Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Time To Play "name That Gluten"


raisin

Recommended Posts

raisin Enthusiast

Here we go again. I've been sick for three weeks strait and am at the point I need help to identify why.

First I thought eating out caused it. No more outback. Then I found out my mouthwash was contaminated, and my deodorant might be. Bye-bye crest. Thought it could be toothbrush, replaced it again. It is possible I eliminated whatever made me sick already in the above list, but to be safe, I would like to make sure none of the people here have issues with the fallowing.

Here are is everything* I was using/eating the past 2 weeks :

  • Aquafresh tooth paste
  • Earth Friendly Products - Dishmate
  • Hefty paper plates and bowls
  • Foldgers Simply Smooth coffee
  • Fresh Express pre-packaged salads
  • MaraNatha Almond Butter (raw & creamy)
  • Ener-G yeast-free brown (& white) rice bread
  • Buffalo Guys Mild Buffalo jerky
  • McCormic spices (I use pepper grinder & cinnamon)
  • Enjoy Life Cinnamon Crunch oat-free granola
  • Lundburg rice

*(excludes what I am 100% sure is safe)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Your list looks pretty safe... but I'm not the best judge, since there are only a couple of processed foods I can still eat <_<

Have you considered that you might have another food intolerance? I can't eat corn (or anything derived from corn) because it gives me the same kind of abdominal pain as gluten. Dairy, soy, and nightshades are also common problems. What kind of symptoms are you hoping to get rid of?

raisin Enthusiast

I have a problem with everything you listed, plus yeast, though corn is just a "maybe" for me.

It isn't long-time or fresh new symptoms, it's more like sudden glutening symptoms that won't go away. :(

my biggest complaint is that right before sleeping 4 nights out of the past 2 weeks, I have started to feel sicker and sicker until I'd have to sit up form nausea, and shake/shiver for 1 - 4 hours, and the nausea would build, then I'd belch and feel a bit better, over and over during that time. My stomach also just plain "feels weird" (hot? lopsided? prevents me from laying down) until after said hours. I think that is called "Heartburn" (acid reflux??) but I'm not sure what that is.. I used to react like this only hours after eating wheat, especially bread or crackers. Other than that, just general acne, drymouth, bad mood, sleepiness/light headed, itchy skin, etc.

dilettantesteph Collaborator

I and another have found small amounts of gluten in the spice brand you mentioned, less than 20 ppm for those non sensitive people. I found it in organic ground cumin. I bought whole cumin which was gluten free and ground it myself. My cinnamon was good, but that doesn't mean your is. Hope you figure it out soon.

raisin Enthusiast

Who needs spices anyway? I can eat my burgers without cinnamon. ;)

Ahh really I have wondered about the spices for a long time - thank you so much for testing them and posting about it. I don't think it's what made me so sick, but it's always better to remove everything risky.

dilettantesteph Collaborator

You are welcome. I went without spices for months, then I got adventurous and got sick. That's when I started testing them. For those non sensitives, again they won't bother you, they were under 20 ppm.

MaryJones2 Enthusiast

There are some gluten-free things that just bother me so I understand. It's not always gluten but it is frustrating trying to troubleshoot. I'd remove these items and wait a few weeks and add them back in one at a time:

  • Fresh Express pre-packaged salads
  • MaraNatha Almond Butter (raw & creamy)
  • Ener-G yeast-free brown (& white) rice bread
  • Buffalo Guys Mild Buffalo jerky
  • Enjoy Life Cinnamon Crunch oat-free granola


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

You've got a few things that might be too difficult to digest. Especially since you're super sensitive and your body never seems to get a chance to fully heal. The first several months (maybe even a year or so?) after going gluten-free, there were still a lot of things that just killed my stomach. I wouldn't get a full-on gluten symptom complex with my usual neuro and mood symptoms, but I would get really bad stomach pain. It was over a year before I could eat an apple without my stomach hurting and I still can't eat too many raw veggies like carrot sticks, although I'm fine with salads. You might want to try taking out the salads, the jerky and the granola and see if that helps.

Nancy

sbj Rookie
Here we go again. I've been sick for three weeks strait and am at the point I need help to identify why.[*]Fresh Express pre-packaged salads

Pre-packaged lettuce has been known to have problems with e-coli.

"results of our search for brown, gooey leaves might make you say
raisin Enthusiast

Raw veggies and apples are actually the only things that calm my stomach.. Which, I have noticed, is rather abnormal around here. Maybe I just don't have much gut damage, you know, all bark and no bite. I have been having full-on gluten episodes though, my mood and brain-fog, everything been happening.

The salad I actually added to my diet post-gluten symptoms, and only eat during a spell of sickness. I always smell it before eating, and pull out the bad leaves (People think I'm neurotic for that, I also claw off the bad spots on apples.), and if it tastes funny I spit it out. I don't think I'm getting e-colied from them (but I don't know the gluten-status of those salads).

I will definitely remove the granola, jerky, almond butter, rice bread, though. And I will replace my pre-made salad with fresh romaine.

oceangirl Collaborator

I'd remove the rice. Working on 4 yrs in, I still cannot tolerate cooked rice. Tinkyada, yes, but not every day-weird, I know. In fact, I'd remove all processed food, cook everything whole for weeks and once I feel better, slowly add things in ONE thing at a time- giving yourself time to react. Slow and tedious, but really helps getting to the bottom of what you can and can't eat.

Good luck; it takes a long while,

lisa

raisin Enthusiast

Thanks for the advice ocean girl. Rice is only a problem if I try to pig out on it. I can have at least 1 serving with no issues even on more sensitive days, though. Probably, my body is just used to it, because my family ate more rice than bread when I was a child. ;) I am also removing everything listed (except coffee) from my diet despite the below statement. Better safe than sorry. I bought fresh romaine and now I wonder why I ever liked that packaged junk. (thanks for the push sbj!)

--

I was officially not glutened, it seems!

coconuts are a member of the same family as Soy,* to which I have a known allergy. When I was using soy soap/shampoo, I had almost the exact same symptoms as now, using coconut soap as shampoo, and also mistook it for glutening + a cold. I read that coconut allergies commonly involve an upset stomach, which explains why recently, the more i washed my hands to avoid further "glutening", the sicker I was getting!!

I noticed the eczema on the back of my hands extended to my wrists (eek!) when I washed my hands with my dish soap, which had even more coconut than my hand soap.* I also had dandruff and an itchy scalp, should have been a clue.

* Although coconut hypersensitivity is relatively rare, coconut allergens show immunological cross-reactivity with both soy and walnut proteins (Teuber & Peterson, 1999).

* What is interesting about coconut allergies, however, is that people typically don't have a reaction when they ingest coconut products but rather when they come into contact with them. They have a skin allergy to the oils in the coconut that causes a reaction of dermatitis; this might include redness, itching, swelling, dryness, and other symptoms of irritation.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,181
    • Most Online (within 30 mins)
      7,748

    ViRose
    Newest Member
    ViRose
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...