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Distended Stomache?


lainie

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lainie Newbie

Hello,

My 16 mos. old daughter was recently diagnosed with Celiac Disease. She started showing symptoms at 12 mos. when we took her off formula and started really feeding her more solids. The past four months have been very hard but we are finally on a gluten free diet and she is like her old self again. My biggest worry is that she has a very distended abdomen and it has not completely gone away. She has been Gluten free for about 3.5 weeks. Has this happened to any one else? How long might it take for her belly to be normal again? Thanks for any comments or ideas.


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momof2 Explorer

Its funny you should post this. My husband and I were just looking at our 22 month olds pictures of when she was first diagnosed at 16 months. The stomach on her was incredible, and if your child resembles, mine, it will take a while. It was about 4 months before my daughters full tummy went away.

Good luck with this new way of living!

JacobsMom Contributor

Hi

My 2 year old is the same way. We are newly diagnoised also about the same time as you. He has been gluten-free for about 3 weeks and his stomach is still huge also. Maybe it will just take time like everyone says...I also heard someone say they didnt see a difference for about 6 months...

Good Luck to you I know exactly what your going thru. Sorry I cant shed any light on it!!!

Have a good week.

Brandi

lainie Newbie

Thanks for your posts. It is good to know that we are not alone. I can't wait for her stomache to go down. It looks so uncomfortable.

tpineo Rookie

My daughter was diagnosed at 3 and it took a few months to see the difference in her stomach. She regained her energy, started toileting normally, and gained several pounds within a few weeks of being gluten-free but it took longer for her stomach to look "normal" again. Hang in there - the first few months are the hardest when you are constantly unsure of what is gluten-free and what is not and are trying new foods some of which are not great.

I would recommend:

Kids with Celiac Disease by Donna Korn

Eating Gluten Free with Emily- cute book for kids about 2-8

and food wise I have a list of my daughter''s favorite foods (also named Emily) which may help:

Emily

angel-jd1 Community Regular

That is a great list for newbie parents!!! Especially the craft info. You put a lot of work into it. Nice job!

-Jessica :rolleyes:

lainie Newbie

:) Thank you Tania! what a great list. I am printing it out right now! It is also really good to know that the distended stomache will take a while but that it will eventually go away.

Elaine


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  • Recent Activity

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    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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