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Secondary Autoimmune Narcolepsy From Celiac

caek-is-a-lie

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caek-is-a-lie Explorer
caek-is-a-lie
Posted

I recently read that Celiac is known to cause secondary autoimmune disorders and allergies. I have Narcolepsy that is triggered by gluten, but I also have some lingering Narcolepsy symptoms on a gluten-free diet that seem to be from permanent damage.

I found out I have a Celiac haplotype DRB1*07-DQB1*0202 and I also have a Narcolepsy/Celiac gene DQB1*0301. Since gluten triggers most of my symptoms and I have what's considered 'atypical' cataplexy (ie: 'spontaneous' several days after ingesting gluten) in addition to classic cataplexy triggers like laughing, which isn't as severe, I figure my Narcolepsy is secondary with some minor permanent damage from the Celiac.

I'm going to run it by my doctor next time I go in. I did tons of research on it...it was fun! :)

  • 3 weeks later...
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mattathayde Apprentice
mattathayde
Posted

this is interesting, i am convinced both my parents have celiac disease and now seeing this it adds to my argument for my father even more

-matt

mommida Enthusiast
mommida
Posted

Have you run accross any statistic of Celiacs that are Narcoleptic? Do you think anyone diagnosed with narcolepsy should be tested for Celiac?

caek-is-a-lie Explorer
caek-is-a-lie
Posted
  • Author

There are no official stats on it, which is something I'd like to do myself in grad school, but from what I've seen on forums and from an informal poll I did, there are a lot of people with Narcolepsy that could benefit. The Narcolepsy genes have also been found to be Celiac genes. IMHO it would be beneficial to screen all Narcolepsy patients for Celiac, although a blood test might not catch it if the transglutaminase is primarily in the CSF.

  • 9 years later...
CristiG Newbie
CristiG
Posted

I am interested in this topic. I have one son diagnosed with Celiac and another tested twice for it but with inconclusive or negative results for Celiac, that just got diagnosed with narcolepsy. I am trying to see if there is a link. Any research or info on this would be gratefully received. 

Posterboy Mentor
Posterboy
Posted
53 minutes ago, CristiG said:

I am interested in this topic. I have one son diagnosed with Celiac and another tested twice for it but with inconclusive or negative results for Celiac, that just got diagnosed with narcolepsy. I am trying to see if there is a link. Any research or info on this would be gratefully received. 

CristiG,

Have you tried magnesium it can help a lot of issues. . . especially where sleep is involved.

This guy is not saying but asking is this a cure.

Here is a good summary of the problem and how magnesium might help.

Open Original Shared Link

He sights research about it can help tourettes.

Here is the link to the tourette research and the possible magnesium connection.

Open Original Shared Link

Magnesium is great stuff when you take it in a well absorbed form like Magnesium Citrate or Magnesium Glycinate.

Again ******this is not medical advice but I had several wasting issues like muscle cramps, CFS, and a racing heart before taking Magnesium first as Magnesium Citrate and now as Magnesium Glycinate (non-flushing form).

And I thought I would never be able to help my high heart rate. .. resigned to always having a fast beat (it is genetic and runs in my family) but a month after switching over the Magnesium Glycinate form my heart rate went down 10 to 15 beats a minute to a normal level.

I do take medicine for my heart rate but it was still 20pts too high until I changed over to Magnesium Glycinate and why it is a little more expensive than magnesium citrate it (Mg) works great for my heart while the Citrate only helped my energy, muscle cramps, and fatigue issues.

I hope this is helpful and if I had a sleep problem of any kind I would recommend you look into it.

I used to never dream and I now regularly dream because magnesium helps me reach deep REM sleep and I wake rested with enough energy to take on the day.

If  you are a celiac or even NCGS and/or have other GI problems you are more at risk of being low in magnesium or if you take a PPIs for your heartburn.

Here is the NIH health fact page on Magnesium.  You can read more about Magnesium there.

Open Original Shared Link

I hope this is helpful.

****again this is not medical advice but taking Magnesium first as Magnesium Citrate then Magnesium Glycinate helped my sleep and energy problems.

2 Timothy 2: 7   “Consider what I say; and the Lord give thee understanding in all things” this included

Posterboy by the grace of God,

 

1desperateladysaved Proficient
1desperateladysaved
Posted

I had narcolepsy in my gluteny past.  Gluteny past meaning the time when I freely ate gluten since I didn't know I had celiac at the time.  I have since solved this with major diet changes both removing gluten and others.

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