Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sudden Spells Of Extreme Sleepiness When Glutened


raisin

Recommended Posts

Porcelina Contributor

When I'm glutinized, I get extreme fatigue and weakness. Feels like the flu and will last 24 hours. I've had customers tell me I look like crap during these events and no amount of coffee can keep me awake. I'm like a zombie.

  • 5 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KellyZar Newbie

I found this post after waking up from an accidental glutening.  I have Celiacs disease and bought a package of Atkins bars that I thought were gluten-free.  I ate a few things at home this morning but I am sure nothing else contained gluten.  I was about to get going with my day when a wave of exhaustion came over me.  I could not keep my eyes open.  Luckily it is Saturday and while I had a ton to do, I did not have to work at a set time or anything like that.  After about a half hour, I forced myself to get up and I looked at the wrapper to confirm - grrrr.  One the website I bought it from, it was listed as gluten-free but on the wrapper in bold letters "CONTAINS WHEAT"  I don't have any other condition and I just had blood tests confirming that everything else is fine and I am not deficient in any vitamin or hypoglycemic, etc.  I am quite sure this is a common Celiac reaction to getting glutened.  

  • 11 months later...
Jenna1028 Apprentice

I'm tired all the time. I only discovered that I have celiac a few months ago, and I feel like all I do is sleep. And if I'm not asleep, then I wish I was asleep. Decorating for Christmas this year has been exhausting. 

My friend has an autoimmune disease, and we were talking about how tired we always are. But we both noticed that it seems like we're more tired when our body is in recovery mode, and not so much while in symptomatic mode. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,138
    • Most Online (within 30 mins)
      7,748

    kfkynett
    Newest Member
    kfkynett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sh00148
      Thank you. That’s all really helpful. I think it must have been something she ate as the poo colour has settled now.    Starting to see improvements in her tummy, slowly but surely!
    • Yaya
      I take all vitamins and supplements.  My cardiologist has me taking B12 5,000 once per weeks.  He gives me complete blood work every 6 months.  He's still building my D levels which is now in 60s.  He wants them in low 80s.  I take 5,000 IU's daily.  With this dosage I've gone from 42 to 65 over a period of about 5 years.  It builds very slowly.   As far as iron, I take a double dose of gentle iron with C on an empty stomach on alternate nights.  Yes, iron is a component for many of us with RLS, but mostly "brain iron" that in some people may require iron transfusions.   
    • trents
      The positive DGP-IGA indicates the possibility of celiac disease. It is typical for someone who does have celiac disease to have some antibody tests be negative and others positive. This is not unique to celiac disease diagnosis. It is why doctors typically run many tests when seeking diagnosis of a suspected disease.  The DGP-IgA test is considered to have high sensitivity and specificity. In general, the DGP-IgA test has been reported to have a sensitivity ranging from 75% to 95% and a specificity ranging from 90% to 100%. Overall, the DGP tests, including DGP-IgA and DGP-IgG, exhibit a sensitivity of approximately 85-95% and a specificity of about 95-98%. The above paragraph is taken from this article which gives an overview of the various tests that can be run for celiac disease and their reliability: What symptoms are you experiencing?
    • trents
      Check Costco's store brand.
    • trents
      Yes, get serum antibody testing done for celiac disease. You could also have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both.
×
×
  • Create New...