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Life Long Possible Symptoms Of Celiac

jamield23

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jamield23 Newbie
jamield23
Posted

Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?

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ravenwoodglass Mentor
ravenwoodglass
Posted
Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?

Yes. With the exception of the gall bladder removal your childhood sounds much like mine. The pain in my legs was so bad it made my Mother cry and me scream. I used to have nightmares that someone was cutting my legs off. I only had Hep once but my twin's liver was destroyed by age 15. I also had seizures and brain fog so bad I went from a straight A student to C'sand D's over the course of a summer.

After you get done with all the testing you choose to do you should give the diet a good strict try no matter what the results. With your Mom being recently diagnosed you should be able to be a good support system for each other. Ask any questions here you need to.

nasalady Contributor
nasalady
Posted
Yesterday, my mom was diagnosed with celiac disease, so today I went to go get tested. I have had several symptoms throughout my life that correlate with celiac disease, and I would like to get feedback. Doctors have never told me why I have these problem.

-Severe joint pain during childhood in hips and neck. This especially occurred before I would get sick. I would start limping due to pain in hip even before sickness occurred (whether it was a cold, strep, etc.) Then, other time I wouldn't be able to lift my head due to bad neck pains.

-Onset of migraines at an early age. Persisted for about 4 years.

-Gallbladder removal at age 15 due to low functioning (20%).

- Nontype acute hepatisis during teen years twice. No explanation. Would subside a month or two later.

- Onset of partial seizures in occipital lobe one year ago (age 21)

- Restless leg syndrome

- Just don't feel like myself since seizures began

- I have always had IBS since I can remember.

Has anyone else had problems like this?

I had severe migraines starting in my teens, my gallbladder was removed when I was 35, "cryptogenic" hepatitis 5 years ago (which means they don't know the cause, but now I have autoimmune hepatitis which means my immune system is trying to destroy my liver), and "IBS" since childhood.

I didn't have the joint pain or seizures or restless leg syndrome...but remember, everyone's different! Celiac disease can manifest itself in many different ways.

Good luck!

JoAnn

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