Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is 'subtotal' Villous Atrophy?

S-J-L

Recommended Posts

S-J-L Apprentice
S-J-L
Posted

Hi,

My endoscope showed i had subtotal villous atrophy. What does this actually mean- is it early or late stage celiac disease etc? This was about a year ago, and my tissue transglutaminase was 164 (below 20 is normal). Now it is 36 after the gluten free diet. Should this be below 20 by now?

Im still having weight issues, ive only put on about 3kg since going gluten-free. I have a bmi of only about 16 (im 5'8), dispite eating quite well. I am, female, 21 years old.

Any ideas??

My family is thin too, but not underweight.

I once had a chest x-ray and the doctor was kinda shocked at how super-fine boned i am-they thought i had Marfan syndrome for awhile cos i also have heart problems and the long 'spidery' hands lol. Do you think that having celiac disease would have done this to my bones or is it just genetic?? I think i got my first celiac symptoms at about 8, when i became chronicly constipated. When i went through puberty i went bone-thin rather than putting weight on.

My stomach has also been really acidic lately but i think this is due to stress.

Sorry for such a rant, I just want answers

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Discussion of subtotal villous atrophy in this article - Open Original Shared Link

S-J-L Apprentice
S-J-L
Posted
  • Author

OK, thanks.

Anyone got suggestions about the weight issue- i just don't know what to do. Ive seen a dietician a couple of times as well.

S-J-L Apprentice
S-J-L
Posted
  • Author

Please? Any ideas...

ang1e0251 Contributor
ang1e0251
Posted

Sorry, I have the opposite problem; putting on weight without seeming reason. Another poster said they put on weight by watching diet shows then doing the opposite! I would just say what I told my daughter when she wanted to lose 5 pounds for bikini season. Make everything you put in your mouth count. For you, try to eat dense calorie rich food. Foods that are high in healthy fats like avocados, olive oil and coconut milk with all the rich cream left in. Also coconut oil is good for you. Don't skimp on meats as proteins are very important to your bodies health and weight. You can go online and find out what your ideal calorie per day should be. It could be you're just aren't eating quite enough. Add nuts to your diet if you can tolerate them. Hope this helps.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,994
    • Most Online (within 30 mins)
      7,748
    DawnMaureen
    Newest Member
    DawnMaureen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...