Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroducing Other Foods


horsegirl

Recommended Posts

horsegirl Enthusiast

I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

Anybody??

mushroom Proficient
I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.

I did testing through Diagnos-Techs which showed sensitivity to eggs and casein as well as the already known soy. I tried eliminating eggs and casein (I wa at that time eating only yogurt and cheese) and had never felt worse since going gluten free. I gave it a three-week trial and then went back to eggs, yogurt and cheese because I had never noticed intestinal issues with those before (I have now learned that casein may be bad for my RA, but have not given it up because any day I start without yogurt always ends up being a bad day (even if I take a probiotic supplement).

I had been lactose intolerant for years, but after 15 months gluten free I can now tolerate the milk in a couple of capucchinos without problem. Haven't tried anything else yet. I think it is pretty much an individual thing, challenge it and see what happens. I know myself that I will never be able to do soy as this has been a longstanding intolerance predating even the lactose intolerance.

So, what I am saying in a roundabout way is that since most of the lactose in yogurt and cheese (especially hard cheese) has been predigested, that would be where to start. Do it slowly and gradually and hopefully it will go okay. You will soon know what you can tolerate.

Happy eating!

AliB Enthusiast

I would second Mushroom's comment on starting slowly. The problem with a lot of foods is a lack of enzymes to digest them and many of those are produced in the gut. A damaged gut will have difficulty producing them which results in our inability to digest properly.

The thing is it is a chicken and egg situation. Is it the lack of enzymes resulting in undigested food that damages the gut, or is it certain types of food that damages the gut resulting in a loss of enzyme production?

I have to say that my preferred choice is the latter. So much of our Western diet is based around cooked food and cooking destroys the enzymes. A lot of the food is also 'dead' food - calorie-rich, but nutrient-poor and that also impacts. Add into that the pasteurisation of milk - an odd cup of cocoa now and again would undoubtedly be fine but all the milk is 'cooked' and all the beneficial enzymes in it, that would help us digest it, are destroyed. Drop the chemical additives and processing into the mix and we have a recipe for gut damage and depletion of our enzyme 'bank'.

Without enough enzymes for digestion we can't get enough nutrients, without enough nutrients the enzymes we do have can't work properly and the scene is set for disease. Without the protection of enough enzymes for repair, digestion, immune support and metabolic processes pathogens get their feet under the table.

Eggs are fine in general (real free-range are much better), but I would suggest you do some research on milk before you decide to start it again, particularly if your only source is pasteurised. Yogurt you can get away with as it is fermented and full of healthy bacteria, as long as it is live, plain and not full of sugar! You can always add fresh fruit to it.

Just bear in mind that casein along with gluten, soy and corn are all used for making glue - some of them strong enough to adhere metal to metal! Without the right enzymes the body can't break them down and it is little wonder that they 'gum up the works'!

chatycady Explorer
Anybody??

Have you tried the 24 hour yogurt? I would start there - slowly. Baby steps

horsegirl Enthusiast

What's that? I've never heard of it...

AliB Enthusiast

It is home-made yogurt cultured for 24 hours rather than the 6 - 8 hours that commercial yogurt is usually cultured for. The reason for the long culturing is that then most, if not all of the lactose gets pre-digested by the bacteria before you eat it, the casein structure is changed into a form that is more easily digestible, and you also get a much greater quantity of bacteria. 24 hours is the norm - it should not be left for any more than 30 hours at the most before refrigerating.

Most who are lactose/casein intolerant can cope ok with the yogurt, although some prefer to make it from goats or sheep milk or even coconut milk for a while until they are more healed, if they are really sensitive to dairy.

On the 'breaking the vicious cycle' (SCD) website is a list of 'legal' and 'illegal' foods - in other words, foods that the gut will generally cope with after a while and those it won't. In amongst the list are some cheeses - you could try one or two of those and see how you go. Although I have been on the SCD and gluten-free for nearly a year I still avoid dairy as it gives me C and I can do without that as I really don't want to go backwards now I am getting better! I am ok with the yogurt though and can also tolerate a bit of the Total brand commercial yogurt now if I am not in the mood for making the 24-hour one.

Just out of interest I use coconut milk and cream instead of dairy and find that coconut cream and some of the yogurt that has been dripped to make it thicker mixed together makes a yummy topping instead of dairy cream - it tastes not unlike creme fraiche but with a slight coconut twist. Added to Naomi Devlin's Vanilla Pumpkin Pie it is the tops. Mmm-mm.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer
What's that? I've never heard of it...

oops! Sorry I thought I was in the SCD board......

horsegirl Enthusiast

Thanks for all of the information. It gave me some good things to think about. It's hard because prior to the Enterolab results, I didn't have any awareness that things other than gluten & soy were bothersome to me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    2. - Russ H replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    3. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

    4. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      315

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,583
    • Most Online (within 30 mins)
      7,748

    yasunari
    Newest Member
    yasunari
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • HectorConvector
      These symptoms started initially in 2009/2010 and I've had normal blood sugar readings in all the blood tests - so never been diagnosed with diabetes or pre-diabetes. I did request another blood test recently (yesterday in fact) which I have had, and if the blood sugar looks high it'll come up in my results which I'll be able to see next week. I don't have any other symptoms relevant to diabetes except for the nerve pain, which had been in existence for many years with "normoglycaemia", but we'll see. In terms of my current diet: I get roughly 60% of my calories from fat and protein, and 40% from carbs (an estimation). I'm on currently about 2200 calories per day, which is too low for someone of my size, so I've been slowly losing weight that I want to put back on again. But I don't want to do that without using weights, which flare my pain up unfortunately. 
    • Russ H
      I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease and going on a strict gluten free diet that I accidentally consumed dairy products and didn't react. From then on, I have been fine with diary. 
    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.