Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Philippines?

kakaiba

By kakaiba
in Meet Up Room

Recommended Posts

kakaiba Rookie
kakaiba
Posted

love to know, I'm not the only one who has DH in here...

  • 2 years later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bengalkat Newbie
Bengalkat
Posted

love to know, I'm not the only one who has DH in here...

Well, better late than never. I have celiac and live in Philippines.

B

  • 4 weeks later...
rpbonoan Newbie
rpbonoan
Posted

Well, better late than never. I have celiac and live in Philippines.

B

hi. My name is robbie, and my wife is gluten intolerant / has celiac disease. I also have a cousin with the same condition. But whereas my cousin is very disciplined and keeps away from gluten-based foods, my wife is not as disciplined. Honestly, it really irritates me. I know it is easier said than done, but I feel that celiac disease is not a sickness, but a condition. She should work around her condition, accpet it.

rpbonoan Newbie
rpbonoan
Posted

By the way, i am also from the Philippines. It is tough. There are not as many people with that condition here in the Philippines.

But I see celiac disease as a condition, not a sickness. One must accept and be strict with oneself.

  • 1 month later...
Bengalkat Newbie
Bengalkat
Posted

By the way, i am also from the Philippines. It is tough. There are not as many people with that condition here in the Philippines.

But I see celiac disease as a condition, not a sickness. One must accept and be strict with oneself.

Sorry I did not see your post sooner! I agree it is a condition and you do have to be strict with yourself. Since I have been here I am noticing Philippines does not have strict laws about listing gluten in foods here so it is some trial and error for me.

Bk

  • 6 years later...
Geoff01 Apprentice
Geoff01
Posted
On 1/23/2009 at 2:14 PM, kakaiba said:

love to know, I'm not the only one who has DH in here...

Hi Kakaiba,

I’m a New Zealander and I’ve lived in the Philippines for 16 years.  It has become obvious over some years that I have celiac disease and I have gone gluten-free which is really hard here.  I mostly cook at home.

Good to know there’s a few others that we can share our stories with here. I’ve had DH twice in 9 years and developed gut reactions in the last 3-4 years but I’ve had gradually increasing peripheral neuropathy for nearly 30 years and it seems that celiac disease might be the cause.  Doctors have never understood it and I prove negative for all other known causes.

Ive had positive genetic tests (DQ2.2) and (false) negative serology as I was gluten-free at the time.  I need to find a doctor, pref in Makati that understands celiac disease.  I would appreciate it if readers could recommend any doctors they know who have solid experience with celiac disease.

Thanks

Geoff

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. susan connolly
      - susan connolly replied to MrsT827's topic in Gluten-Free Foods, Products, Shopping & Medications
      87

      Barilla Gluten Free Pasta makes me sick

      Hi I just had the same problem with Maninis Am gluten-free so I am very careful. It was delicious but big tummy ache and swelling. I was soooo careful. Nothing different but the tortellini. Maybe cross contamination of some kind ?. Best Susan
    2. trents
      - trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      26

      What should I do with these test results?

      Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
    3. Jack Common
      - Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      26

      What should I do with these test results?

      I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion...
    4. cristiana
      - cristiana commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
    5. trents
      - trents commented on Debado's blog entry in Debado
      10

      Gluten migranes at night

      I'll ask the same question that knitty kitty asked? On what basis did your Dr arrive at the conclusion that you have gluten intolerance? But let's be clear about terminology because the terms "gluten intolerance" and "gluten sensitivity" are typically used interchangeably out there in the wild and both are used indiscriminately to speak of two different...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,806
    • Most Online (within 30 mins)
      7,748
    dublin555
    Newest Member
    dublin555
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • susan connolly
      Barilla Gluten Free Pasta makes me sick

      By susan connolly · Posted

      Hi  I just had the same problem with Maninis Am gluten-free so I am very careful. It was delicious but big tummy ache and swelling.  I was soooo careful.  Nothing different but the tortellini.  Maybe cross contamination of some kind ?.  Best  Susan 
    • trents
      What should I do with these test results?

      By trents · Posted

      Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
    • Jack Common
      What should I do with these test results?

      By Jack Common · Posted

      I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion. So I'm gonna eat gluten for another two months and then do the test again. It will be 12 weeks eating food with gluten so some symptoms might appear. Now, I don't have any except fogginess but I'm a software developer so it could be normal for me. Talking about how much food containing gluten to eat, I'm eating 6 slices of wheat bread per day (each slice weighs around 35 grams). I think it's much more than other people eat doing a gluten challenge. Before a gluten free diet I had symptoms like some food intolerance, diarrhea, bloating, belching. However, I also had giardiasis and after treating it I started a gluten free diet so it's unclear whether I had this symptoms because of eliminating gluten or this parasite. The symptoms for both are very similar. So I think it was this parasite because two years ago and before I didn't have these symptoms and I always ate gluten freely. Am I thinking okay or should I consider/do something else? I appreciate any suggestions.
    • Brandy969
      What should I do with these test results?

      By Brandy969 · Posted

      Thank you! I didn’t know this! 
    • knitty kitty
      Night time migranes

      By knitty kitty · Posted

      Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine.  Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine.  Our bodies make histamine, an important neurotransmitter.  Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles.   Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine.  A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods.   Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines.   Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels.  Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine.  DAO from beef or pork kidney is an over-the-counter supplement that can be taken.   Riboflavin B2 is very helpful for relieving migraines.   Have you been diagnosed with Celiac Disease or suspect you have it?   Happy Holidays!
×
×
  • Create New...