Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Does You Glutening Knee Pain Feel Like?

CBaker88

By CBaker88
in Sports and Fitness

Recommended Posts

CBaker88 Newbie
CBaker88
Posted

Hello everyone,

 

I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

My knee pain seemed like arthritis. It didn't hurt lying down unless someone put weight on the kneecap. It went away after being gluten free some time, maybe 6 months, I can't remember any more. I was still able to exercise gently, but it was an annoying constant ache. I also had ankle pain bad enough to quit ballet lessons and swollen and painful finger joints. It all went away when I went gluten free. I hope you get rid of your pain too.

  • 1 month later...
r0ckah0l1c Apprentice
r0ckah0l1c
Posted

I wish I could explain it but it is sort of like a tired achy feeling, like your knees are asleep but it's so severe that it causes pain especially when you bend them or step down. I remember tingling and extreme weakness with the pain and sometimes it would happen at in coordinance with hip pains. Sometimes it would feel like an on-going jab in the funny bone but in your knees. That is the best way I can describe it. Sometimes I would have trouble fully extending my legs or bending them properly.

  • 3 weeks later...
Anna and Marie Newbie
Anna and Marie
Posted

Hey!

The pain that I have with celiac reactions is kind of like I'm loose-jointed, watery almost. The pain shoots around, behind, and beside my knees, it's mind blowing. I hate running with reactions because my legs feel as if they're leaving me behind, I feel so heavy but thats probably the edema I have with reactions. But yes, I have that problem. Now I have arthritus in my knees so I may be a liitle off on the description. It shoud go away, mine was reaallllly slow in doing so!, unless you have other conditions. Good luck,

~Anna

 

P.S. Looking back at your original post, yes that is exactly what happens to me! It sounds like Celiac to me!

  • 1 month later...
JillianLindsay Enthusiast
JillianLindsay
Posted

Mine is bad and getting worse!! I've only been gluten free for.... 5 whole days lol

 

I play soccer and have had terrible knee pain for the past 5-6 weeks. For me it's primarily the bottom of my knee cap and the inside of my knee. It seems to radiate to the outside and underneath my knee when it's at its worst and only hurts when I run. I've been icing them every day because I'm still playing soccer through the pain but I'm hoping the gluten-free diet will help my joint pain.

 

I also have fallen arches and got new orthotics for my cleats to see if that would help too.

 

Good luck!

 

 

CBaker88 said:
Hello everyone,

 

I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?

 

bittykitty Rookie
bittykitty
Posted

My pain alternated between a jabbing pain,like something had torn,and a dull ache.My hips would occasionally feel like they were locking in place and didn't want to move.Had tests done for 10 years and couldn't figure out why it could look fine,but hurt that badly.Now I know.

tiredofbeingsickandtired Apprentice
tiredofbeingsickandtired
Posted

Thsi was why I stopped running, had one doc say that she was sure I had torn my acl...then the second one said it looked perfectly fine. I would have spells where one or both of my knees would swell and hurt terribly. I'm taking it slow but looking forward to getting back into running as I heal.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JillianLindsay Enthusiast
JillianLindsay
Posted

My pain is getting worse and it's getting very frustrating because I love playing soccer so much!

 

Something I realized was that I was indiscriminately taking advil before my matches without reading the ingredients and checking for gluten!

 

 

CBaker88 said:
Hello everyone,

 

I posted my story yesterday under a different heading about how I have lots of celiac symptoms that onset about 5 months ago but have had a negative blood test/biopsy - diagnosis. Going off of gluten has helped immensely w/ the bloating, constipation, intestinal cramps, weird cold sensations in abdomen/leg and the rash itchiness isn't nearly as bad, but I still have bad joint pain in both of my knees. I had an MRI of my right knee which showed nothing structurally wrong at all. Anyway, for those who have knee pain due to celiac, what does it feel like? I've had pain in my right knee for 5 months now which won't let up, and my left knee for about 3-4 weeks. It seems to be focused at the interior side of the upper part of the knee, kind of around the upper part of the knee cap, but it fluctuates. Sometimes the pain is below the knee, sometimes to the side, sometimes on the outside. It's usually a sharp pain, but I do get this burning feeling sometimes. It usually doesn't bother me unless I'm using them, so if I'm laying down it's not really as noticeable. I'm not sure this is due to celiac, but I think there's a high likelihood. I just started going back the gym for the first time in 3 months to work upper body again, but my knees aren't too happy about it. But honestly I'm sick of not working out, so I'll just suffer with the pain. What have been your experiences?

  • 4 weeks later...
tiredofbeingsickandtired Apprentice
tiredofbeingsickandtired
Posted

arrghghh, I had a slip up in VBS Tuesday night and most likely glutened myself considering how sick I was. My feet hurt and my left knee is swollen and feels like my knee cap is locking-ouch it hurts. I'd started back on my couch to 5k program awhile back with no pain, so I'm hoping that this knee pain is connected to the glutening and not to the running..and that it will go away. I'm staying off my feet for a few hours this morning. I want to run but I'm going to give it till Tues (when I have dogs to run) and see how well it heals. I may go to the gym and get in the pool later. I'm just taking tylenol arthritis, trying to stay off ibuprophen because I wonder if it makes my joints swell up more.

Hope you can play soccer soon, praying that it heals up and stays that way!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,509
    • Most Online (within 30 mins)
      7,748
    Mr-Collateral531
    Newest Member
    Mr-Collateral531
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results… 
    • trents
      Certified gluten free oats

      By trents · Posted

      Yes, I would think that for the 10% of celiacs who can't tolerate oats it would cause villous atrophy just like gluten. No, it would not produce marsh 3b villous atrophy in a couple of days. Nothing will produce measurable villous atrophy that fast. It takes at least two weeks of at least 10g of gluten consumption daily (10g is the amount found in about 4-6 slices of wheat bread) to develop measurable villous atrophy and even then probably not 3b villous atrophy. Are you asking these questions in because you are considering taking on a gluten challenge?
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the awnsers i understand there is maybe system reaction but do they create or cause villious atrophy? And igmf you it them for example a couple of days di they instantly induce marsh 3b?
    • robingfellow
      Can gallbladder issues cause symptoms of celiac disease?

      By robingfellow · Posted

      My gallbladder was at 94% ejection fraction according to my HIDA scan before surgery, when the "normal" range is considered to be between 30-80%, so the surgeon recommended removal because I had been experiencing severe chronic upper quadrant pain and even vomiting despite having a strong stomach. A biopsy after surgery showed intense inflammation suggesting my gallbladder was on the verge of bursting if I hadn't gotten it removed.   The last time my iron and vitamin d levels were checked post-gluten free diet they were in a normal range (I take 60mg iron tablets every other day, and vitamin D capsules daily) I do also take magnesium daily, specifically 400mg magnesium bisglycinate at night to aid my sleep since I try to avoid taking melatonin due to personal preference.   I'll definitely have to keep in mind the point about celiac possibly causing gallbladder problems, I'll probably wait until I can see a proper GI and get their input before I attempt to reintroduce gluten back into my diet that way any reaction I may or may not have can be properly assessed.
    • Mr-Collateral531
      Can gallbladder issues cause symptoms of celiac disease?

      By Mr-Collateral531 · Posted

      I have dealt with gallbladder issues on-and-off for about ten years now. I was diagnosed with biliary dyskinesia in 2016 but chose to keep my gallbladder. Then in July 2022, I was diagnosed with celiac disease. Your surgeon is partially right in that your gallbladder can definitely cause some of those issues. However, the flip side to the coin is celiac can cause issues with your gallbladder. It’s a lesser studied area of disease manifestation, but limited research has shown a correlation between celiac, gallbladder dismotility, and how a gluten-free diet can help increase the gallbladder ejection fraction. Which literally happened in my case. In 2016 my HIDA scan measured my gallbladder ejection fraction as 29%. Then in 2023 after going strict gluten free, my HIDA scan measured it as 100%. It’s not perfect. I get right upper quadrant pain from time to time still. But at least I got that piece of evidence for myself.  I haven’t found any empirical studies on it but I have a theory. The gallbladder stores your bile for digestion. When the food enters your small intestine, the cells of your duodenum secrete cholecystokinin (CCK). CCK is what tells your gallbladder to empty. It’s literally Greek for “bile sac move.” Since the duodenum is a prime location for epithelial cell damage in celiac, it seems very possible that this can alter production of digestive hormones like CCK. As the small intestine begins to heal it produces more CCK and therefore the gallbladder can once again function. If you care to share, why did you need to have yours removed? In regards to the low iron and low vitamin D despite supplementation, that is also common in celiac. I fought vitamin D deficiency for almost a year despite taking 5000 IUs a day. I don’t have anemia, but I know I can use more iron based on my last round of blood work. Best I can say is you need to right cofactors as well. My vitamin D level virtually stayed the same for three different blood tests all 12 weeks apart. One was even after taking the prescription vitamin D of 50,000 IUs once a week. Once again, something not all doctors seem to know, but a nutrient deficiency isn’t necessarily treated by just taking more of that nutrient. Vitamin D metabolism requires many cofactors and processes in the small intestine, liver, and kidneys. And iron metabolism requires many cofactors as well including vitamin D. The biggest thing is to find a supplement regiment that works for you. Do you take specific vitamins or do you take a multivitamin? How much iron is in the supplement you take? What type of iron is it? Do you take magnesium? Another big game changer for me was adding 450mg/day of magnesium supplements for about two months and then dropping to 200mg/day. I would take 250mg of magnesium aspartate at lunch time and then 200mg of magnesium glycinate around 7:00pm. Magnesium is a huge cofactor for both vit D and iron metabolism. And that’s just one. Zinc, copper, vitamin K, boron, vitamin B6, folate, vitamin B12, and vitamin C are all contributing cofactors to vitamin D and iron metabolism. But too much supplementing is also dangerous. I’ve also been through iron overload and zinc toxicity in my post-celiac journey. Once again, doctors just saying to do one thing without considering anything else. I hope this helps and if you have any more questions don’t hesitate to ask.          
×
×
  • Create New...