Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ocd


Chellabella

Recommended Posts

Chellabella Newbie

Hello, i am new to this Celiac Disease idea....

Here is why i think i have it. or possibly have it.

I have had OCD since i was 8 years old and until until 2 years ago has it been bad. I was looking on the internet and i found that that Celiac disease is associated with ocd? I am feeling very anxious today and sort of sad. and i thought maybe gluten was my problem.. i had kraft dinner today for lunch and pasta for dinner last night? could that be the reason why i feel terrible today?

i also have Eczema and IBS (they thought it was crones) and they say that these are all related to celiac disease. If i dont eat for a couple of hours i feel so faint and ill like i could pass out (to the extent that its not normal at all)

I walk around feeling anxious every single day (ranging from feeling pretty good to terrible) it goes in phases. Honestly, i hope that this is my problem. cause walking around with a feeling of hopelessness about finding a cure (besides the option of being sedated with drugs) is terrible

any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome. I think you've come to the right place for answers.

What I'd suggest, is to try a few days gluten-free, and see how you feel. If you feel better, then you'll know. However, if you want to get tests done for Celiac, you shouldn't remain gluten-free for more than a week at most, because the antibodies and intestinal damage will begin to diminish, making it all but impossible to get an accurate diagnosis.

Many gluten-free meals are easy, so you should have no trouble trying it for a few days. For example, vegetable soups are very quick and easy to make. You can make creamy soups in the blender in just minutes. There are also gluten-free canned soups, if you're not feeling up to cooking. Baked potatoes in the microwave take just minutes too. It is much easier when you avoid processed foods.

Lastly, since dairy is often problematic at first, while the body is trying to heal, you may find it extremely helpful to avoid that at the same time.

ravenwoodglass Mentor

Riceguy gave some good advice however with neuro issues it often takes longer than a week or two for the neuro effects to resolve. I would stay on gluten and call your doctor Monday and get a celiac panel done to start. If you think you want to get a biopsy if the panel is positive then don't go gluten free until it is done. The day you are done with all testing for celiac that you choose to do then give the diet a good and very strict try for a month or two no matter what the test results. IF you don't need a doctor derived diagnosis to stay strictly compliant with the diet then go ahead and give the diet a try. Some will see resolution of issues like OCD and anxiety quickly and others take a bit longer to heal. It is very important not to cheat on the diet though, one of the reasons why many want a firm diagnosis before they will follow the lifelong changes that come with celiac or gluten intolerance.

  • 2 weeks later...
Skylarker Newbie

From personal experience, I suggest you definitely try going gluten-free. I started having panic attacks as a child, developed agoraphobia in my teens, finally beat that through years of psychotherapy, but still struggled with anxiety. No medication has helped as much as going gluten-free. I didn't even realize how anxious I was until I gave up gluten.

I haven't been diagnosed as celiac because I won't eat gluten again. I simply don't want to feel that way ever again.

Just wanted to add my encouragement. The above two posts are right on track.

Best,

Skylarker

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,832
    • Most Online (within 30 mins)
      7,748

    Cindessa
    Newest Member
    Cindessa
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cameo674
      Does it taste like black licorice?  It said it was chewable.  I do not like that flavor.     Since the burn at the back of my throat is there everyday, I usually only take something when it is unbearable and keeping me from ADL especially sleep.  
    • Scott Adams
      Your concerns about Nando's cross-contamination practices are valid and important for the celiac community. It's disappointing that Nando's does not have stricter protocols for children's portions, especially given the risk of cross-contact with gluten-containing items like garlic bread. Cooking gluten-free items on shared surfaces, even if cleaned, is not safe for individuals with celiac disease, as even trace amounts of gluten can cause harm. While the adult butterfly chicken may be a safer option, the inconsistency in practices for children's meals is concerning. It's frustrating that Nando's headquarters did not take responsibility, but sharing your experience raises awareness and may encourage them to improve their protocols. Consider reaching out to celiac advocacy organizations to amplify your concerns and push for better standards. Always double-check with staff and emphasize the importance of avoiding cross-contamination when dining out.
    • Scott Adams
      I had this symptom when I was diagnosed. Are you sure that your diet is 100% gluten-free?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):      
    • Scott Adams
      Based on your results, it seems unlikely that you have celiac disease. A negative endoscopy and the absence of HLA-DQ2/DQ8 genes (the primary genetic markers for celiac) strongly suggest you do not have the condition. However, the elevated TTG-IgA (22) could indicate a temporary immune response or another issue, such as a different autoimmune disorder, intestinal infection, or even a lab anomaly. The presence of DQA1*05 alone is not diagnostic for celiac. Meeting with an allergist and GI specialist is a good next step to explore other potential causes for the high antibodies, such as non-celiac gluten sensitivity or other immune-related conditions. Keep a detailed food and symptom diary to help guide further testing and discussions with your doctors. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Captain173
      I had celiac panel done back in October, only ttg iga came back high  (22 with positive being over 3). Endoscopy done in January, it was  negative. Genetic test done after endoscopy, negative for both hla dq2 & dq8. Did show positive for dqa1*05.  Scheduled to meet with an allergist next week. Not scheduled to meet with GI specialist till after allergist. Confused if I have celiac or what caused high the antibodies originally if I do not.
×
×
  • Create New...