Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Temperature

wschmucks

By wschmucks
in Coping with Celiac Disease

Recommended Posts

wschmucks Contributor
wschmucks
Posted

Hey guys,

I'm celiac 4 months, and not convinced thats my only problem. I have seem some improvments but not any drastic improvements since going gluten free. My major symtom is constipation, some weight loss, fatigue and a bunch of others. The Dr is running a bunch of tests on me and asked me to take my temperature twice daily and record.

Well the last 4 days when i get home from work my temperature is any where between 94.5-95.5. which is about 3 degrees too cold. I am not coming in from a cold enviornment and yes-- i do feel cold. In the morning it will be up to around 98 degrees, which is also kinds of concerning that there is such a large spred between morning and night (typically your body temp doesnt change more than a degree throughout the day). He is checking my thyroid, and adrenal galds-- anything else you can think of that might be causing this and also has constipation as a symptom?

BTW- the thermometer is new, and reads normal when other people use it :-)

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

I think your doctor is on the right track checking your thyroid and adrenal glands. Congratulations on finding one who seems to know what they're doing! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree with the previous poster. For most folks the morning reading should be the lowest and that is a large difference. I hope they figure it out for you soon.

one more mile Contributor
one more mile
Posted

I am 45 but even as a kid my mom would have the school nurse send me home if my temperature was normal. Its funny how some would argue with her, but moms know. My thyroid went bad when I was 40. but when It was removed. Some sleep problems and depression I had been having since I was 30 went away.

Cheese blocks me up.

Crayons574 Contributor
Crayons574
Posted
Hey guys,

I'm celiac 4 months, and not convinced thats my only problem. I have seem some improvments but not any drastic improvements since going gluten free. My major symtom is constipation, some weight loss, fatigue and a bunch of others. The Dr is running a bunch of tests on me and asked me to take my temperature twice daily and record.

Well the last 4 days when i get home from work my temperature is any where between 94.5-95.5. which is about 3 degrees too cold. I am not coming in from a cold enviornment and yes-- i do feel cold. In the morning it will be up to around 98 degrees, which is also kinds of concerning that there is such a large spred between morning and night (typically your body temp doesnt change more than a degree throughout the day). He is checking my thyroid, and adrenal galds-- anything else you can think of that might be causing this and also has constipation as a symptom?

BTW- the thermometer is new, and reads normal when other people use it :-)

Thanks!

Hi there, a low thyroid (Hypothyroidism) can cause constipation and low body temperature. Celiac and thyroid problems often go hand in hand. So, it is good you are getting both your thyroid and your adrenal glands tested. Although, if your thyroid was low, it would not cause you to lose weight, like you mentioned, but will cause fatigue, constipation, low body temperature, feeling of being cold all the time, etc. Best of luck!

kellylynn Rookie
kellylynn
Posted

I was running temperatures lower at night than in the morning, sometimes as low as 94.9. I was put on Thyroid medication for low T3, but didn't start seeing temps that got above 97.0, until I went gluten-free. I still can't really get above 97.5 though.

Weight loss is actually a symptom of hyperthyroid though.

gabby Enthusiast
gabby
Posted

I had similar problems and eventually tracked it down to dairy. Along with your symptoms, I also get slightly purplish circles under my eyes plus an over-all general feeling of not feeling so great. If I stay away from dairy, the symptoms all go away.

Hope that helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


The Kids Folks Apprentice
The Kids Folks
Posted

Hi- Sorry, not sure about the temp, but if you are constipated watch if you are adding fiber to your diet. Benefiber contains wheat! We found this out with our son who has/had chronic constipation and wheat/gluten intolerance.

Good luck on figuring it out. And congrat's on finding a doctor who is willing to help solve the mystery!

wschmucks Contributor
wschmucks
Posted
  • Author

Thanks for the replies guys. I was vegan when this all started so I know it cant be dairy, and am currently on the SCD which limits a lot of fiber, and starch. I am prayyyying something comes up in my test results tomorrow. Yes-- my Dr is great, if anyone is in the San Francisco area please let me know and I will recommend you.

num1habsfan Rising Star
num1habsfan
Posted

I also agree with the thyroid thing. I had extremely low results for thyroid, and was always frozen and had that brainfog effect, major fatigue, etc. Since then I've been on Synthroid for the Hypothyroidism and it has been a big help! Let us know if you get it figured out =)

eringopaint Newbie
eringopaint
Posted

Glad to hear your Dr is checking your thyroid. I have hypothyroidism as a result of the celiac disease, and the low thyroid causes low body temps, fatigue, constipation, dry skin, spacey-ness, etc. Weight loss could be due to the celiac since weight loss is not associated with low thyroid.

If it is low thyroid work with your Dr to find the right level of synthroid... sometimes takes some tweaking to get it right.

Good luck - and let us know what happens.

erin

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,873
    • Most Online (within 30 mins)
      7,748
    Nancy Robinson
    Newest Member
    Nancy Robinson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      How long after being diagnosed with Celiac do you feel better?

      By trents · Posted

      Thanks for sharing, Karen. Certainly a needed reminder what we already knew (and I've posted many times on this forum) but sometimes forget, namely, autoimmune disorders tend to cluster. Where one is found, you can look for others to show up eventually. The thing that is unusual in your son's case is the onset of several of them at such a young age. My sister in law, who is in her early 60's has Crohn's and struggles with constipation so I don't think that is unusual with Crohn's. If nothing else, it's the outcome of not eating much because of the pain. Now that you know what is going on with your son and the Crohn's, we hope he is beginning to improve.
    • Nathan.
      How long after being diagnosed with Celiac do you feel better?

      By Nathan. · Posted

      Hi there. My son is turning 16 this month. He had an endoscopy and biopsy to confirm celiac. He went gluten-free and his pain never got any better. I think it got worse. Months went by. The pain started around 7th grade. He missed a lot of school in 8th grade, and a whole lot in 9th grade. He couldn't go to school in 10th grade. All along the gastroenterologist prescribed Hyoscyamine, didn't help at all. Cyproheptadine, no less pain. Peppermint oil, ginger, Miralax, Senna. Doc said he was constipated, but I couldn't get him to have Miralax daily. Eventually he went on Linzess and no senna or Miralax. Sorry this is long, there will be a point.  We gave his school not just a doctors not, but everything, and U of M makes a lot of notes. They still turned us in for Truancy.  I didn't get him enrolled in online school fast enough.  The school would not recommend an online school and i didn't know which one to choose.  Doc thought it was nerve pain and mental. He recommended the u of m my pain program.  Nathan did so good, 3 days a week supposed to be for 4 weeks.  Never missed, always on time.   After two weeks, they discharged him. Said it was not  benefitting him.  Pain went on. I had been asking if there were any other test they could do. Ultrasound, colonoscopy. Doc said we can do it, but I don't think we'll find anything.  Finally he had a colonoscopy and another endoscopy.  Guess what, they did find something. They found a ton of tiny ulcers everywhere, from the esophagus to his rectum. They think Crohn's. I understand they didn't check for that because he was more constipated, not much diarrhea. He is getting an MRI with contrast on Sunday. Also they want him to do a cal-protectin (give a poop sample). Then an appointment on the 16th to talk about treatment. Then the probation officer on the 17th. In the meantime he is taking Budesonide extended release.  $276.00 for 30 pills, and that's with insurance. Also he was diagnosed with hyperthyroidism, Graves disease a few months ago. If it is for sure Crohn's,  it will be three autoimmune diseases. If someone is gluten-free for a month or more, and the pain is no better, don't stop looking. I was beside myself. Did they think he was exaggerating, lying? I was considering taking him to a holistic doctor, who would probably recommend Peppermint oil and ginger.  He's such a good kid. Kind of an introvert. He was on the 9th grade soccer team. He would try to go to practice and kept having to stop, the pain was that bad. Every time he ate, it didn't matter what, gluten-free chicken tenders, mac and cheese, pizza, ice cream, all gluten-free, he would eat a normal amount but stop and say, I can't eat anymore, my stomach hurts.  If anyone reads all this, thank you. I had a gut feeling, no pun intended, that he had an additional problem. They found celiac and stopped looking. If you don't feel better, keep on your doctor to check further, keep looking.   Take care, Karen  
    • Scott Adams
      Recent blood test results check in - TTG- IGA

      By Scott Adams · Posted

      Most likely cross-contamination I believe.
    • cristiana
      How long after being diagnosed with Celiac do you feel better?

      By cristiana · Posted

      I think it takes different people different amounts of time, but in my own case I had pain,  bloating and loose stools for some time, exacerbated by a lactose intolerance, which eventually went.  I would say the really bad diarrhea got better quite quickly, but the bloating pain carried on for a few months, until I was told to give up lactose for a few weeks.  That helped enormously and once I realised milk and yoghurt was the cause, after a short break I went back to lactose very gradually and felt a lot better.  Now I can tolerate it well. From Coeliac UK "The enzyme lactase is found in the brush border of the small intestine. This is why people with coeliac disease can be deficient in lactase at diagnosis. Once established on a gluten free diet, the gut is able to heal and lactose digestion returns to normal. Lactose intolerance is therefore usually temporary." So if this helps your daughter, this doesn't mean you have to give up lactose forever, especially as dairy is such a good source of calcium for growing kids.   Bear in mind you should be able to reintroduce it. As for fatigue, this can be due to vitamin and mineral deficiencies,such as iron, vitamin D and B12.  Were these levels tested?  If not, I would suggest you get them done.  If your daughter is deficient in these, it is vital you address the deficiencies, and get the tests redone in a few months, particularly the iron, because too much can be dangerous.
    • knitty kitty
      Inhaler problem

      By knitty kitty · Posted

      Hello,   The medication in these inhalers can cause a thiamine deficiency if used by someone already low in thiamine.  We don't absorb sufficient amounts of vitamins and minerals due to the inflammation and damage done to our villi in Celiac Disease.  Even a long term strict gluten free diet may not provide sufficient amounts of vitamins and minerals.  There are eight B vitamins that all work together.  Thiamine deficiency often shows up first because our bodies use so much of it and it can't be stored very long. Thiamine deficiency symptoms can appear in as little as three days.  Without thiamine, the other B vitamins may not be able to function properly.   Thiamine is needed to clear lactic acid accumulation caused by the inhalers: Shoshin beriberi provoked by the inhalation of salbutamol https://pubmed.ncbi.nlm.nih.gov/12951730/    Significant Lactic Acidosis from Albuterol https://pmc.ncbi.nlm.nih.gov/articles/PMC5965110/ Albuterol-Induced Type B Lactic Acidosis: Not an Uncommon Finding https://pmc.ncbi.nlm.nih.gov/articles/PMC7263006/ Lessons of the month 1: Salbutamol induced lactic acidosis: clinically recognised but often forgotten https://pmc.ncbi.nlm.nih.gov/articles/PMC6964186/ An Overview of Type B Lactic Acidosis Due to Thiamine (B1) Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC10731935/   Thiamine has antifungal and antibacterial properties.  Thiamine helps keep Candida in check.  Thiamine helps keep SIBO in check.  Thiamine helps with black mold, Aspergillis infection.  Riboflavin helps fight Candida infection in the mouth. Riboflavin Targets the Cellular Metabolic and Ribosomal Pathways of Candida albicans In Vitro and Exhibits Efficacy against Oropharyngeal Candidiasis https://pubmed.ncbi.nlm.nih.gov/36625571/   Thiamine deficiency can make ones voice hoarse and can cause localized edema.  Niacin deficiency can make ones voice hoarse.  (Niacin deficiency and Thiamine deficiency can each cause irritability, agitation, and lability.) Hoarseness in pellagra https://pubmed.ncbi.nlm.nih.gov/21507655/ Hidden Hunger: A Pellagra Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC8152714/   Anesthesia can cause B12 deficiency.  B12 deficiency can show up as mouth sores and geographic tongue, diarrhea, and dementia. Vitamin deficiency, a neglected risk factor for post-anesthesia complications: a systematic review https://pmc.ncbi.nlm.nih.gov/articles/PMC11823251/ Neurologic degeneration associated with nitrous oxide anesthesia in patients with vitamin B12 deficiency https://pubmed.ncbi.nlm.nih.gov/8250714/ Subacute combined degeneration of the spinal cord following nitrous oxide anesthesia: A systematic review of cases https://pubmed.ncbi.nlm.nih.gov/30144777/ The Effect of Vitamin B12 Infusion on Prevention of Nitrous Oxide-induced Homocysteine Increase: A Double-blind Randomized Controlled Trial https://pmc.ncbi.nlm.nih.gov/articles/PMC4052402/     Eating a diet that is heavy in carbohydrates can precipitate a thiamine deficiency.  As the amount of carbohydrates consumed increases, additional thiamine is needed, otherwise the carbs will be stored as fat.   Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/   The deficiency symptoms of some of the B vitamins cause gastrointestinal symptoms that resemble the same symptoms as when being glutened.   Thiamine deficiency can present as vomiting, diarrhea and abdominal pain (Gastrointestinal Beriberi).  Niacin deficiency can present as diarrhea (Pellagra = diarrhea, dermatitis, dementia, then death ).  B12 deficiency can present as diarrhea or dementia.  Not everything is caused by hidden gluten.  Gluten free processed foods are not required to be enriched with vitamins lost in processing like gluten containing foods are. Blood tests are not accurate measurements of vitamin levels, but do talk to your doctor and nutritionist about supplementing with the eight B vitamins, Vitamin C, the four fat soluble vitamins and minerals like magnesium.  Your physician can give you a shot of B12 before anesthesia administration.   By the way, Celiac Disease genes have been traced back to having originated in Neanderthals.  I'm not a singing teacher on the net.  I earned a degree in Microbiology after studying nutrition because I wanted to know what vitamins are doing inside the body.  I've experienced nutritional deficiencies myself. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...