Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Realized What Food Caused All Of My Problems


knowurgluten

Recommended Posts

knowurgluten Rookie

As some of you may know, I recently had some HORRIBLE stomach and liver problems to where I thought I was dying again, as I did when first diagnosed with celiac disease.

I was almost certain that I was gluten-free, but someone here said to go back and look at EVERYTHING.

I had been eating these protein bars and nothing on the package made me think they had gluten, but I called the company and YUP...I've been eating gluten protein bars for a year.

I just wonder why I got sick only now and not a year ago. Why do some get symptoms right away and some not?

Anyway, since starting the digestive enzymes (I get mine cheapest at viteaminz.com) and manuka honey, and avoiding the protein bars, I am 99% better.

I called the company who made these gluten filled protein bars (MXI/Xocai) and told them they NEED to make it clear on their packaging because I was very sick!

Thank you everyone for your help. This forum saved me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



weeza Newbie

Good for you!! Glad your feeling better. I am new at this so reading labels are still confusing for me but I will remind myself that when in question, call the company. Thanks for sharing.

JNBunnie1 Community Regular

I just looked at it online, and I think it was either the 'isomaltulose' (probably barley) or the 'natural flavors' that got you. That, and they put themselves forward as a superbly healthy, forward-thinking, better-than-the-rest kind of company, but they're still using isolated soy protein. Nope, not eating their stuff!

knowurgluten Rookie
I just looked at it online, and I think it was either the 'isomaltulose' (probably barley) or the 'natural flavors' that got you. That, and they put themselves forward as a superbly healthy, forward-thinking, better-than-the-rest kind of company, but they're still using isolated soy protein. Nope, not eating their stuff!

What makes me so mad is that the average person, like me, did not know that isomaltulos was bad or isolated soy protein. They should have it more clearly labeled. We are not chemists' for pete sakes!

bigbird16 Apprentice

Cake decorator chiming in here: Isomaltulose (and its derititive isomalt), in spite of the malt in the name, is not derived from barley. It's a naturally occuring sugar (found in honey and sugar cane). Isomalt is a sugar alcohol that, like xylitol, does not promote tooth decay, though if too much is eaten, causes icky digestive things to happen. It's commonly used in sugar sculpting for its stability.

I'd point the finger at "natural flavors" or that they're produced on shared equipment.

Kat

JNBunnie1 Community Regular
What makes me so mad is that the average person, like me, did not know that isomaltulos was bad or isolated soy protein. They should have it more clearly labeled. We are not chemists' for pete sakes!

Bigbird- thank you for clearing that up.

Knowurgluten- I think you misunderstood me. I wasn't saying isolated soy protein equals gluten, just that it's bad for you (in my opinion) in general. I think bigbird is right, either natural flavors or shared equipment got you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - disneyfamilyfive replied to disneyfamilyfive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test result insight

    2. - Scott Adams replied to disneyfamilyfive's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test result insight

    3. - disneyfamilyfive posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Test result insight

    4. - Sicilygirl posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      fed up italian

    5. - trents replied to Jtestani's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Help with results please. As I have a appt after the New Year.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,335
    • Most Online (within 30 mins)
      7,748

    Outlookindiaa00
    Newest Member
    Outlookindiaa00
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • disneyfamilyfive
      Thank you for the article Scott. It was very informative.  I didn’t realize I should have been eating a certain amount of gluten prior to the test.  I only eat bread maybe 1x a week, don’t eat cereal.  Pasta occasionally.  I’m sure there is gluten in nearly everything, so I’ve had gluten but no idea how much, but definitely not slices of bread. Not sure how much or how little that could affect my results.  My doctor didn’t mention anything about eating more gluten or eating bread. 
    • Scott Adams
      It sounds like you're navigating a lot right now, and it’s good that you’re being proactive about your health given your family history and symptoms. Based on the results you shared, the elevated IgA Gliadin and IgG Gliadin antibody levels could indicate an immune response to gluten, which may suggest celiac disease or gluten sensitivity. However, your tissue transglutaminase IgG (tTG-IgG) result is within the normal range, and your total IgA level is sufficient, meaning the test was likely accurate. While these results might point towards celiac disease, the diagnosis often requires further interpretation by your doctor, especially in light of your symptoms and family history. Your doctor may recommend an endoscopy with a biopsy to confirm the diagnosis, as blood tests alone are not always definitive. In the meantime, you might want to avoid making dietary changes until you discuss the results with your healthcare provider, as going gluten-free before further testing can interfere with an accurate diagnosis. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. This section covers your two positive results: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide)    
    • disneyfamilyfive
      Hello, I had celiac tests run a week ago and my doctor still has not viewed my results (I saw them on mychart 4 days ago), hoping to get a little insight.  Background: my grandma had been diagnosed celiac and my dad was recently diagnosed with a form of celiac (rash but no gi symptoms). I have been battling anemia and have some gi symptoms similar to celiac symptoms.  My test results came back as the following: TISSUE TRANSGLUTAMINASE IGG value 5 Normal <6 U/ml Iga - 287 Normal value: 70 - 400 mg/dL Iga, Gliadin - 119 Normal value: <20 Units Igg, Gliadin -75 Normal value: <20 UNITS Thank you in advance for your thoughts, experience or insight.    
    • Sicilygirl
      I am looking for words of encouragement because I have just had enough with this celiac diagnosis. I recently got diagnosed in October this year and its been hell let me tell you. Fist of all my doctor did not want to do the test saying that I was not Celiac because I did not have blood in my stool. Really??? I thankfully insisted that he do the blood work test just to make sure., since I was sick while in italy after eating both pasta and pizza and I knew something was wrong. I exhibited all the signs of gluten sensitivity, bloating and bad stomach pain which I never had ever after eating gluten.  After a week of waiting patiently for the test result it showed positive. I was both happy and floored at the same time. It has been an emotional roller coaster. Having to now work hard  to read labels constantly making sure they don't add gluten EVERYWHERE!! buying some comfort expensive gluten free foods to somehow make me feel like I am a normal person again. Hiring a dietician to put me on a diet to get my nutrients needed and to fix my villi that is destroyed. I feel sad, angry, depressed and why me?? is it an italian thing? I do not know. Anyways any feedback would be helpful. I am still extremely tired and have bowel symptoms and brain fog when do these go away?
    • trents
      JettaGirl, there are a number of serum antibody tests that can be ordered when diagnosing celiac disease. Unfortunately, most physicians will only order one or two. So, a negative on those one or two may or may not add up to seronegative celiac disease since had a "full celiac antibody panel" been ordered you may have thrown some positives. False negatives in the IGA antibody tests can also be caused by low total IGA count. So, a "total IGA" test should always be ordered along with the single most popular test, the tTG-IGA. Unfortunately, many physicians only order the tTG-IGA. And then there are other tests that are IGG based. A full celiac panel will include both the IGA tests and the IGG tests. Here is a primer:  And here's another article on seronegative celiac disease: https://pmc.ncbi.nlm.nih.gov/articles/PMC4586545/
×
×
  • Create New...