Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroducing Other Foods


horsegirl

Recommended Posts

horsegirl Enthusiast

I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

Anybody??

mushroom Proficient
I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.

I did testing through Diagnos-Techs which showed sensitivity to eggs and casein as well as the already known soy. I tried eliminating eggs and casein (I wa at that time eating only yogurt and cheese) and had never felt worse since going gluten free. I gave it a three-week trial and then went back to eggs, yogurt and cheese because I had never noticed intestinal issues with those before (I have now learned that casein may be bad for my RA, but have not given it up because any day I start without yogurt always ends up being a bad day (even if I take a probiotic supplement).

I had been lactose intolerant for years, but after 15 months gluten free I can now tolerate the milk in a couple of capucchinos without problem. Haven't tried anything else yet. I think it is pretty much an individual thing, challenge it and see what happens. I know myself that I will never be able to do soy as this has been a longstanding intolerance predating even the lactose intolerance.

So, what I am saying in a roundabout way is that since most of the lactose in yogurt and cheese (especially hard cheese) has been predigested, that would be where to start. Do it slowly and gradually and hopefully it will go okay. You will soon know what you can tolerate.

Happy eating!

AliB Enthusiast

I would second Mushroom's comment on starting slowly. The problem with a lot of foods is a lack of enzymes to digest them and many of those are produced in the gut. A damaged gut will have difficulty producing them which results in our inability to digest properly.

The thing is it is a chicken and egg situation. Is it the lack of enzymes resulting in undigested food that damages the gut, or is it certain types of food that damages the gut resulting in a loss of enzyme production?

I have to say that my preferred choice is the latter. So much of our Western diet is based around cooked food and cooking destroys the enzymes. A lot of the food is also 'dead' food - calorie-rich, but nutrient-poor and that also impacts. Add into that the pasteurisation of milk - an odd cup of cocoa now and again would undoubtedly be fine but all the milk is 'cooked' and all the beneficial enzymes in it, that would help us digest it, are destroyed. Drop the chemical additives and processing into the mix and we have a recipe for gut damage and depletion of our enzyme 'bank'.

Without enough enzymes for digestion we can't get enough nutrients, without enough nutrients the enzymes we do have can't work properly and the scene is set for disease. Without the protection of enough enzymes for repair, digestion, immune support and metabolic processes pathogens get their feet under the table.

Eggs are fine in general (real free-range are much better), but I would suggest you do some research on milk before you decide to start it again, particularly if your only source is pasteurised. Yogurt you can get away with as it is fermented and full of healthy bacteria, as long as it is live, plain and not full of sugar! You can always add fresh fruit to it.

Just bear in mind that casein along with gluten, soy and corn are all used for making glue - some of them strong enough to adhere metal to metal! Without the right enzymes the body can't break them down and it is little wonder that they 'gum up the works'!

chatycady Explorer
Anybody??

Have you tried the 24 hour yogurt? I would start there - slowly. Baby steps

horsegirl Enthusiast

What's that? I've never heard of it...

AliB Enthusiast

It is home-made yogurt cultured for 24 hours rather than the 6 - 8 hours that commercial yogurt is usually cultured for. The reason for the long culturing is that then most, if not all of the lactose gets pre-digested by the bacteria before you eat it, the casein structure is changed into a form that is more easily digestible, and you also get a much greater quantity of bacteria. 24 hours is the norm - it should not be left for any more than 30 hours at the most before refrigerating.

Most who are lactose/casein intolerant can cope ok with the yogurt, although some prefer to make it from goats or sheep milk or even coconut milk for a while until they are more healed, if they are really sensitive to dairy.

On the 'breaking the vicious cycle' (SCD) website is a list of 'legal' and 'illegal' foods - in other words, foods that the gut will generally cope with after a while and those it won't. In amongst the list are some cheeses - you could try one or two of those and see how you go. Although I have been on the SCD and gluten-free for nearly a year I still avoid dairy as it gives me C and I can do without that as I really don't want to go backwards now I am getting better! I am ok with the yogurt though and can also tolerate a bit of the Total brand commercial yogurt now if I am not in the mood for making the 24-hour one.

Just out of interest I use coconut milk and cream instead of dairy and find that coconut cream and some of the yogurt that has been dripped to make it thicker mixed together makes a yummy topping instead of dairy cream - it tastes not unlike creme fraiche but with a slight coconut twist. Added to Naomi Devlin's Vanilla Pumpkin Pie it is the tops. Mmm-mm.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer
What's that? I've never heard of it...

oops! Sorry I thought I was in the SCD board......

horsegirl Enthusiast

Thanks for all of the information. It gave me some good things to think about. It's hard because prior to the Enterolab results, I didn't have any awareness that things other than gluten & soy were bothersome to me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Healthierbody2026's topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    2. - Healthierbody2026 posted a topic in Introduce Yourself / Share Stuff
      1

      New at gluten sensitivity

    3. - knitty kitty replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

    4. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      12

      Related issues

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,462
    • Most Online (within 30 mins)
      7,748

    jjwejackso
    Newest Member
    jjwejackso
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @Healthierbody2026! Just let me check something with you because there is still much confusion in the general population regarding the terminology associated with gluten disorders. You say you have recently been diagnosed with gluten sensitivity. Do you mean NCGS (Non Celiac Gluten Sensitivity) or Celiac disease (aka, "gluten intolerance")? The symptoms of these two conditions overlap. Celiac disease has an autoimmune base and so, there are tests that can be run to detect antibodies in the blood that are produced. Celiac disease does damage to the small bowel lining because of the inflammation present from the autoimmune attack. This is not the case with NCGS for which there are no tests. Celiac disease must first be ruled out in order to arrive at a diagnosis of "gluten sensitivity". 
    • Heatherisle
    • Healthierbody2026
      Hi I was recently diagnosed with gluten sensitivity I’m very new at this and trying learn everything I can about everything dealing with this any advice suggestions would be appreciated 
    • knitty kitty
      I take Niacin, bilberry, Omega threes, zinc, selenium, and Vitamins C and A for eye health, skin health and digestive tract health.  The skin, digestive system and eyes are all derived from basically the same sort of cells.  Niacin is extremely important to keeping these tissues healthy.    Niacin has be shown to prevent cataracts and improve eye health.  Niacin is turned into tryptophan which is necessary to heal the digestive tract.  Tryptophan is used to make Serotonin, a very important neurotransmitter in mood regulation.  Those with Niacin insufficiency become irritable and easily upset, angry, even. Niacin improves skin health.  The flushing of Niacin opens the smallest blood vessels in the skin so that waste products can more easily be removed.  I have Dermatitis Herpetiformis.  Niacin helps drain away those built up antibodies in the blisters and improve skin health.   Bilberry contains lutein and zeaxanthin and other anthocyanins,  potent antioxidants that help protect the eyes from macular degeneration and cataracts.  Bilberry has sGLT1 and GLUT2 which help to lower glucose levels by removing excess glucose from the bloodstream.  High blood glucose levels are bad for eye health.   Omega Threes are important to provide relief in dry eyes.  You are familiar with how oil floats on water.  Same thing happens with eyes.  Omega threes provide the oily layer that protects water from evaporating from the eyes causing dry eyes.  Omega threes in olive oil, sunflower seed oil,  and flaxseed oils will help improve dry eyes. Vitamin A and Riboflavin B2 are important in this function as well.   None of the medications I was given improved my dry eyes.  I increased my Omega threes and Vitamin A, and had improvement very quickly. Selenium and zinc are important in skin and eye barrier functions, too, and are important to preventing infections. When I take 100 mg of Niacin every three hours (but not more than 500 mg/day), my skin and eye health improves.  If one is deficient in Niacin, the flushing effects may be uncomfortable, but ride it out, continue taking Niacin and the flushing goes away as niacin stores inside cells are repleted.  When flushing, don't scratch!  Use pressure applied over a bigger area above the itch.  I wrap up in a towel or blanket to create the counter pressure.  The flushing goes away the longer one takes Niacin.  Don't use Niacinamide (the non flushing form of Niacin).   Other vitamins that improve eye health are Vitamin E and Pyridoxine B6 and Thiamine B1.  Most Vitamin E sold is derived from wheat germ, so find another source of Vitamin E.  I used Evening Primrose oil, also a source of healthy Omega threes and helps with female problems like perimenopause  and menopause symptoms. Do be aware that antifungals and antibiotics (as are frequently prescribed) destroy Thiamine.  Immunosuppressive drugs can suppress production of tTg antibodies.  Supplementing with thiamine above the RDA is safe and nontoxic.  RDA were set as the lowest amount to prevent illness.  Optimal health is seen in higher amounts.   Do talk to your doctor and dietician about supplementing essential nutrients.   References: https://pubmed.ncbi.nlm.nih.gov/39183990/ https://pubmed.ncbi.nlm.nih.gov/41156490/ https://pmc.ncbi.nlm.nih.gov/articles/PMC7602486/
    • Jmartes71
      Thankyou. I have cyclosporine 0.05% OP single use drops and Erythromycin ophth ointment 3.5 Gmail for eyes. Dermatologist gave Pimecrolimus cream 1% and Clobetasol Propoonate USP 0.05% it doesn't help at all.i do see a difference taking Yarrow Pom but its too expensive!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.