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2 Articles In Baltimore Examiner


happygirl

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happygirl Collaborator

Interview with Dr. Alessio Fasano: Open Original Shared Link

(My note: This is why the Celiac community is so lucky to have him: "Philosophy: Discovery is to see what everyone else has seen and to think what no one else has thought.")

"Doctor unraveling mystery of celiac disease

By Sara Michael

Examiner Staff Writer 1/16/09

Open Original Shared Link

"Celiac sufferers adjust to gluten-free lifestyle, wait for a cure

By Sara Michael

Examiner Staff Writer 1/16/09


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Jestgar Rising Star

Not really a fan of this paragraph:

Absolutely. But the hazard is ... once you go on a gluten-free diet, the tools we use for the diagnosis are not available anymore. The tests will test negative once you go on a gluten-free diet. You lose the ability to make a diagnosis. It's like you say, "I am peeing a little too much, and I am light-headed, so let me take 20 units of insulin and see if I have diabetes." For celiac disease, a gluten-free diet is like insulin for diabetics.

Choosing your diet isn't really the same as shooting yourself up with insulin.

happygirl Collaborator

It actually makes perfect sense to me in the context its used -testing- and I have seen the overall example used on the forum and other places - you can't test for Celiac once you are on the diet (because, the damage has healed, and we look "normal") and you can't really test for diabetes when your blood sugar is under control (with use of insulin, at that point, looks normal, and now it looks like you "don't" have diabetes because you "fixed" it when the testing was done.)

MaryJones2 Enthusiast

Thanks for sharing Laura. I thought this part was excellent:

If you go on a 99.9 percent gluten-free diet, that 0.1 percent is perceived by the immune system as something dangerous there. It can't distinguish between a crumb and an entire bread loaf.

rubyred Apprentice

Thanks for the articles! I actually just made an appointment to see Dr. Fasano - on Feb 24th. I am going to get records of my previous endoscopy for him to look over. I'm very excited!! It's nice to read that he believes in the gluten spectrum, so even if he says I dont have Celiac, he will take my symptoms and diet response seriously!

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    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
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