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Blood Work Indicate Celiac Diease

Nicholasmommy

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Nicholasmommy Apprentice
Nicholasmommy
Posted

Hi! I have posted on here before about my son possibly having celiac disease. He has failure to thrive, doesn't eat much, perfers eating soft food, and chews and spits out his food. The blood work came back indicated that he does have celiac. He also had a fecal test done too but that came back fine. They are going to do a biopsy to confirm.

She also thinks that he has "feeding issues" and we will be seeing a nutritionist and maybe a occupational therapist (OT.) I am going to push for the OT b/c I do wonder if he has some sensory issues or something else too.

So i am wondering if his blood indicates he has celiac how likely is it that he has it? What else should i do doing at this point? Is it strange that the fecal came back normal? Thank you!

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ang1e0251 Contributor
ang1e0251
Posted

Thanks for posting your follow up. I'm glad you have a diagnosis. It's very hard to get positive blood work on a small child so if he came up positive, that's very strong for celiac disease. I don't know about the fecal. What kind of test did they run on that and can you post the results here from your copy? Many here know how to read medical test results.

Nicholasmommy Apprentice
Nicholasmommy
Posted
  • Author

I do not have a copy (did not know that I could have one.) The doctor is suppose to call in a little bit b/c she is trying to get my son into a GI doctor right away. I will ask for one then. Thank you for your insight. Any other opinions?

bear6954 Apprentice
bear6954
Posted

When you see the nutritionist ask about EO 28 Splash. It is an amino acid based formula -grape, tropical fruit and some other flavor. It is really easy to digest and is gluten and casen free. It is made for kids with severe gi track damage and ee. It has good calories, and if used as a supplement gives all the vits, protien, carbs, fat your son will need. Your nutritionist can tell you the quantity to use by weight. Ray has been on it for 8 days. It has been over 1 year since my son cut a tooth. I thought he would never get his 2 yr molars. On monday he finally began to cut his two year molars! He only poops once a day now and he is not eating like he is starving anymore - more like a normal healthy child! It is amazing. I mix it with crystal light and tell him it is his spiderman juice and it will make him strong and be able to spin webs. It is very expensive - $115.00 for 24 - 8 oz boxes. Some insurance companies cover the expense, but ours does not (military insurance).

I have also noticed that milk bothers him so I am going real light on milk. I found soy milk works better for cooking and add adding some vits to his food. Since my son does not eat a lot of stuff with fat, we were told to add a teaspoon of canola oil to his food to help with his fat intake. Also, ray has started on prevacid which has helped with his juicy burps and sitting up and throwing up at night in bed. He says his throat feel better now.

I am not sure about the blood work - my sons was negative, but he had a very positive biopsy. I am glad you are getting some results. I know it felt like a weight was lifted from my shoulders when we figured out what was wrong and that it could be fixed with diet!

Nicholasmommy Apprentice
Nicholasmommy
Posted
  • Author
When you see the nutritionist ask about EO 28 Splash. It is an amino acid based formula -grape, tropical fruit and some other flavor. It is really easy to digest and is gluten and casen free. It is made for kids with severe gi track damage and ee. It has good calories, and if used as a supplement gives all the vits, protien, carbs, fat your son will need. Your nutritionist can tell you the quantity to use by weight. Ray has been on it for 8 days. It has been over 1 year since my son cut a tooth. I thought he would never get his 2 yr molars. On monday he finally began to cut his two year molars! He only poops once a day now and he is not eating like he is starving anymore - more like a normal healthy child! It is amazing. I mix it with crystal light and tell him it is his spiderman juice and it will make him strong and be able to spin webs. It is very expensive - $115.00 for 24 - 8 oz boxes. Some insurance companies cover the expense, but ours does not (military insurance).

I have also noticed that milk bothers him so I am going real light on milk. I found soy milk works better for cooking and add adding some vits to his food. Since my son does not eat a lot of stuff with fat, we were told to add a teaspoon of canola oil to his food to help with his fat intake. Also, ray has started on prevacid which has helped with his juicy burps and sitting up and throwing up at night in bed. He says his throat feel better now.

I am not sure about the blood work - my sons was negative, but he had a very positive biopsy. I am glad you are getting some results. I know it felt like a weight was lifted from my shoulders when we figured out what was wrong and that it could be fixed with diet!

I was looking at that. I will ask the nutritionist about it

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