Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Questions


FranDaMan

Recommended Posts

FranDaMan Apprentice

I broke out on my elbows, buttocks and knees in mid-December. Searching the web I concluded DH and was subsequently confirmed by skin biopsy. I'm currently on Dapsone and the rash is well in check. I'd love to say I'm totally gluten free but I'm more likely gluten-lite as another poster refers to. I haven't consciously had any gluten since the diagnosis but also haven't yet replaced the toaster and wooden spoons and stuff. That is coming very soon, though.

So the first question is (and it is more for my wife than me as I've accepted my fate) is there a distinction between DH (confirmed) and celiac? Is there a distinction between gluten intolerance and celiac? I know the diet is the same either way but is there actually a difference?

I'm very symptom free with the exception of the rash. I've concluded from all the posts and reading I've done in the past month that my getting the rash out of the blue like this is my wake-up call. Kind of like my body telling me that it has reached the limit of what it can handle and I must now stop or all the other bad stuff comes along. Such as the damaged villi and the C followed by the D and the cramps, etc. I'd like to avoid all of that if possible...especially any internal damage.

I've seen reference to ditching teflon pans. Why? Do any imperfections harbor gluten? Can't it be washed away and made right again? I'd really like to skip this expense if possible.

One thing for sure is that the more I learn the less I think I know!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

DH is Celiac. It's the skin form.....but if I remember correctly you would also have the villi blunting. Not everyone exibits all of the same sympoms. Some of us lucky folks have not only DH but all of the other symptoms as well. I think there are a larger percentage of us than what I've seen printed.

Anyway....I believe your teflon pans are fine. Thoroughly washing things like that should eliminate cross contamination. Wooden spoons and shared toasters are not a good idea. You just can't really clean a toaster (and it would be a pain to do so with each use, anyway), and wooden utensils (and any porous serface) has a tendancy to absorb materials. You just can't be sure what may be harbored in the pores of such.

I would advise you to read everything you can. There is a lot of good info. and advice here. There are several excellent books on the market as well. You'll learn as you go, make mistakes and learn from then. Patience and persistance, and pretty soon it'll be second nature. Good luck to you!

FranDaMan Apprentice

Thanks. I see people saying to ditch the teflon still. I may be able to swap them out down the road when we accomplish gluten-free instead of GL.

Tallforagirl Rookie

Some people on here assert that using old utensils and pans etc especially wooden and teflon gives them a reaction, but I've never read "expert" advice saying you need to chuck all your pots and pans. The advice is that a good wash with soap and water will get the gluten off.

I would see how you go, then decide. But a new toaster is a good idea, as it's pretty difficult to soap and water your toaster clean! You can keep the old toaster for gluten toast only.

ang1e0251 Contributor

I think Teflon in good shape can be cleaned but I wouldn't cook both foods in it any more. If cooking gluten & gluten-free foods, a seperate pan for gluten-free would be a good idea. Wooden spoons are inexpensive so why not err on the side of caution? I believe the toaster is a must have, also inexpensive. If you use a fine sieve type colander for pasta, I would get a seperate one for gluten-free. Kind of hard to clean those things well.

It's the little things like that can get you down the road. Some folks report only partial healing & realize they should have taken better precautions in their kitchens. I think if you do that now, you be happier than if you react later, IMO.

FranDaMan Apprentice

I do the bulk of the cooking anyway and there never were too many dishes that I prepared with any kind of flour. The odd stir fry things I'd use corn starch anyway. I do think the baking sheets are history though, once my wife gets through the frozen cordon bleu and such. They get old real fast anyway (the sheets that is). Wooden spoons and toaster are on the short list of musts for this weekend.

Probably wrong place to ask this but...if you needed to dredge a piece in flour to fry it what is the substitute? I'm guessing a complete mix of flours like a gluten-free bread mix but I don't yet have that. I do have millet and rice flour now so maybe a mix of that? Perhaps a bit of the starch in it as well? I have gluten-free crumbs for the crunch but unsure about the under layer.

Thanks

Tallforagirl Rookie
I do the bulk of the cooking anyway and there never were too many dishes that I prepared with any kind of flour. The odd stir fry things I'd use corn starch anyway. I do think the baking sheets are history though, once my wife gets through the frozen cordon bleu and such. They get old real fast anyway (the sheets that is). Wooden spoons and toaster are on the short list of musts for this weekend.

Probably wrong place to ask this but...if you needed to dredge a piece in flour to fry it what is the substitute? I'm guessing a complete mix of flours like a gluten-free bread mix but I don't yet have that. I do have millet and rice flour now so maybe a mix of that? Perhaps a bit of the starch in it as well? I have gluten-free crumbs for the crunch but unsure about the under layer.

Thanks

I've used buckwheat flour for dredging fish/meat to pan-fry, but I don't think for that purpose it matters too much what type of gluten-free flour you use. Baking cakes and bread is where the type or mix of flour matters, at least that's my understanding. I've also used white rice crumbs for crumbing fish and meat which I actually like better than breadcrumbs, it's got a crunchier texture.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My favorite way to dredge is to use gluten-free instant potato flakes. I just buy the cheap Walmart brand. It makes great chicken nuggets too. I haven't tried flour but I think that any one would do. They are bland so use all your fave spices. For breading you can use crushed potato chips or Rice Chex. I just really like the potato flakes and that's all I use.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,956
    • Most Online (within 30 mins)
      7,748

    Srowton
    Newest Member
    Srowton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.