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Any Celiac(s) From Canada

Gerri

By Gerri
in Meet Up Room

Recommended Posts

ilindsay Newbie
ilindsay
Posted

Yes, I am from Ontario - Whitefish (near Sudbury). Moved here from Toronto about 8 years ago. where r the rest of u?

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lorraineh Newbie
lorraineh
Posted

I'm in Vancouver and new to the gluten-free life, but I feel so much better off the Gluten.

  • 1 month later...
Jodster72 Rookie
Jodster72
Posted

Hello there... Niagara Falls, Ontario here!!!

Jody

  • 3 weeks later...
Toni25 Newbie
Toni25
Posted

Hello fellow Canadians!

My name is Toni and I am from the Fraser Valley BC, 25 years old.

I am new to this website, and new to celiac also. Just love this site- so much helpful info, I really feel the sense of community on here.

Its nice to not feel alone in this battle. :)

  • 1 month later...
Dennis Erickson Newbie
Dennis Erickson
Posted

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

love2travel Mentor
love2travel
Posted

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

Hi Dennis. Thanks for sharing your story. I too wonder how many have died with celiac-related cancers and other illnesses because they were not tested. It would likely be startling.

I was diagnosed 1.5 years ago and do all my own baking - always have, always will. Dining out and international travel (airports, delays...) are frustrating and challenging at times. We must drive three hours to eat out safely. Thank goodness I adore cooking! :D

Welcome here! :)

  • 3 months later...
smalltown-t Newbie
smalltown-t
Posted

Hello!  I'm from Stirling, Ontario.

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  • 3 weeks later...
gen1975 Newbie
gen1975
Posted

i am from ottawa canada. I was just diagnosed this morning with celiac disease and am at a loss. This diet seems so complicated!

Life-Of-A-Gluten-Free-Wife Newbie
Life-Of-A-Gluten-Free-Wife
Posted

From Winnipeg, MB here! Very interesting to see others who are also from winnipeg!

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    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      Ground meat absolutely full of gluten?

      By Wheatwacked · Posted

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      Your symptoms would not be typical celiac disease symptoms, but still could be related due to possible nutrient deficiencies.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      Everyday life

      By Scott Adams · Posted

      This is a difficult situation, and one that your employer may not take seriously. It's possible that they don't have a way to accommodate your issues, but I don't know much about your work environment. Obviously moving you to another work area would be ideal, but would or could they do that? If not, you might be stuck having to wear a K95-type mask at work to avoid breathing any particles, but they still could end up on your skin. Another alternative is searching for a new job.
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