Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Intolerance, And Unsupportive Family


djs89

Recommended Posts

djs89 Rookie

Hi,

Im 19, I've had health problems the past couple years with acne, fatigue, depression, poor concentration and memory, and constipation even though I ate fiber, vegetables and fruits. Sometimes the constipation problem was very severe and I nearly had to go to the hospital, but I was too embarassed to go to a doctor about it.

Lately I've been learning more about diet and nutrition, and also about gluten intolerance. I learned about it because I wanted to get rid of the acne and digestive problems. I've always been a carb addict so I probably ate a lot of gluten before, and that may have been a big part of the problem. I've tried the strictly gluten/wheat free diet for up to about a week (that was as long as I could hold out for), and the results were very positive. My skin cleared up, I felt better, I could concentrate and the most significant change was that I wasn't constipated anymore.

I'd like to go fully gluten free, but I have trouble doing the gluten free diet for very long. My family doesn't really think much of when I say that I think I'm intolerant to gluten. They just kind of ignore it. And then its hard when your parents keep offering wheat foods for dinner, like pasta and bread, and buying me my favorite gluten/wheat foods at the store to eat. My sister also doesn't think eating wheat will hurt.

I don't know if I actually have a gluten intolerance, or if its celiac disease. I haven't seen a doctor in years, usually I don't unless I have a serious problem. I am suspecting though that I have some kind of gastrointestinal problem related to consuming wheat. It seems like my digestive system just shuts down when I eat wheat foods. I would like to find out if maybe its an intolerance or celiac disease, and get a proper diagnosis but I'm afraid of colonoscopies or having the dr telling me that I have to get an invasive procedure. I also have the problem of my family not taking me seriously about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

The first step is blood tests. The doctor might then want you to have an endoscopy, but that's up to you. Do the blood tests first.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,082
    • Most Online (within 30 mins)
      7,748

    NorasMimi
    Newest Member
    NorasMimi
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DebJ14
      Good luck to you.  I would not get past that first slice of bread.  I would be vomiting and have diarrhea within 30 minutes and it would continue for hours and I would feel like I was hit by a truck for days.  My functional medicine doctor told me to stop taking Calcium and to significantly up my Vitamin D, add K2, lots of Magnesium, some boron and collagen.  This was all recommended after taking the Spectracell test for nutrient deficiencies.  Started doing this at 54 when diagnosed and at 72 no issues with the old bones.   
    • Recently diagnosed
      I live in Ottawa Canada and would be interested in a swap with someone who also has a gluten-free house. I’d love to swap out in winter for somewhere warm.
    • trents
      @KRipple, thank you for the lab results from your husband's celiac disease blood antibody testing. The lab result you share would seem to be the tTG-IGA (Tissue Transglutaminase IGA) and the test result is in excess of 10x normal. This is significant as there is an increasing tendency for physicians to grant a celiac disease diagnosis on the basis of antibody testing alone when the scores on that particular test exceed 10x normal. This trend started in the UK during the COVID pandemic when there was tremendous pressure on the medical system over there and it has spread to the USA. The tTG-IGA is the centerpiece of celiac disease blood antibody testing. All this to say that some doctors would grant a celiac disease diagnosis on your husband's bloodwork alone and not feel a need to go forward with an endoscopy with biopsy. This is something you and your husband might wish to take up with his physicians. In view of his many health issues it might be wise to avoid any further damage to his small bowel lining by the continuing consumption of gluten and also to allow healing of such to progress. The lining of the small bowel is the place where essentially all of our nutrition is absorbed. This is why celiac disease when it is not addressed with a gluten free diet for many years typically results in additional health problems that are tied to nutritional deficiencies. The millions and millions of tiny finger-like projections that make up the nutrient absorbing surface of the small bowel lining are worn down by the constant inflammation from gluten consumption. In celiac disease, the immune system has been tricked into labeling gluten as an invader. As these finger-like projections are worn down, the efficiency of nutrient absorption becomes more and more compromised. We call this villous atrophy.   
    • KRipple
      Thank you so much! And sorry for not responding sooner. I've been scouring the hospital records and can find nothing other than the following results (no lab info provided): Component Transglutaminase IgA   Normal Range: 0 - 15.0 U/mL >250.0 U/mL High   We live in Olympia, WA and I will be calling University of Washington Hospital - Roosevelt in Seattle first thing tomorrow. They seem to be the most knowledgeable about complex endocrine issues like APS 2 (and perhaps the dynamics of how APS 2 and Celiacs can affect each other). His diarrhea has not abated even without eating gluten, but that could be a presentation of either Celiac's or Addison's. So complicated. We don't have a date for endoscopy yet. I will let my husband know about resuming gluten.    Again, thank you so much for sharing your knowledge with me!
    • Jmartes71
      Ginger is my best friend, it helps alot with tummy issues..
×
×
  • Create New...