Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I See Things That Are Not Real Or There When I Wake Up Sometimes?


UnhappyCoeliac

Recommended Posts

Frixyy Newbie

I was seeing spiders right after i wake up.this thing was happening to me for years.

Last month i started to havestrange hallucination, every time i was seeing some man,watching me while sleeping.

Every time was the same face,and it was slowly dissapearing.I dont recognize it

It was so fcking scary,i hate it.I used some church oil,and its gone now.

Im 24,im not religious,i dont use drugs.okay sometimes i drink lol

kiddin.im not alcoholic

dude,pls contact me .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Frixyy Newbie

I mean UnhappyCoeliac ,add me.

and others who have similar stories :)

Birdie-Is-Tiny Rookie
I often wake up hearing music that isn't there. Have done this for many years. :)

Me too! I once walked around my house putting my ears to all the radios, stereos, and the tv because I was certain I could hear Madonna. Nothing was actually on it creeped me out! Also, why Madonna? lol

  • 1 month later...
cyberprof Enthusiast
ok, that is SO weird. I do the EXACT same thing! I do think it is worse when I get into gluten, but who knows. It's always when I'm waking up and its always a spider! If I'm on my back I see spider webs falling on me from the ceiling. I always flip the blankets up over my head to keep them from landing on me. :ph34r: It feels so real doesn't it? It used to happen all the time to me. And they do just fade away, not just disappear.

I haven't had one happen in awhile, but when it does happen its the weirdest thing. It's not like I'm dreaming about spiders or anything. I always thought it was just that I was opening my eyes while I was still asleep. Odd that its always spiders and/or webs though.

Anyway, I'm sorry I don't have an answer but I just thought I'd let you know it happens to me too.

Add me to the list. Mine are always spiders and/or webs. I haven't had one in a while so maybe they were related to gluten. I always thought it was part of my other sleep habits, like talking in my sleep and not remembering later or getting up, walking across the room and turning off the alarm and not remembering later.

  • 4 weeks later...
msmini14 Enthusiast

When I was younger I used to see people in the night and even talk to them. I was dreaming though, but it seemed so real. I havent ever seen any bugs thank god since I am so scared of them lol.

The spider issue has happened to my mom several times, she would wake up screaming and say she had seen a huge spider on the celing or wall. She has not been tested for celiac and probably never will but this has happened to her.

I hope it gets better for you, I wouldnt be able to handle something like that lol.

OliveBranch Apprentice

What a fascinating discussion!

I have had small episodes of sleep paralysis for many years, though not enough to worry about; in the months before I started considering that I might have celiac, I was having them more often, and, since being gluten-free, they've been much less frequent (though it happened this morning -- maybe because I read this thread last night!). I thought I'd share my experience for comparison:

When it happens, I'm aware that I am awake and can open and close my eyes, but cannot move. This morning I tried moving my arm, and could feel it moving, but could also see with my (presumably open) eyes that it was completely still. I don't usually see things that aren't there, though sometimes I feel that someone else is in the room, which is mildly frightening, though it has happened enough for me to know that it's an illusion. This almost always happens on mornings when I have gone back to sleep after my husband has gone to work, so I know I'm alone; however, these are also mornings when my sleep has been disrupted a tiny bit by his getting up earlier. The paralysis only lasts about a minute or so. I think it may happen because I don't properly wake up when my husband gets out of bed, but he says that I do talk to him as he's getting up--which I then don't remember. So I think that my 'sleep architecture' gets skewed in that moment -- 1 minute of being functional (talking, responding) but not mentally awake/aware when he gets up, and then, when I am ready to wake up, I'm aware for a minute without being functionally awake.

I do think it's probably all related to gluten, and that, as I keep on the gluten-free track, this will keep happening less and less... this is one symptom that I can follow with interest, instead of just desperation for it to disappear.

best,

Emily

P.S. On a wackier and non-celiac-related note, I have heard the theory that sleep paralysis could be behind many reports of alien abductions. These people are completely convinced that they are awake, and see and experience things (aliens) that aren't there, and then cannot believe that they were dream images and not real. Reading this thread, I am more convinced that this is the case. It's fascinating that so many of you all see spiders in this state, and it can't be a complete coincidence; there must be other recurring images that are shared by those who believe they've been abducted by aliens. (Maybe they are gluten intolerant, too! ;) ) The territory of sleep and dreams is endlessly fascinating....

Evie4 Apprentice
It use to be alot worse before diagnosis but as the title suggests basically occassionaly I wake up facing the wall and I am greeted by a giant spider that looks oh so real... heart immediate starts to race "wtf is going on" etc... keep staring......and... its disappears.

The first time this happen I screamed the house down. Now I wake up I see the spider but simply wait 30 seconds or so and it disappears.

I have no idea what this is but I assume it is some sort of very weirdo hallucination. I never ever see nice stuff either... I wouldNT mind if i woke up and it was a hot naked chick or something... but not it has to be a massive spider or some sort of snake head.

I simply ignore it and it goes away but the spider is pretty much the same every time and I just wonder where on earth it could come from... haven't had it since being gluten free but only been gluten free 3 days or so.

I have never told anyone this or nor do I plan too... honestly its is the sounds silly and I am the one experiencing it. I just wonder if it related to gluten or any other celiac has encountered it? ;)

It doesnt bother me a whole lot even when I am half asleep and I wake up these days I know its not real... but it doesnt stop it occurring when i wake up

Happens maybe once a month or so :angry:

What you are describing reminds me of my husbands "night terrors". He has read from a forum where people compare their stories--very interesting. In his case, they happen when he is under extreme stress/worry.

It freaked me out in the beginning, but the more it happened, the more I sense(d) it and wake him up before he gets to the part when he sits up in bed and starts freaking out. (Wimpering always seems to precede his awaking). I've questioned him immediately after some of these episodes and he can't always remember. He knows he was scared, but he can't always describe what he saw. I'm pretty certain the spider came up. Oh and, he has no known issues with gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 8 years later...
FaithM Newbie

That happens to me too, but instead of one big spider its multiple small ones. Everytime its a different spider, and it swarms me as soon as i open my eyes. My brain doesnt fully process if its real or not so i dont react too bad, just jump out of bed. It isnt always spiders though.. Sometimes ill wake up and see my mom in my room and tell her go get out or something and she not be there. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,382
    • Most Online (within 30 mins)
      7,748

    SherryH
    Newest Member
    SherryH
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jason Hi
      "Commit in a serious way to the gluten-free diet"....I've been Gluten-free since 2008. That's why I was so sick and had to take nausea and bloating medications during the gluten challenge week prior to the upper gastrointestinal endoscopy performed by the gastroenterologist. The "younger" doctor (the internal medicine who did the blood test), said the antibodies should remain in your system and you don't have to eat gluten (i.e., blood test last year). Hence my posting on finding a good doctor.
    • trents
      Well, the next step would logically be to commit in a serious way to the gluten-free diet and see if you have significant improvement in your symptoms. You should see improvement very soon with regard to GI issues and within weeks if there are other symptoms if gluten is indeed the issue. If there is significant improvement after going gluten free, that would tell you that you must avoid gluten and given the test results you already have, the logical conclusion is NCGS. As I said, an NCGS diagnosis is arrived at by first ruling out celiac disease, which seems to have been done. Then you could go back to that doctor with the other evidence component (improvement of symptoms with gluten-free eating) and ask if he/she would now be willing to declare an official dx of NCGS and give you a note. Or, you could book an appointment with another doctor who could look at your test results online, together with symptom improvement after going gluten-free, who might be more cooperative. I would seek out a younger practitioner as they are more likely to not be operating on outdated info about gluten disorders. By the way, NCGS is about 10x more common than celiac disease. 
    • Jason Hi
      Thank you for clarifying the terminology. Based on what my doctor told me, I understand that I do not have celiac disease, but that I’m “likely gluten sensitive.” From what I’ve researched, that places me in the category of Non-Celiac Gluten Sensitivity (NCGS)—as you mentioned, the key difference is that with NCGS there are no damaged villi and no positive celiac-specific antibodies. Either way, my treatment is the same: follow a gluten-free diet to avoid feeling sick. My understanding is that there are three main issues related to gluten: 1. Celiac Disease (produces specific antibodies and damages the small bowel) 2. Wheat Allergy (an immune response to wheat proteins) 3. Non-Celiac Gluten Sensitivity (negative celiac tests but still symptomatic from gluten) Regarding tax breaks or workplace accommodations, I came across a statement from celiac.org (https://celiac.org/gluten-free-living/federal-benefits/tax-deductions/) indicating that having any formal diagnosis—celiac disease or non-celiac gluten sensitivity—plus a prescription from a physician is typically required to qualify. In my case, my goal is to avoid feeling sick and secure documentation for both work and potential tax benefits. If I do pursue further tests or get more detailed lab results, I’ll share those here to confirm whether the doctor is suggesting celiac disease or truly NCGS. But as of now, the doctor’s comments lead me to believe I fall under NCGS.
    • trents
      Welcome to the forum, @Jason Hi! First, we need to deal with some squishy terminology. There are two terms which are, unfortunately, used interchangeably and indiscriminately to refer to two different gluten-related disorders. The two terms are "gluten sensitive" and "gluten intolerant". Because these terms are used carelessly we are not certain what you mean when you say your doctor told you that your are likely "gluten sensitive". The actual medical terms for these two gluten disorders are: "celiac disease" and "Non Celiac Gluten Sensitivity" or NCGS for short. The test you had run by the GI doc are intended to check for celiac disease. There is no test for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out.  Because these terms are used by many people interchangeably I'm not sure that your doctor, after running the tests, was intending for you to understand that he believes you have celiac disease or NCGS. So, to clear up the confusion, can you post the results of your blood test, not just the test scores but the reference ranges used by the lab analyzing the blood sample to determine negative/positive or normal/high? The difference between celiac disease and NCGS is that celiac disease damages the lining of the small bowel over time whereas NCGS does not. However, they may share many of the same gastro intestinal symptoms. Both need to be addressed with a gluten free diet but the tax breaks and work place accommodations you speak of would likely only accrue from an official celiac disease diagnosis. So, can you post the blood test results along with the reference ranges and also the endoscopy report. We can help you decipher whether or not the doc was suggesting you may have celiac disease or NCGS if you will do that.
    • Jason Hi
      I recently had an upper gastrointestinal endoscopy and blood tests, and my gastroenterologist concluded that I’m “likely gluten sensitive.” However, they wouldn’t provide a prescription or a formal doctor’s note—just a test result saying I’m likely gluten sensitive, along with the advice to avoid gluten. I’m frustrated because I know that proper documentation could help with tax breaks for gluten-free foods and even workplace accommodations. I’m also not willing to go through another gluten challenge—it was rough! Does anyone have recommendations for a doctor (U.S. based preferably Texas) who is more understanding and willing to provide the necessary documentation for gluten sensitivity? I’d really appreciate any suggestions!
×
×
  • Create New...