Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reintroducing Other Foods


horsegirl

Recommended Posts

horsegirl Enthusiast

I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

Anybody??

mushroom Proficient
I have been gluten free for 2 years now, & casein/soy free for 1-1/2 years. I was diagnosed as intolerant of gluten, soy, casein, & egg through Enterolab. I reintroduced eggs about 3-4 months ago, & seem to be tolerating them well. I want to reintroduce casein yet, & am wondering if others have had success with this too? I never even knew whether I had symptoms from casein or egg; I just went off of them because Enterolab's results suggested I should. The soy I think was causing joint pain, so I'm not sure if I want to return to eating that or not.

Any suggestions? Ideas? Am I risking damage to my body, or simply a possible return of fibromyalgia symptoms if I AM intolerant for life? Where do I start?

Thanks for your help.

I did testing through Diagnos-Techs which showed sensitivity to eggs and casein as well as the already known soy. I tried eliminating eggs and casein (I wa at that time eating only yogurt and cheese) and had never felt worse since going gluten free. I gave it a three-week trial and then went back to eggs, yogurt and cheese because I had never noticed intestinal issues with those before (I have now learned that casein may be bad for my RA, but have not given it up because any day I start without yogurt always ends up being a bad day (even if I take a probiotic supplement).

I had been lactose intolerant for years, but after 15 months gluten free I can now tolerate the milk in a couple of capucchinos without problem. Haven't tried anything else yet. I think it is pretty much an individual thing, challenge it and see what happens. I know myself that I will never be able to do soy as this has been a longstanding intolerance predating even the lactose intolerance.

So, what I am saying in a roundabout way is that since most of the lactose in yogurt and cheese (especially hard cheese) has been predigested, that would be where to start. Do it slowly and gradually and hopefully it will go okay. You will soon know what you can tolerate.

Happy eating!

AliB Enthusiast

I would second Mushroom's comment on starting slowly. The problem with a lot of foods is a lack of enzymes to digest them and many of those are produced in the gut. A damaged gut will have difficulty producing them which results in our inability to digest properly.

The thing is it is a chicken and egg situation. Is it the lack of enzymes resulting in undigested food that damages the gut, or is it certain types of food that damages the gut resulting in a loss of enzyme production?

I have to say that my preferred choice is the latter. So much of our Western diet is based around cooked food and cooking destroys the enzymes. A lot of the food is also 'dead' food - calorie-rich, but nutrient-poor and that also impacts. Add into that the pasteurisation of milk - an odd cup of cocoa now and again would undoubtedly be fine but all the milk is 'cooked' and all the beneficial enzymes in it, that would help us digest it, are destroyed. Drop the chemical additives and processing into the mix and we have a recipe for gut damage and depletion of our enzyme 'bank'.

Without enough enzymes for digestion we can't get enough nutrients, without enough nutrients the enzymes we do have can't work properly and the scene is set for disease. Without the protection of enough enzymes for repair, digestion, immune support and metabolic processes pathogens get their feet under the table.

Eggs are fine in general (real free-range are much better), but I would suggest you do some research on milk before you decide to start it again, particularly if your only source is pasteurised. Yogurt you can get away with as it is fermented and full of healthy bacteria, as long as it is live, plain and not full of sugar! You can always add fresh fruit to it.

Just bear in mind that casein along with gluten, soy and corn are all used for making glue - some of them strong enough to adhere metal to metal! Without the right enzymes the body can't break them down and it is little wonder that they 'gum up the works'!

chatycady Explorer
Anybody??

Have you tried the 24 hour yogurt? I would start there - slowly. Baby steps

horsegirl Enthusiast

What's that? I've never heard of it...

AliB Enthusiast

It is home-made yogurt cultured for 24 hours rather than the 6 - 8 hours that commercial yogurt is usually cultured for. The reason for the long culturing is that then most, if not all of the lactose gets pre-digested by the bacteria before you eat it, the casein structure is changed into a form that is more easily digestible, and you also get a much greater quantity of bacteria. 24 hours is the norm - it should not be left for any more than 30 hours at the most before refrigerating.

Most who are lactose/casein intolerant can cope ok with the yogurt, although some prefer to make it from goats or sheep milk or even coconut milk for a while until they are more healed, if they are really sensitive to dairy.

On the 'breaking the vicious cycle' (SCD) website is a list of 'legal' and 'illegal' foods - in other words, foods that the gut will generally cope with after a while and those it won't. In amongst the list are some cheeses - you could try one or two of those and see how you go. Although I have been on the SCD and gluten-free for nearly a year I still avoid dairy as it gives me C and I can do without that as I really don't want to go backwards now I am getting better! I am ok with the yogurt though and can also tolerate a bit of the Total brand commercial yogurt now if I am not in the mood for making the 24-hour one.

Just out of interest I use coconut milk and cream instead of dairy and find that coconut cream and some of the yogurt that has been dripped to make it thicker mixed together makes a yummy topping instead of dairy cream - it tastes not unlike creme fraiche but with a slight coconut twist. Added to Naomi Devlin's Vanilla Pumpkin Pie it is the tops. Mmm-mm.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer
What's that? I've never heard of it...

oops! Sorry I thought I was in the SCD board......

horsegirl Enthusiast

Thanks for all of the information. It gave me some good things to think about. It's hard because prior to the Enterolab results, I didn't have any awareness that things other than gluten & soy were bothersome to me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    2. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    3. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,097
    • Most Online (within 30 mins)
      7,748

    Hana B
    Newest Member
    Hana B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.