Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Healing Process?


wendstress

Recommended Posts

wendstress Rookie

Found out I was + for celiac on 12/31/08. My TTG AIG was 90 units (Normal is <10).

I went gluten-free (admittedly clumisily at first) and felt and immediate burst in strenght, mental clarity, etc.

Since then, I've had lots of ups and downs...... I went to the Dr. in the first place because I had chronic diarrhea. That has gotten a *little* better, but I still have days where I go to the bathroom 3-5 times.

So my question is: What to expect during the healing process? What will happen to my body, and how long until I feel consistently better?

I admit I am feeling pretty frustrated - I've been working so hard at this and still have so many ups and downs.

Another, unrelated, question.... I have terrible breath that no amount of brushing, scraping, or Listerene can cure. Can this be related to Celiac? Or I was reading something about Candida? Can Candida and Celiac sort of go together?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Ups and downs are common for the first few months. Part of this is because your body is healing, but it also takes time to figure out all the possible sources of contamination. For example... it took me more than three months (and a very itchy rash) to realize just how risky it was for me to eat at restaurants, even if I wasn't eating any obvious forms of gluten. I just read a post yesterday about a restaurant where they soak the potatoes in pasta water (!!!). I never would have thought to ask about something like that. <_<

Also... after a while, some people find that other food(s) are causing some of the same symptoms. The most common culprits are dairy, corn, soy, eggs, nuts, nightshades (potatoes, tomatoes, etc...) and grains/carbs in general. I had to stop eating 95% of processed foods because I'm intolerant to corn. It not always convenient, but I feel a lot better! :) If you want to maximize your healing, the best way is to eat a very simple diet (meat, veggies, fruit)... skip the dairy for a while and don't try to replace all your favorite gluten foods with gluten-free versions. I realize this is not easy! If you just can't give up dairy right now, don't worry about it. You have time to figure out what your body needs. The most important thing is to get gluten out of your diet 100%.

On the candida issue... yes, it does seem to be a problem for a lot of people with celiac disease and other forms of gluten intolerance. There are lots of threads about this if you search. Bad breath is related too (although there are other things than can cause it, so it's best to ask your doctor and/or your dentist). It's amazing how many parts of your body can be affected by gluten intolerance.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,297
    • Most Online (within 30 mins)
      7,748

    Louise Tylee
    Newest Member
    Louise Tylee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Raquel2021
      Yes stress can .make the pain worse. That being said it is taking years for my body to heal. I am not able to eat out as 98 % of restaurants do not know how to cook for celiacs.  I only eat out on special occasions. Any time I eat gluten I feel there is a tourch going through my digestive system specifically in the area you have mentioned.  Like where the deudenal is . I am very sensitive to cross contamination so any small amount of gluten makes me sick.
    • trents
      @Ems10, celiac diagnosis normally involves two steps. The first one is serum antibody testing which you may have already have had done and are waiting on the results. The second step involves and endoscopy (aka, gastroscopy) with biopsy of the small bowel lining. This second step is typically ordered if one or more antibody tests were positive, is a confirmation of the serum antibody testing and is considered the gold standard diagnostic test for celiac disease. Now hear this, you should not be eating gluten free weeks or months in advance of either kind of testing. Prematurely going on a gluten free diet can and will sabotage the results of the endoscopy/biopsy should you get a referral to a GI doc who would want to do that. Eliminating gluten from the diet causes causes inflammation to subside which allows the small bowel ling to heal such that the damage they would be looking for is no longer there.
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
    • Scott Adams
      It might make sense for you to find out if they've run a celiac disease test on you, and if not, consider planning for it.
    • Ems10
      Thanks for your reply! I’m really not too sure, the doctor just took a few tubes of blood & that’s all I know 🥹
×
×
  • Create New...