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Dapsone Revisited

FranDaMan

By FranDaMan
in Dermatitis Herpetiformis

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FranDaMan Apprentice
FranDaMan
Posted

Since Dapsone does work so well on DH I guess it is an inevitable evil. My concern is long term usage and effects. I know some of you have been on it for long stretches with presumably little or no ill effects. Others have had anemia and other health issues from it. I'm currently on 100mg and will presumedly be on that dose for another 1 1/2 months. I don't know if that is a lot or a little or what.

So I guess the question is if there is a "maintenance" dose that one shoots for or if after cessation of symptoms you quit it and stay gluten free and use for flares or whatever.

The side effects scare the heck out of me and I'm wondering if there is a one size fits all answer or what.

Thanks in advance.

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elefky Apprentice
elefky
Posted

I've been on Dapsone for 12 years. No problems. Doctor runs blood tests every 6 months. I take 50mg per day.

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