Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Confused About The "healing Crisis"


loxleynew

Recommended Posts

loxleynew Apprentice

Ok so Ive read about the herx reaction otherwise known as the healing crisis. I was wondering since everyone goes through it I suppose. Does it just magnify whatever symptoms you had prior to going gluten free? Does it also on top of that add new ones?

Like for instance I seem to have gotten new symptoms (diharea, headaches) along with magnifying my old symptoms that I had already. It just doesn't seem right to me that it gets THIS BAD before it gets better. Like my symptoms went from bad to 3x worse just 8-10 days on this diet.

I didn't quite find anything in search about this, sorry if it has come up before.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

I have several thoughts...

1. It takes time to heal on the gluten-free diet. Depending on your symptoms, the first few weeks (or even months) can be a roller coaster of ups and downs.

2. A lot of people get more sensitive to gluten once they cut it out of their diet. For example, after I was gluten-free for two months I started getting an itchy rash when I was cross-contaminated. This made me realize I needed to be a LOT more careful about restaurants and processed foods.

3. You could have the flu... or something totally unrelated to celiac :(

4. The "herx" is a reaction some people get during treatment for candida overgrowth... that might explain why you weren't finding the information you were looking for.

5. Maybe some of your symptoms are things you thought were just "normal" for you... only now you realize they're related to gluten and you're not willing to put up with them! This is a good thing.

6. Maybe gluten is not your only intolerance... dairy, corn, soy, eggs, nuts, and grains in general are problem foods for a lot of people. Is there anything you started eating a lot more of when you went gluten-free? For me, that was corn... and it was causing some of the same symptoms.

mftnchn Explorer

This seems to happen at times. I experienced after going gluten-free, and again after going on SCD 15 months later. I also have lyme disease, and the borrelia spirochete bacteria that is the main cause of lyme gives off toxins when it dies in the body and produces a herxheimer reaction. A few bacteria are known to do that.

A lot of people have described ups and downs during the healing process for months, and can be longer than a year.

In addition, with food allergies you can go through this type of thing. For example in the past, my allergist had me do a five day fast and then food challenges. He warned of this happening, but said it should clear by the fifth day, which it did for me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    2. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    3. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    4. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains

    5. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      5

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,342
    • Most Online (within 30 mins)
      7,748

    Julie Clayton
    Newest Member
    Julie Clayton
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Richardo
      I've never had problems with quinoa but I always rinse it well before cooking in case it's processed with other grains. I think quinoa is classified as a seed. I can't eat grains at all but I can eat all seeds. Ain't the human body a pandora's box of surprises??? 
    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
×
×
  • Create New...