Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Add/adhd Medication & Gluten-free Diet


lucy-Q

Recommended Posts

lucy-Q Newbie

I'm new to this whole "gluten-free" living situation. I'm currently waiting to hear back on my blood test results to find out what my IgA & IgG levels are later this week. After I find out my test results and find out if I'm to do any further testing, I'm going on a gluten-free diet.

I was diagnosed in my late 20's with ADD. Finding out that diagnosis was a huge helpful revelation in my life as it explained a lot of my behaviors and thought patterns. It also allowed me to seek help for my "all over the place" thinking and start to get my life more organized. I have found ADD meds to be very helpful for me... though I had to go through a few that weren't so helpful to get to a good one.

As I have been reading up on gluten intolerance, several sources have talked about a relationship to ADD (though most of them talk about children with ADD). I'm curious to know several things:

1) Do lots of people with Celiac have ADD?

2) Do people (adults!) with ADD who go gluten-free experience relief from their ADD symptoms/behaviors?

3) Has anyone with ADD who has gone gluten-free been able to reduce their use of ADD meds?

If anyone who has ADD (or "brain fog") wants to chime in with their experience in going gluten-free... I would love to hear your experiences and input. I'm absolutely facinated to hear more about how these two conditions are related or interact....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AliB Enthusiast

Although I have not had a major problem with 'brain-fog', my husband did. When I went gluten-free after my digestion collapsed last Jan, he (not wanting to be left out! :D ) decided to do it with me.

After a few weeks it was quite clear to me that the gluten-free diet was having a quite radical effect not only on his brain-fog but also his Fibromyalgia. He didn't think it was making much difference and had a couple episodes where he had gluten only to wake up three days later in a lot of pain and in the blackest pit of brain-fog and depression all over again.

He didn't think it was such a bad idea after that! It has been like having a different husband. He is happier, he plays with, and enjoys the company of our grandsons rather than being shut away in his room in pain and in fear of being touched. He now remembers the right routes to take when we are out in the car (which saves me from having to give him directions all the time - and means less arguments and frustration for me!).

He doesn't generally have to have the days in bed like he did - usually at least 3 or 4 days every fortnight, and he is able to join in with us all and participate in our outings as a family.

I didn't think that he is now as reactive to gluten as he was, but about 4 weeks ago he went down with a bad chesty cough, verging on bronchitis. He just can't seem to shake it. He is very headachey, has little energy or motivation, is still coughing a bit and just can't seem to get out of it. Interestingly he has had some gluten over the last 2 weeks or so.

Not to say that the gluten caused it, but I am now wondering whether the gluten has knocked his immune system off course and is distracting it from getting him better!

Although I have been around him all the time I did not go down with it at all, which is amazing as I always caught everything going, but I am sure that being not only gluten-free but, unlike my husband, dairy-free and on the SCD along with the probiotic backup may well have given my immune system enough boost to fight it off.

I really wish I could get our son and daughter to do gluten-free and SCD. Our daughter who is 30 suffers with depression verging on Bipolar only held at bay by St Johns Wort, and our son was very bad with ADD, brain-fog and tics, all of which have improved somewhat as he has grown (28) but I am sure could be very much improved on on the diet if my husbands' experience is anything to go by.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,338
    • Most Online (within 30 mins)
      7,748

    jojocle
    Newest Member
    jojocle
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I'd like to second supplementation.  Around the time of my diagnosis and for a good while afterwards I had twitching muscles, including my face, as well as pins and needles and numbness.  We do have tremors in my family anyway, regardless of being coeliac, so I can't really comment on that. If you can find out where you are with your iron levels and B12, that's a good start.  I am not sure where you are posting from but in the UK normal lab results for B12 are quite a bit lower than in other countries, so you might find if you are borderline you will get some improvement by continuing to supplement that.   I found taking magnesium also incredibly helpful against facial twitches. I don't know about you, but all these symptoms increased my anxiety levels as I was worried about them.  That only served to make the symptoms worse.  So it might be worth looking into addressing any underlying anxiety issues.   I still notice that if I'm nervous, or worried, my blood sugar levels are down, some of the symptoms comes back temporarily.  It's like there is still a bit of a weakness there.
    • knitty kitty
      Hello, @Itsabit, Your journey sounds very similar to mine.   I'm very concerned about your diet since you say you don't eat a lot of meat, which is the main source of B vitamins.  Nutritional deficiencies go along with Celiac Disease.  Blood tests are not accurate measurements of deficiency states.  The body robs stored vitamins from organs to circulate in the bloodstream to supply the brain and heart.  You can have deficiency symptoms before blood levels change. I have a hypersensitivity to sulfites, so much so that I had to switch my toothpaste to one that doesn't contain Sodium Lauryl Sulfate.  SLS can cause oral irritation as a side effect, too.   My mouth would burn and I avoided certain foods.  Dapsone contains sulfites, as do antibiotics.  Treatment with sulfites can precipitate a Thiamine deficiency disorder because sulfites cut thiamine in two making it useless. https://pubmed.ncbi.nlm.nih.gov/35506963/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10506142/ I have an allergy to nickel, also.  Zinc helps keep other metals in balance in the body.  Zinc is also terribly important to skin health and oral health. https://pubmed.ncbi.nlm.nih.gov/8445075/ https://pmc.ncbi.nlm.nih.gov/articles/PMC11274920/ https://pubmed.ncbi.nlm.nih.gov/1977254/ Thiamine (Vitamin B 1) deficiency disorder symptoms and altered thiamine metabolism can occur after radiation or chemo.   Thiamine and Niacin B 3 are important in nerve conduction.  When I was very malnourished, I had paresthesia that made me feel itchy all over, and made my dermatitis herpetiformis extremely unbearable.  The form of Niacin that causes flushing, Nicotinic Acid (not the same as nicotine in cigarettes) is beneficial because the flushing helps open the small capillaries in the skin which allows the antibodies to be cleared and disposed.  Pellagra can occur in Celiac Disease.   I had it, and my doctor didn't properly diagnose it, either.   I had a rash around my neck, Casal's Necklace, along with a blistering rash on my arms and any skin exposed to the sun.   https://pubmed.ncbi.nlm.nih.gov/8445075/ https://cgp.iiarjournals.org/content/10/4/169 https://pmc.ncbi.nlm.nih.gov/articles/PMC11722086/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6780714/ https://pmc.ncbi.nlm.nih.gov/articles/PMC10229844/ https://pubmed.ncbi.nlm.nih.gov/1977254/ You should be checked for more than just B12 deficiency.  The eight B vitamins work together, and we need more of them when we're trying to heal.  They are water soluble, so the body can easily excrete them if not needed. Have you had your Vitamin D level checked?  Vitamin D regulates the immune system and lowers inflammation.   I hope you can find some benefit from my experiences.  Keep us posted on your progress.   P.S.  When trying not to itch the dermatitis herpetiformis, if you press gently on a large area (press with your whole hand) above the itchy spot, the itchiness goes away.  The bigger area of stimulation drowns out that one jangling dermatitis herpetiformis itchy nerve in the brain. For skin care products, I use tallow balm which is absorbed better into the skin than petroleum products or plant products.  Tallow balm (Vintage Traditions is my favorite) helps my Dermatitis Herpetiformis spots look and feel better quickly.  Tallow soap and olive oil soap is beneficial as well.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis you mentioned in another post. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • knitty kitty
      Hello, @Jack Common, I know how frustrating health mysteries can be. Perhaps you're having a reaction to the medication you were given for the giardiasis. The giardiasis infection would account for the high Igg results.  Have you been reinfected? The site I've linked below has lots of information about the long term consequences of being treated with a medication frequently prescribed for giardiasis infection.   https://hormonesmatter.com/metronidazole-toxicity-doctor-denial/ https://hormonesmatter.com/?s=metronidazole https://pmc.ncbi.nlm.nih.gov/articles/PMC3870550/ Please let us know if your symptoms may be due to this reaction to the prescription for giardiasis. Best wishes.
    • Itsabit
×
×
  • Create New...