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Recent Activity
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- Rogol72 replied to sillyyak52's topic in Coping with Celiac Disease5
Family education
Hi @sillyyak52, I empathize with you. I would suggest showing them pictures of "dermatitis herpetiformis" which is a complication of undiagnosed/untreated Coeliac Disease. You can find them on Google images. It's pretty alarming to see and it may be the wake up call they need to visually understand what gluten can really do to the body. In this case... -
- AndiOgris replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
False blood test positive?
Hi Trents, Thanks for your response! And yes, the TTG-IGA was the only test done. We did some more general blood tests at the time of the initial celiac test in 2023, but none showed any deficiencies usually associated with celiac disease. I'll mention the new gluten challenge guidelines to my doctor, perhaps he will ask me to do the test again... -
- captaincrab55 replied to sillyyak52's topic in Coping with Celiac Disease5
Family education
Welcome sillyyak52, I'm not sure of your age or if you live with your parents. Is there a nurse in your family or friend of the family that may be able to explain your diagnoses? You can get a second opinion by taking your lab results to another GI Doctor. Good Luck! -
- trents replied to SaiP's topic in Coping with Celiac Disease11
Dangerously underweight, Perfect gluten free and insomnia
So, you have three symptoms of a gluten-related disorder: weight loss, brain fog and lose stools. Of the three, the lose stools that firm up when you cut back on gluten is the only symptom for which you have reasonable cause to assume is connected to gluten consumption since the other two persist when you cut back on gluten. But since you do not have any... -
- trents replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
False blood test positive?
Welcome to the forum, @AndiOgris! Recently upgraded guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten for at least 2 weeks to the day of testing to ensure valid testing, either for the antibody testing or the endoscopy/biopsy. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. So...
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