Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Questions


FranDaMan

Recommended Posts

FranDaMan Apprentice

I broke out on my elbows, buttocks and knees in mid-December. Searching the web I concluded DH and was subsequently confirmed by skin biopsy. I'm currently on Dapsone and the rash is well in check. I'd love to say I'm totally gluten free but I'm more likely gluten-lite as another poster refers to. I haven't consciously had any gluten since the diagnosis but also haven't yet replaced the toaster and wooden spoons and stuff. That is coming very soon, though.

So the first question is (and it is more for my wife than me as I've accepted my fate) is there a distinction between DH (confirmed) and celiac? Is there a distinction between gluten intolerance and celiac? I know the diet is the same either way but is there actually a difference?

I'm very symptom free with the exception of the rash. I've concluded from all the posts and reading I've done in the past month that my getting the rash out of the blue like this is my wake-up call. Kind of like my body telling me that it has reached the limit of what it can handle and I must now stop or all the other bad stuff comes along. Such as the damaged villi and the C followed by the D and the cramps, etc. I'd like to avoid all of that if possible...especially any internal damage.

I've seen reference to ditching teflon pans. Why? Do any imperfections harbor gluten? Can't it be washed away and made right again? I'd really like to skip this expense if possible.

One thing for sure is that the more I learn the less I think I know!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flourgirl Apprentice

DH is Celiac. It's the skin form.....but if I remember correctly you would also have the villi blunting. Not everyone exibits all of the same sympoms. Some of us lucky folks have not only DH but all of the other symptoms as well. I think there are a larger percentage of us than what I've seen printed.

Anyway....I believe your teflon pans are fine. Thoroughly washing things like that should eliminate cross contamination. Wooden spoons and shared toasters are not a good idea. You just can't really clean a toaster (and it would be a pain to do so with each use, anyway), and wooden utensils (and any porous serface) has a tendancy to absorb materials. You just can't be sure what may be harbored in the pores of such.

I would advise you to read everything you can. There is a lot of good info. and advice here. There are several excellent books on the market as well. You'll learn as you go, make mistakes and learn from then. Patience and persistance, and pretty soon it'll be second nature. Good luck to you!

FranDaMan Apprentice

Thanks. I see people saying to ditch the teflon still. I may be able to swap them out down the road when we accomplish gluten-free instead of GL.

Tallforagirl Rookie

Some people on here assert that using old utensils and pans etc especially wooden and teflon gives them a reaction, but I've never read "expert" advice saying you need to chuck all your pots and pans. The advice is that a good wash with soap and water will get the gluten off.

I would see how you go, then decide. But a new toaster is a good idea, as it's pretty difficult to soap and water your toaster clean! You can keep the old toaster for gluten toast only.

ang1e0251 Contributor

I think Teflon in good shape can be cleaned but I wouldn't cook both foods in it any more. If cooking gluten & gluten-free foods, a seperate pan for gluten-free would be a good idea. Wooden spoons are inexpensive so why not err on the side of caution? I believe the toaster is a must have, also inexpensive. If you use a fine sieve type colander for pasta, I would get a seperate one for gluten-free. Kind of hard to clean those things well.

It's the little things like that can get you down the road. Some folks report only partial healing & realize they should have taken better precautions in their kitchens. I think if you do that now, you be happier than if you react later, IMO.

FranDaMan Apprentice

I do the bulk of the cooking anyway and there never were too many dishes that I prepared with any kind of flour. The odd stir fry things I'd use corn starch anyway. I do think the baking sheets are history though, once my wife gets through the frozen cordon bleu and such. They get old real fast anyway (the sheets that is). Wooden spoons and toaster are on the short list of musts for this weekend.

Probably wrong place to ask this but...if you needed to dredge a piece in flour to fry it what is the substitute? I'm guessing a complete mix of flours like a gluten-free bread mix but I don't yet have that. I do have millet and rice flour now so maybe a mix of that? Perhaps a bit of the starch in it as well? I have gluten-free crumbs for the crunch but unsure about the under layer.

Thanks

Tallforagirl Rookie
I do the bulk of the cooking anyway and there never were too many dishes that I prepared with any kind of flour. The odd stir fry things I'd use corn starch anyway. I do think the baking sheets are history though, once my wife gets through the frozen cordon bleu and such. They get old real fast anyway (the sheets that is). Wooden spoons and toaster are on the short list of musts for this weekend.

Probably wrong place to ask this but...if you needed to dredge a piece in flour to fry it what is the substitute? I'm guessing a complete mix of flours like a gluten-free bread mix but I don't yet have that. I do have millet and rice flour now so maybe a mix of that? Perhaps a bit of the starch in it as well? I have gluten-free crumbs for the crunch but unsure about the under layer.

Thanks

I've used buckwheat flour for dredging fish/meat to pan-fry, but I don't think for that purpose it matters too much what type of gluten-free flour you use. Baking cakes and bread is where the type or mix of flour matters, at least that's my understanding. I've also used white rice crumbs for crumbing fish and meat which I actually like better than breadcrumbs, it's got a crunchier texture.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

My favorite way to dredge is to use gluten-free instant potato flakes. I just buy the cheap Walmart brand. It makes great chicken nuggets too. I haven't tried flour but I think that any one would do. They are bland so use all your fave spices. For breading you can use crushed potato chips or Rice Chex. I just really like the potato flakes and that's all I use.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    2. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      321

      Terrible Neurological Symptoms

    4. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    5. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,590
    • Most Online (within 30 mins)
      7,748

    Danny Mc
    Newest Member
    Danny Mc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
    • knitty kitty
      Oh, dear, the niacin flush!  I've heard repeatedly that the worse the flush, the more your body needs the niacin.  If you stick with it, the flushing will not be as bad in a few days.   Another way to correct low Niacin level is to take 100 mg of Niacin (nicotinic acid, the flushing kind) every three hours for several days.  I've done this myself, and found the flushing is very short lived.   Stay hydrated.  The B's are water soluble, so if not needed, they'll be excreted. Hang tight, you'll be okay!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.