Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Targeted Amino Acid Therapy


rock on

Recommended Posts

rock on Apprentice

Hi all!

It's been a long time since I've posted. For those of you who don't know me, I'm often here inquiring about things for my husband.

Anywho, he's been on a strict gluten free diet for over a year now for several reasons, but the main one being psoriatic arthritis.

He has gone off of his methotrexate (about 4 mos ago) and has been feeling relatively ok, except for some aches & pains here & there. His psoriasis is very mild & not having to take the pills has greatly improved his quality of life.

But, a new problem has arisen pretty severely over the last few months regarding anxiety, some depression & bad anxiety attacks.

An internist prescribed him ativan which has helped quite a bit, but we know isn't an answer to his problems.

A psychiatrist rx'd an antidepressant & a stronger anti-anxiety pill which my hubby hasn't filled the prescription for because he's nervous that taking those could cause another ride down a slippery slope.

Just yesterday we saw a D.O. & for the first time ever felt like we found a doctor who would actually listen...who actually cared about all of the issues that we feel are pertinent to my husband's medical history & who gave some hope to us that he could help my hubby get himself onto a track of health rather than simply masking all his various symptoms with pharmaceuticals. He sat with us for over 2 hours & really got specific about things that other doctors just wrote off. We are hopeful.

The first thing that he wants to do with my husband is start him on a Targeted Amino Acid Therapy to help to stabilize his neurotransmitters.

I've done some research & it seems to make sense (especially concerning my hubby's medical history)....but, I figured I would post here to see if any of you fine folks have had personal experiences with it or have known anyone who has tried the therapy.

As always, I thank you in advance for any info you all may be able to provide for us in our trek toward health for hubby (& our relationship!!)

Best~

RO


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cinnamon Apprentice

I have a son with ADHD and dyspraxia, both of which are problems with dopamine in certain areas of the brain. I tried giving him tyrosine to boost his dopamine, and it worked amazingly well for a few days, then stopped working.

I tried giving him a higher dose, and that worked for another day or two, then stopped working. I was afraid to increase the dose any more, so I took him to the doctor, and this is what he told me. He said the brain is an amazing thing, it constantly monitors what comes in and makes adjustments accordingly. If you keep on giving it a high dose of only certain amino acids, it will make adjustments in order to dump it. But he said it depends on the plasticity of the person's brain. He said he's seen it work in a few adults, but not many. And he said it will never work in a child because their brains are so very plastic, constantly adjusting and changing.

It's worth a try, though. You never know, it might work and continue to work depending on the plasticity of his brain, which is less in adults. It sure did work for my son for those few days. Nothing including ADHD medication or gluten-free diet did as much to alleviate these problems.

I hope it works for you!

rock on Apprentice

Thanks Cinnamon. That's interesting that tyrosine helped him (even if it was for short periods).

I am certainly hopeful that this helps my guy. He's on the 2nd day of treatment...and treatment includes several types of amino acids in varying doses throughout the day.

We'll see. He says that he can feel that something is happening. He had some GI upset from it yesterday & the doctor lowered the dosage. He seems to be doing a little better today.

Perhaps something more comprehensive in an amino acid approach could help your son. So many things in our bodies rely on synergy...so many vitamins and minerals need to be balanced, so it figures that you should have to balance amino acids too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.