Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Any Experiences With Osteovalin?


chasbari

Recommended Posts

chasbari Apprentice

I just got my bone density numbers and have osteopenia. My metabolic panel was good otherwise. I am looking for supplements for D Calcium and Magnesium because I am sticking with strict paleo as I am not tolerating much of anything else at this point. I have dropped nearly 20 pounds in the last 6 weeks and have upped my protein intake in hopes of slowing that down but now figure I better start with the supplements. I read an article in Dr. Gott's ColumnOpen Original Shared Link

and have started to check this out as I anticipate my doctor wanting to put me on something prescription strength.

I have a tendency to fight using pharmaceutical solutions as they have caused me more problems with my RA in the past. I definitely want to stay away from drugs like Boniva because of the osteonecrosis issues and am wondering if anyone has had any experiences with this particular product. I made my first call to a company today and have requested information on gluten free and soy free status on this particular product. I hope to hear from them by Monday.

Any help would be appreciated as to suggestions.

Thanks,

Chuck

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Why would you not choose to adjust your diet and just let your bones rebuild themselves?

Link to comment
Share on other sites
ravenwoodglass Mentor

There are things you can do that bypass the drugs, I would try those first. Weight bearing excercise on a daily basis and supplementing with vit D3, calcium and magnesium would be my first step. Also if you are newly diagnosed your system will start absorbing nutrients after you have healed which also should help.

Link to comment
Share on other sites
Jestgar Rising Star
There are things you can do that bypass the drugs, I would try those first. Weight bearing excercise on a daily basis and supplementing with vit D3, calcium and magnesium would be my first step. Also if you are newly diagnosed your system will start absorbing nutrients after you have healed which also should help.

much better answer. What she said! :P

Link to comment
Share on other sites
chasbari Apprentice
Why would you not choose to adjust your diet and just let your bones rebuild themselves?

That is why I am looking at getting information on this supplement. I have already adjusted my diet by first going gluten-free and then going further by going strict Paleo to great success as to getting my RA to back down and my gut to settle. The thing with my safe foods list at this point, coupled with the osteopenia numbers on the bone scan and all my dental problems I have been dealing with throughout the long long course of finally getting to a diagnosis after all these years is that I am concerned about calcium and vitamin D sourcing as I am not having any dairy at all in my present diet. I have a basement full of prototype exercise equipment that is very much weight bearing but am finding that my tolerance for any musculoskelatal stress is quite low. I have to keep in mind that four months ago I could barely get out of a bed or a chair and that a flight of steps was enough to set me back half a day. I am able to walk and even run now which is quite miraculous. I am, however, concerned about lack of dietary intake for calcium because of Paleo and feel the need to safely supplement this while my gut is starting to heal. I know that it is a long process and I also know that the damage itself has compromised my absorption. I am absolutely against the idea of Fosemax or Boniva and have been working hard at dissuading my relatives from taking any.. My sister just started it for osteopenia and I want her to find an alternative. I was just wondering if anyone had an experience with OsteoValin in order to know if there were any issues with gluten or soy with this. The active ingredients are primarily minerals and flavinoids that help the body with calcium uptake but this is an over the counter non prescription supplement. I am just wanting to thoroughly vet this before I consider even putting it in my body. I have resisted all the evil drugs my rheumatologist wanted to put me on over the years to mask the symptoms of my RA because I knew at the gut level there was something more going on. the fact that it has responded so well to my celiac treatment, I believe, helps prove that point. Sorry about being long winded but I guess I was not properly asking for what I was asking for...any specific information or experiences with Osteovalin.

Thanks,

Chuck

Link to comment
Share on other sites
ravenwoodglass Mentor

I don't have experience with this but I am giving you a link to the PDR section on supplements which will let you know the side effects and cautions for the components of the drug. Do be aware it seems that all three major componets of this have Diarrhea as a side effect for some people and there is a drug interaction warning for at least 2 of them. .

Open Original Shared Link

Link to comment
Share on other sites
chasbari Apprentice
I don't have experience with this but I am giving you a link to the PDR section on supplements which will let you know the side effects and cautions for the components of the drug. Do be aware it seems that all three major componets of this have Diarrhea as a side effect for some people and there is a drug interaction warning for at least 2 of them. .

Open Original Shared Link

Well, that is something I don't want to encourage anymore! I think I will just stick to some basic D3, calcium and magnesium supplementation for the time being and see if that doesn't help. Even though my iron numbers aren't of concern I have found that spinach the last few days has made things much better. I don't feel as strong as Popeye though..maybe it's because I don't have a corncob pipe.

Thanks for the link.

Chuck

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Well, that is something I don't want to encourage anymore! I think I will just stick to some basic D3, calcium and magnesium supplementation for the time being and see if that doesn't help. Even though my iron numbers aren't of concern I have found that spinach the last few days has made things much better. I don't feel as strong as Popeye though..maybe it's because I don't have a corncob pipe.

Thanks for the link.

Chuck

I think your making the right choice. Glad I was able to help. Also glad I found that link, which I have bookmarked as it may come in handy for the future.

Something you may also find helpful is to ask your doctor for a referral to a physical therapist. They can be really helpful in evaluating and forming an excercise prescription that can help you get back to where you want to be. I have found them to be really helpful for a lot of different issues.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,813
    • Most Online (within 30 mins)
      7,748

    Zyjerrika butler
    Newest Member
    Zyjerrika butler
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      It will not undo all of the healing.  If it did, diagnosis of celiac disease would be much easier!  To have enough damage to see on an endoscopy requires several weeks of gluten ingestion. 
    • Jean Shifrin
      HI, I am new to this and am still in 'repair' mode, which I know will take time. But I'm wondering if anyone knows what happens if you ingest gluten after you have made a lot of progress in repairing your villi. Does anyone know if you just have a short-term issue? Or does an accidental ingestion of gluten derail all the work you've done and set you back to square one? Thanks.
    • Scott Adams
      Hydrolyzed wheat is wheat protein that has been broken down into smaller components through a chemical or enzymatic process called hydrolysis. This ingredient can be found in various products, including cosmetics, personal care items, and some food products. For people with celiac disease, hydrolyzed wheat is generally not safe to consume because it still contains gluten proteins, even in its broken-down form. Though hydrolysis reduces the size of these proteins, it doesn’t fully remove the components that trigger an autoimmune response in people with celiac disease. In food products, hydrolyzed wheat protein still poses a risk and should be avoided. With regard to the McDonald's French fries, the total amount of hydrolyzed wheat in the flavoring is small, and the amount that ends up in an order of fries is even smaller, and likely below 20ppm. McDonald’s states that the fries are gluten-free by ingredient and free from cross-contact with gluten-containing foods in their dedicated fryers. Third-party tests and statements by McDonald's confirm gluten levels are below the FDA threshold for gluten-free labeling (20 parts per million or less). So, while McDonald’s USA fries may be gluten-free based on testing, some people with celiac disease still approach them cautiously due to the past concerns and individual sensitivities.
    • trents
      Here is an excerpt from this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC82695:   Studies have shown that various peptidases of fungal, plant, animal, or bacterial origin are able to hydrolyze gluten into harmless peptides. According to SDS‐PAGE pattern, proteolytic enzymes hydrolyze gliadins (Heredia‐Sandoval et al., 2016; Scherf et al., 2018; Socha et al., 2019; Wei et al., 2018, 2020). Bacterial peptidase (Krishnareddy & Green, 2017), fungal peptidase (Koning et al., 2005), and prolyl endopeptidases (PEPs) (Amador et al., 2019; Janssen et al., 2015; Kerpes et al., 2016; Mamo & Assefa, 2018) thoroughly degrade gliadin fractions to decrease gluten concentration and influence celiac disease. Aspergillus niger derived PEP (AN‐PEP) were assessed in clinical cases for their impact on modifying immune responses to gluten in celiac patients (Lähdeaho et al., 2014). Guerdrum and Bamforth (2012) reported that PEP addition in brewing technology decreased the prolamin and all of the identified immunopathogenic gluten epitopes in beer production (Akeroyd et al., 2016). On the contrary, many of the recent investigations which employed enzyme‐linked immunosorbent assay (ELISA), mass spectrometry, and Western blot analysis reported that PEP did not thoroughly destroy the whole gluten proteins (Allred et al., 2017; Colgrave et al., 2017; Fiedler et al., 2018; Panda et al., 2015), which indicates that beers treated with PEP are not safe for celiac disease patients. Anecdotally, this excerpt supports what we hear from the celiac community on this forum with regard to "gluten free" hydrolyzed wheat products and that is that some still react to them while many don't.
    • Scott Adams
      There aren't good studies that have been done on celiac disease remission, and I'm going from a distant memory of an older post here, but the longest remission that Dr. Stefano Guandalini from the University of Chicago Celiac Disease Center has witnessed was ~10 years, then the symptoms of celiac disease and the damage came back. The real issue though, is that you still could increase your risk of various related diseases and disorders by eating gluten, but again, celiac disease remission has not been studies enough to know what health risks you might face.
×
×
  • Create New...