Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I See Things That Are Not Real Or There When I Wake Up Sometimes?


UnhappyCoeliac

Recommended Posts

Frixyy Newbie

I was seeing spiders right after i wake up.this thing was happening to me for years.

Last month i started to havestrange hallucination, every time i was seeing some man,watching me while sleeping.

Every time was the same face,and it was slowly dissapearing.I dont recognize it

It was so fcking scary,i hate it.I used some church oil,and its gone now.

Im 24,im not religious,i dont use drugs.okay sometimes i drink lol

kiddin.im not alcoholic

dude,pls contact me .


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Frixyy Newbie

I mean UnhappyCoeliac ,add me.

and others who have similar stories :)

Birdie-Is-Tiny Rookie
I often wake up hearing music that isn't there. Have done this for many years. :)

Me too! I once walked around my house putting my ears to all the radios, stereos, and the tv because I was certain I could hear Madonna. Nothing was actually on it creeped me out! Also, why Madonna? lol

  • 1 month later...
cyberprof Enthusiast
ok, that is SO weird. I do the EXACT same thing! I do think it is worse when I get into gluten, but who knows. It's always when I'm waking up and its always a spider! If I'm on my back I see spider webs falling on me from the ceiling. I always flip the blankets up over my head to keep them from landing on me. :ph34r: It feels so real doesn't it? It used to happen all the time to me. And they do just fade away, not just disappear.

I haven't had one happen in awhile, but when it does happen its the weirdest thing. It's not like I'm dreaming about spiders or anything. I always thought it was just that I was opening my eyes while I was still asleep. Odd that its always spiders and/or webs though.

Anyway, I'm sorry I don't have an answer but I just thought I'd let you know it happens to me too.

Add me to the list. Mine are always spiders and/or webs. I haven't had one in a while so maybe they were related to gluten. I always thought it was part of my other sleep habits, like talking in my sleep and not remembering later or getting up, walking across the room and turning off the alarm and not remembering later.

  • 4 weeks later...
msmini14 Enthusiast

When I was younger I used to see people in the night and even talk to them. I was dreaming though, but it seemed so real. I havent ever seen any bugs thank god since I am so scared of them lol.

The spider issue has happened to my mom several times, she would wake up screaming and say she had seen a huge spider on the celing or wall. She has not been tested for celiac and probably never will but this has happened to her.

I hope it gets better for you, I wouldnt be able to handle something like that lol.

OliveBranch Apprentice

What a fascinating discussion!

I have had small episodes of sleep paralysis for many years, though not enough to worry about; in the months before I started considering that I might have celiac, I was having them more often, and, since being gluten-free, they've been much less frequent (though it happened this morning -- maybe because I read this thread last night!). I thought I'd share my experience for comparison:

When it happens, I'm aware that I am awake and can open and close my eyes, but cannot move. This morning I tried moving my arm, and could feel it moving, but could also see with my (presumably open) eyes that it was completely still. I don't usually see things that aren't there, though sometimes I feel that someone else is in the room, which is mildly frightening, though it has happened enough for me to know that it's an illusion. This almost always happens on mornings when I have gone back to sleep after my husband has gone to work, so I know I'm alone; however, these are also mornings when my sleep has been disrupted a tiny bit by his getting up earlier. The paralysis only lasts about a minute or so. I think it may happen because I don't properly wake up when my husband gets out of bed, but he says that I do talk to him as he's getting up--which I then don't remember. So I think that my 'sleep architecture' gets skewed in that moment -- 1 minute of being functional (talking, responding) but not mentally awake/aware when he gets up, and then, when I am ready to wake up, I'm aware for a minute without being functionally awake.

I do think it's probably all related to gluten, and that, as I keep on the gluten-free track, this will keep happening less and less... this is one symptom that I can follow with interest, instead of just desperation for it to disappear.

best,

Emily

P.S. On a wackier and non-celiac-related note, I have heard the theory that sleep paralysis could be behind many reports of alien abductions. These people are completely convinced that they are awake, and see and experience things (aliens) that aren't there, and then cannot believe that they were dream images and not real. Reading this thread, I am more convinced that this is the case. It's fascinating that so many of you all see spiders in this state, and it can't be a complete coincidence; there must be other recurring images that are shared by those who believe they've been abducted by aliens. (Maybe they are gluten intolerant, too! ;) ) The territory of sleep and dreams is endlessly fascinating....

Evie4 Apprentice
It use to be alot worse before diagnosis but as the title suggests basically occassionaly I wake up facing the wall and I am greeted by a giant spider that looks oh so real... heart immediate starts to race "wtf is going on" etc... keep staring......and... its disappears.

The first time this happen I screamed the house down. Now I wake up I see the spider but simply wait 30 seconds or so and it disappears.

I have no idea what this is but I assume it is some sort of very weirdo hallucination. I never ever see nice stuff either... I wouldNT mind if i woke up and it was a hot naked chick or something... but not it has to be a massive spider or some sort of snake head.

I simply ignore it and it goes away but the spider is pretty much the same every time and I just wonder where on earth it could come from... haven't had it since being gluten free but only been gluten free 3 days or so.

I have never told anyone this or nor do I plan too... honestly its is the sounds silly and I am the one experiencing it. I just wonder if it related to gluten or any other celiac has encountered it? ;)

It doesnt bother me a whole lot even when I am half asleep and I wake up these days I know its not real... but it doesnt stop it occurring when i wake up

Happens maybe once a month or so :angry:

What you are describing reminds me of my husbands "night terrors". He has read from a forum where people compare their stories--very interesting. In his case, they happen when he is under extreme stress/worry.

It freaked me out in the beginning, but the more it happened, the more I sense(d) it and wake him up before he gets to the part when he sits up in bed and starts freaking out. (Wimpering always seems to precede his awaking). I've questioned him immediately after some of these episodes and he can't always remember. He knows he was scared, but he can't always describe what he saw. I'm pretty certain the spider came up. Oh and, he has no known issues with gluten.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 8 years later...
FaithM Newbie

That happens to me too, but instead of one big spider its multiple small ones. Everytime its a different spider, and it swarms me as soon as i open my eyes. My brain doesnt fully process if its real or not so i dont react too bad, just jump out of bed. It isnt always spiders though.. Sometimes ill wake up and see my mom in my room and tell her go get out or something and she not be there. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,257
    • Most Online (within 30 mins)
      7,748

    Gabs
    Newest Member
    Gabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.