Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different Reactions From Different Gluten Sources...


wschmucks

Recommended Posts

wschmucks Contributor

Hi Everyone.

I was just wondering if anyone knows if there is a higher gluten content in wheat, rye or barley? Meaning: will some people react worse to being glutened by barley as opposed to wheat? The last few times I have been glutened it was from barley flavoring and my symptoms weren't very strong. I was wondering if my body is just changing and adjusting (and this is my new reaction) or if there are higher/ lower levels of gluten in the different grains?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Amyleigh0007 Enthusiast

I'm not sure if there are higher or lower gluten levels in foods but I know that I react much strogner to wheat. When I was eating gluten and I would eat 100% whole wheat pasta or bread I would get ill within 30 minutes and stay ill for a day. I didn't seem to react so quickly or so badly to foods with rye or barley. That's why I thought I might have a wheat allergy like my son but according to the scratch test I do not.

ravenwoodglass Mentor

I also react more strongly with wheat but I do react to barley. Barley will also give me metallic taste in my mouth which wheat doesn't. Oats will get me too not as bad as wheat but worse than barley. I haven't tryed anything with rye.

ang1e0251 Contributor

Not only do I react differently, I may have different symptoms that juggle themselves around! I usually always have D but the neurological stuff is a grab bag; mind fog, tremors, stupid brain, mood swings, unjustified anger, clumsiness, joint pain. Any or some of these might occur along with unending hunger and apathy.

Yuck, no wonder I avoid gluten!!

maile Newbie

I seem to have differing reactions to differing levels of processing:

straight wheat flour or non distilled vinegar - D, cramping etc and almost right away, mental ones within a few hours or the next day....anxiety, crabbiness, feeling down and unable to sleep very well (back b4 I knew to avoid gluten it would have included occular migraines as well), the more processed the food the longer my reaction time

"filtered" exposure - thru wheat based vodkas etc (yeah, I know they're supposed to be safe but <_< ) nausea and general unwell feeling, this passes more quickly than the other

wschmucks Contributor

Thanks for responding guys! I thought i was going crazy. I also had the metalic taste in my mouth! My Dr actually had me do a test for heavy metals in my blood when i mentioned it. All of your symptoms really hit home, its nice to know that when i get craby, anxious etc. not to be too hard on myself-- Im not a bad person, just a Celiac who got glutened.

Thanks

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,376
    • Most Online (within 30 mins)
      7,748

    Joanne Walko
    Newest Member
    Joanne Walko
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well. 
    • Scott Adams
      Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Connie Smitj
      I was diagnosed 5 years ago. I also have celiac rash which is no longer an issue thanks to maintenance dose of dapsone.  I ate spinach with lemon juice  and had terrible pain after. My mother whom I suspect had undiagnosed celiac disease developed a duodenal ulcer that turned into a sarcoma late in life . My celiac clinic suggests seeing my family doctor.
    • trents
      Welcome to the forum, @Tyoung! Apparently, folic acid in supplements is readily absorbed into the bloodstream as opposed to getting folate from natural food sources. So, high levels in the blood can happen quickly from supplementation: Your body doesn’t absorb folate as easily as it absorbs folic acid. It’s estimated that about 85% of folic acid from fortified foods or supplements is absorbed, while only 50% of natural folate from foods is used by your body. After folic acid is absorbed into your bloodstream, it’s broken down into smaller compounds by your liver. However, the liver is only able to process a certain amount of folic acid at a time. As a result, consuming too much folic acid from fortified foods and supplements can cause unmetabolized folic acid (UMFA) to accumulate in your blood. This doesn’t happen when you eat high folate foods. From: https://www.healthline.com/nutrition/folic-acid-side-effects#How-excess-folic-acid-develops I would think your folate levels will normalize over time. But I'm curious. Were you tested for vitamin/mineral deficiencies before being given supplements or was it just assumed you would have them after finding out you have celiac disease? Your acid reflux issues could certainly be a holdover from the week of supplementation now discontinued. Another possibility is "gluten withdrawal" which some experience in the first few weeks after going gluten free. Gluten has addictive qualities similar to opiates. Another possibility is certain polysaccharides commonly found in gluten free prepackaged facsimile foods. They use these polysaccharides (e.g., xanthan gum) as texturing agents to approximate what gluten does in wheat products and they are hard to digest. Let me caution you against long term proton pump inhibitor (PPI) therapy for the acid reflux. That simply raises gut PH (lowers acidity) which interferes with the absorption of vitamins and minerals from our diets. Way too often, docs will prescribe PPIs as a band aid for reflux and leave their patients on them forever. It's much better to use over the counter calcium-based remedies like TUMS to give you coverage as needed rather than treat reflux systemically with acid blockers.
    • Tyoung
      I was diagnosed in November with celiacs and at the time had been tested for multiple vitamin deficiencies. During that time my folate level was 4ng/mL, Although I was told to take supplements, I ended up only taking them for a week or so as they made my stomach upset. I had my blood work redone yesterday and as the results came in I noticed that most of my levels are now normal, but folate level is >24ng/mL. Has anyone else had similar results? If so were you able to figure out why or how to normalize them? I also have been having constant acid reflux since about two weeks into going gluten free (no acid reflux history prior to) that we are trying to get to the bottom of with no answers. Could that be related? Thank you!! Also wanted to not that I am not eating any gluten free processed food.
×
×
  • Create New...