Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Till Intestine Recovers


UnhappyCoeliac

Recommended Posts

UnhappyCoeliac Enthusiast

Been diagnosed recently 22 years old... I FEEL AWFUL at the moment even with 3 days gluten free how long is it likely to take for my small intestine to recover... even an estimation would be appreciated I need a goal of target to shoot for besides forever to make it less challenging.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

I wish there was a simple answer, but it seems everyone is different. For some, great improvement is seen in just days, while for others it can take months or even years. It took six months before I noticed much of a change, though I wasn't taking any supplements at the time. I really which I had.

There is often a period of withdrawal, during which you will feel awful, so it may just be that. But if it persists, you may need to look at other possible intolerances or allergies, especially to the top allergens, including dairy, soy, corn, eggs, nuts, yeast, etc. It's always a good idea to watch out for things like aspartame and MSG. To date, there doesn't seem to be a safe artificial sweetener. Thank goodness there's Stevia.

So, I think I'd recommend a few supplements, if you aren't already taking them. Things like a sublingual methylcobalamin (active form of vitamin B12), B-complex, magnesium, vitamin D3, calcium, potassium, omega-3s, and possibly iron and zinc. These are some of the typical ones, but again, everyone is different. If you aren't sure what to do, it may be worth getting tested for deficiencies.

cat3883 Explorer

It can take up to 2 years for your intestines to completely heal but you will start feeling better in about 2 weeks after going gluten free. But those first 2 weeks were rough. The hardest thing for me was the insomnia. Just hang on you will be feeling better soon.

cattriona Newbie

I found that after two weeks I noticed a definite improvement. Probably around 3-4 months after I felt a lot better but of course this depends on the severity and the length of time that you have been a celiac.

Tallforagirl Rookie

I only just started feeling better after four months gluten-free. I had fatigue and nausea up until about two weeks ago. Nausea is now gone, fatigue still improving but gradually.

At times I have felt disheartened because it seems like when I read reports about other peoples experiences, they usually said that they felt better almost overnight.

Now I think it's different for everyone.

When you think about how long it might have taken for the damage to build up (months, if not years), it's no wonder that it can take time for the damage to heal and the symptoms to improve.

Stick with it, and you will feel better, hopefully after not too long :)

lizard00 Enthusiast

I felt better almost immediately. But the fatigue seemed like it would never end.

Come to find out, I was low in vit d. SO, get your vitamins checked, especially that one. I also started taking b12 and a b complex, and that helped out, too. But the most dramatic changes have been within the past 3 weeks or so of taking 2500 mg of vit d daily.

Most celiacs have a vit d problem, since we absorb vit d in the small intestine.

UnhappyCoeliac Enthusiast

Three days gluten free. today i feel aweful its not because of gluten though I am simply getting back into weights and exercise and my body is not use too it, we have lunch coming up in my runs put it that way but it is part of being healthy.

I notice I sleep better, what I am really excited about now is that protein absorption will be increased and I will get more muscle from the gym and feel less like poop.

I am very committed now since experience some small scary neuro symptoms. I take

Multi Vit

Vite D

Fish oil

b12 dailey

+ vitamin juice, with um C? and a few others... still got to work on the veggies but! :o:huh:

thanks for the replies this place is incredibly helpful. I have no one really to ask questions of, I think my doctor has a very loose grip of understanding on this disease too lol and the specialist cost $100 for a "chat"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SallyRoss Newbie

lizardOO, could you please confirm the amount of Vit D you're taking for the fatigue?

Is it 2500 IU, or 2500 mcg?

I am thinking to beef up my D intake, but you would most likely be dying of toxicity if taking 2500 mg daily!

Thanks a bunch...

loxleynew Apprentice

Hmm I felt this way the first week as well. I'm on the diet for 3-4 weeks now and I notice small changes. I figure it just takes time and to stick with it! I was also huge into BB back in the day before getting sick. I had to stop training until I got diagnosed in january and I still do not workout. I'm waiting until my intestines further heal along with the hashimotos I have as well. So stick with it! you might not be absorbing all the protein for a few weeks still or let alone maybe months.

I also have Vit D def. I take 50,000 IUs 1x per week but I don't notice a difference from that :(

Tallforagirl Rookie
Hmm I felt this way the first week as well. I'm on the diet for 3-4 weeks now and I notice small changes. I figure it just takes time and to stick with it! I was also huge into BB back in the day before getting sick. I had to stop training until I got diagnosed in january and I still do not workout. I'm waiting until my intestines further heal along with the hashimotos I have as well. So stick with it! you might not be absorbing all the protein for a few weeks still or let alone maybe months.

I also have Vit D def. I take 50,000 IUs 1x per week but I don't notice a difference from that :(

Yeah, I also had to stop fitness training, and have only just started to get back into it after about 4 months off. I just didn't feel like I had an ounce of extra energy to spare, like all my energy was used up just doing basic daily tasks. I have found myself in the bathroom at work, in a cubicle, trying to take a nap in there on some days, that is how dog tired I've been. It's not a nice tired either, more like jet lag. Bleeurgh!

lizard00 Enthusiast
lizardOO, could you please confirm the amount of Vit D you're taking for the fatigue?

Is it 2500 IU, or 2500 mcg?

I am thinking to beef up my D intake, but you would most likely be dying of toxicity if taking 2500 mg daily!

Thanks a bunch...

Sorry, it's IU. I get those mixed up a lot! :blink:

I will probably stop taking the supps in the summer because I do love the sun, and I always feel my best in the summer. But for the winter months, I'm finding it is a necessity. From what I've read, we naturally make somewhere around 10,000 IU from 30 minutes of sun exposure. So I definitely don't need to supplement in the summer.

I think there is still a lot to be learned about vitamin D and it's "toxicity". It's not a vitamin, so your body doesn't use it the same way. Anything in massive amounts can be harmful to your body, even water.

Sorry to hijack the thread...

maile Newbie
I think there is still a lot to be learned about vitamin D and it's "toxicity". It's not a vitamin, so your body doesn't use it the same way. Anything in massive amounts can be harmful to your body, even water.

Sorry to hijack the thread...

just to continue the hijack :ph34r: there was an article in our national paper about low levels of vitamin D in pregnant women may be linked to their children being more likely to suffer from MS. Given that MS is most common in northern countries (Canada, Scotland, Northern Japan) it seems to make sense.

I've upped my intake by quite a bit, mostly to help with the neuro symptoms, but after reading this article I'm more inclined than ever (my mother had MS)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,192
    • Most Online (within 30 mins)
      7,748

    Beatle Jane
    Newest Member
    Beatle Jane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...