celiac sprue. I then took the blood test for confirmation, and later had genetic test for further confirmation.

While I hope you get some answers and some relief I sure hope you don't have celiac disease! Good luck.

angelschick Apprentice
angelschick
Posted
  • Author

While I hope you get some answers and some relief I sure hope you don't have celiac disease! Good luck.

Lisa Mentor
Lisa
Posted

Damage can be seen, but I 'm sure not always. My GI explained to my husband my blunted villi by using his fingers to demonstrate. Scalloping can also be visible.

Some doctors recommend an endoscopy exam and colonoscopy to rule out critical issues, then work backwards.

Good luck with your answers.

nora-n Rookie
nora-n
Posted

Inadvanced celiac, when the villi are all gone, they can see that and the overall looks of the intestines are different.

If there is only some villi damage, but the villi are still there, they often cannot see anything.

There are some images somewhere online.

nora

Lisa Mentor
Lisa
Posted
In Advanced celiac, when the villi are all gone, they can see that and the overall looks of the intestines are different.

If there is only some villi damage, but the villi are still there, they often cannot see anything.

There are some images somewhere online.

nora

My pathology report indicated Mild Villous blunting, as well as visibly indicated. Unfortunately, I don't have the time for research links, but they're out there somewhere.

I don't believe that villous atrophy is considered late stage Celiac Disease, as is sometimes posted here. Google Marsh Scale-Celiac and various stages are indicated.

Gotta run, sorry. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,076
    • Most Online (within 30 mins)
      7,748
    pauline gallie
    Newest Member
    pauline gallie
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Celiac or Addison's complications? Can someone share their experience?

      By KRipple · Posted

      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Celiac pain relief

      By Jmartes71 · Posted

      Ginger is my best friend, it helps alot with tummy issues..
    • aattana
      Positive gliadin (deamidated) IgG, normal everything else?

      By aattana · Posted

      Hi Phosphone, did you ever figure out what elevated your DGP?  I am in the same boat. 
    • trents
      Celiac or Addison's complications? Can someone share their experience?

      By trents · Posted

      Scott makes a good point about the prednisone. It has a general suppressing effect on the immune system. Don't misunderstand me. In view of your husband's several autoimmune afflictions, it would seem to be an appropriate medication therapy but it will likely invalidate endoscopy/biopsy test results for celiac disease.
×
×
  • Create New...