Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeking A Remedy For My Symptoms


her-never-ending-muse

Recommended Posts

her-never-ending-muse Newbie

Hi all,

I want to make it clear I am already on the gluten-free diet and do not cheat. I accidentally got glutened. I have already found the culprit food and eliminated it. So I am already doing the very best thing I can do which I know is to avoid all gluten.

Now I want to know what I can do to help my intestines get better as fast as possible. I searched and searched for gluten treatments and on every single page all I could find was "avoid gluten" - so I am asking you guys about this:

My intestines are all bent out of shape. I'm having pretty much every intestinal symptom in the book - the most problematic is constipation. I'm doing a gluten-free fiber supplement the maximum of three times a day. I am drinking a gallon of water a day and eating the minimum RDA of fruits and veggies and having gluten-free brown rice with every meal. I am wondering if there is anything else I can do to help with these symptoms.

What happens to intestines that are glutened? If I knew why they react like this I might have a better idea of how to treat it. I have been diagnosed with gluten intolerance. I am not a confirmed Celiac, though I doubt the test's negative result can be taken seriously because I had already quit gluten long before taking it. So, I might be a Celiac and don't know it - and I would be interested even in hearing remedies for Celiac symptoms. Are my intestines inflamed? Maybe I should do something to reduce inflammation? Are my intestines swollen? What else happens to them? What can I do about it?

What helps you with your symptoms?

Is there anything that helps your gut heal faster?

I am open-minded. Any suggestions will be appreciated!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Shanta Newbie

When my sister gets contaminated she uses "FYI" from Garden of Life. It is a product that reduces inflammation. You might also try drinking aloe vera juice as this helps heal the intestine. I would stop eating any grains until you feel better as these are harder on you intestinal tract. Eat lean meat, fish, fruits and veggies.

maile Newbie

I agree with the aloe vera juice, I too get the big C when glutened followed closely by D! Aloe vera juice seems to help with the inflammation and the pain.

given that you have chronic (at least it sounds like chronic from your description) C you might try "cleanse more" by ReNew Life, I think it's available at most heath food stores. a list of the ingredients can be found Open Original Shared Link (note I have nothing to do with that website, it was just the first one that popped up thru google) I've found this much easier to take rather than senna or any commercial laxatives.

another thing to think about is that if your intestines "are all bent out of shape" having too much fiber in there when your body is not able to properly absorb things can sometimes have the opposite effect (at least this is my experience)

  • 1 month later...
nyceliac Newbie
When my sister gets contaminated she uses "FYI" from Garden of Life. It is a product that reduces inflammation. You might also try drinking aloe vera juice as this helps heal the intestine. I would stop eating any grains until you feel better as these are harder on you intestinal tract. Eat lean meat, fish, fruits and veggies.

Who sells aloe vera juice? I would love to try it!

LDJofDenver Apprentice
Hi all,

I want to make it clear I am already on the gluten-free diet and do not cheat. I accidentally got glutened. I have already found the culprit food and eliminated it. So I am already doing the very best thing I can do which I know is to avoid all gluten.

Now I want to know what I can do to help my intestines get better as fast as possible. I searched and searched for gluten treatments and on every single page all I could find was "avoid gluten" - so I am asking you guys about this:

My intestines are all bent out of shape. I'm having pretty much every intestinal symptom in the book - the most problematic is constipation. I'm doing a gluten-free fiber supplement the maximum of three times a day. I am drinking a gallon of water a day and eating the minimum RDA of fruits and veggies and having gluten-free brown rice with every meal. I am wondering if there is anything else I can do to help with these symptoms.

What happens to intestines that are glutened? If I knew why they react like this I might have a better idea of how to treat it. I have been diagnosed with gluten intolerance. I am not a confirmed Celiac, though I doubt the test's negative result can be taken seriously because I had already quit gluten long before taking it. So, I might be a Celiac and don't know it - and I would be interested even in hearing remedies for Celiac symptoms. Are my intestines inflamed? Maybe I should do something to reduce inflammation? Are my intestines swollen? What else happens to them? What can I do about it?

What helps you with your symptoms?

Is there anything that helps your gut heal faster?

I am open-minded. Any suggestions will be appreciated!

My son, an adult Celiac, swears by activated charcoal (you can buy capsules at vitamin stores, whole foods markets, etc.) when he accidentally gets contaminated.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,355
    • Most Online (within 30 mins)
      7,748

    Nebulae77
    Newest Member
    Nebulae77
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you - that makes perfect sense and I understand. celiac disease is an autoimmune disease which will cause further damage while gluten sensitivity is different. Based on my symptoms and bloodwork, I am almost certain I have celiac disease.  I kind of hate to hope for a positive biopsy but a negative one would be frustrating for sure. Regardless, I have done a lot of research on gluten-free diet and am prepared to begin a new lifestyle journey - with a lot of questions along the way.  I appreciate your information and advice! 
    • trents
      Let's talk about terminology for the sake eliminating (as much as possible) confusion. Unfortunately, the terms "gluten sensitive" and "gluten intolerant" have, historically, been used indiscriminately. There are two primary categories of gluten disorders whose "official" terms are 1. celiac disease and 2. Non Celiac Gluten Sensitivity or NCGS for short.  I believe there is an evolution toward using the term "gluten intolerance" to refer to celiac disease and "gluten sensitive" to refer to NCGS. I say that because the words "gluten sensitivity" are actually found in the official medical term for the non celiac medical disorder involving gluten. Does that make sense? The difference between celiac disease and NCGS is that celiac disease causes inflammation in the small bowel lining and (over time) does damage to it so that it becomes inefficient in absorbing nutrients from what we eat. This is the area of the intestinal track where all of our nutrients are absorbed. Of course, this can lead to any number of other medical problems. NCGS, on the other hand, does not cause inflammation or damage to the lining of the small bowel and therefore does not produce the antibodies that celiac disease antibody tests look for. Neither will NCGS, therefore, produce a positive biopsy result. NCGS and celiac disease, however share many of the same symptoms in the area of GI distress and NCGS is 10x more common than celiac disease. There is, at the present time, no defining test for NCGS so an NCGS diagnosis is arrived at by first eliminating celiac disease for which we do have tests for. Having said that, some experts believe that NCGS can be a precursor to celiac disease.  Yes, you are correct in stating that both conditions require a gluten free diet.  So, in the absence of official testing for celiac disease (and official testing done under the proper conditions) a person who is experiencing distress when consuming gluten cannot be certain whether they are dealing with celiac disease or NCGS. Not have an official diagnosis of celiac disease while actually having the condition makes it difficult for some folks to stay on the gluten free bandwagon. It's just the psychology of the situation and wanting to rationalize away a very inconvenient and socially isolating medical condition.
    • Lynnard
      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
×
×
  • Create New...