Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Your Parents Think You Are Crazy?


Lexi

Recommended Posts

Lexi Enthusiast

Wow - I am so frustrated! My parents just spent the weekend with my family because I was very sick, and they were trying to help out with my kids. Oh, what a big help that was! My Parents kept letting me know that they basically think I am crazy because I insist on using my own set of pans and utensils. Then my Mom will always try to cook something for me that I can't have, and I have to keep explaining EVERYTHING! They are supportive of me with Celiac Disease in itself, but they just can't seem to get all the crazy things that go along with it. I also have Candida, and they think I need to go to more Doctors to get second opinions because they have never heard of such a crazy thing. I wish there was some kind of class that family members could attend to understand the life of a Celiac. The hardest part is that I end up having a miserable time when they come to visit now. Anyone else go through this???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Yup!

My older parents can't grasp the extenuating circumstances, either. Frustrating- I don't even try anymore.

It's hard to imagine walking in someone else's moccasins, I guess...

lisa

pennypicker Newbie

Absolutely.

I saw my parents for the first time post-Dx right around Christmas. They didn't intend to be rude, but because of a total lack of understanding, it appeared that way. They were most confused about cc and poorly labeled products. Educating some people, especially people I've known for a long time, is very difficult for me to do. I think it's because I used to be able to eat anything I wanted with them, and now I can't and it doesn't make sense to them. Counter intuitively, people I've met post-Dx seem to be more accepting, because this is the only way they've ever seen me.

NorthernElf Enthusiast

Yeah, I guess my folks go both ways too - supportive and then...not so much.

A couple of visits ago (they live 6 hours away) my mom bough gluten-free pasta and chips and such for me, which I thought was nice. At Christmas she had a lasagna made for us to eat when we arrived - NOT gluten-free. Very frustrating since we got there at 7 and I was hungry...but I do travel with my own food. Our last meal while I was there was store bought chicken wings (not gluten-free) and frozen fries. I sat there with my salad and toasted gluten-free bread. My mom actually said I was making her feel guilty. Oh, I so bit my tongue (wanted to say that she should !!). The sad part - I think the comment was actually more about me eating a healthy meal versus a fatty one, nothing to do with gluten. <_<

I'm spending a week with my inlaws in March - I'm bringing a lot of my own food and there is a Whole Foods near them so I will be shopping there ! My MIL is actually better with the diet than my mother.

I just think that they have fed me gluten all my life and don't get that I can't have it now - I don't live near them. My folks are also always on diets (weight loss) & I think they don't get a NECESASSARY diet at all.

FWIW, my DH was upset at my folks and their lack of support - he would never say anything directly to them (neither did I). I figure they'll get it eventually because I always eat gluten-free. DH certainly gets it - he knows what I'm like when I'm sick !!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748

    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Your doctor may or may not be well-informed about the issue you raise so I would not agree that he/she would necessarily be the best person to rely on for a good answer. The question actually raises two issues.  The first issue has to do with cross contamination and individual sensitivity as dublin55 alluded to. Oats and wheat are both cereal grains that are typically grown in the same areas, transported in the same trucks, stored in the same silos and processed on the same equipment. So, there is usually significant CC (Cross Contamination). With gluten free oats, there is some effort to separate these processes that would otherwise cause significant CC and "gluten free" oats should meet the FDA requirement of not exceeding 20 ppm of gluten. But this 22 ppm standard is not strict enough for more sensitive celiacs. "Certified gluten free" oats (and other food products are held to a stricter standard, that being not exceeding 10 ppm. But even that is too much gluten for some super sensitive celiacs and will cause a reaction. The second issue with oats has nothing to do with gluten per se but with the protein found in oats called "avenin". Avenin has a structure similar enough to gluten to cause a reaction in some celiacs. This is called "cross reaction" not to be confused with "cross contamination" discussed in the previous paragraph. So, for whatever reason, whether cross contamination or cross reaction, it is estimated that about 10% of celiacs react to oats.
    • dublin555
      Karen, that sounds really tough. You must find both RA management and your new gut problems extremely irritating to handle at once. Together with your pain relief you still experience ongoing bloating complications that drag on without a resolution. Of course visiting a doctor to obtain a proper celiac diagnostic evaluation becomes necessary when no formal diagnosis has been received. Your journey toward recovery has been lengthy yet it brings comfort to notice your progress during this time. This support group offers you valuable help because there are people experiencing the same concerns with you. Working through your issues will be easier.
    • dublin555
      Yeah, it’s tricky. I’ve seen a lot of mixed opinions too. Some folks can tolerate certified gluten-free oats without a problem, but others with celiac still react. Honestly, it really depends on your sensitivity. Your doctor would be the best person to ask about your specific situation.
    • Matt13
      Hi guys! Can we eat them an can they cause villious atrophy? I saw multiple articles about it an they have very different opinions… so what did your doctor told you? Thanks!
    • robingfellow
      I can't edit my posts, but I forgot to note as well: I also had low iron and vitamin d according to my blood tests, despite already taking supplements for each
×
×
  • Create New...