Gluten Intolerance, Maybe Celiac D?

[Nadia2009]

Hi everyone,

I am very new to the whole celiac thing and have never heard of it. But I realized gluten was bad for me after I tried the blood type O diet after reading Adamo's book. Unfortunately, I never stay too long on that diet and start eating carbs and gluten containing food.

I have stopped putting milk in my tea a few weeks ago because of nausea and since then since I have no diary, my craving for bread and sweet pastry has increased. I also have more appetite than ever and I dont care about what I eat but just want to keep eathing comfort food. To make a long story short, I am feeling awful and I just started decreasing wheat products before yesterday, this morning I still have sinus compression and was feeling awful. I kept caughing all night (this is one of my symptoms and maybe it has nothing to do with celiac but for me I know it is from: wheat!). But now it is 2pm and I am already feeling better after two days of eating rice and veggie. I have more mind clarity but still feel so tired.

I dont know if I am celiac but I know for sure gluten food is bad for me. I am now decided to get tested for food intolerance but I want to go gluten free for a while so that I can take back my life and sort things out.

Here are some of symptoms and health conditions I had in my life:

reflux and heartburn

gastroenteritis (1 time)

vomiting easily

get sick with honey most types so it is not the pollens I tried them on 3 continents

not much diarrhea now (but yes as a child)

panic attacks and calcium/magnesium/other mineral deficiences (I am now ok)

iron deficience

hyperthyroidy (mild) but gone after 2 years.

back and join pain (thought it had to do with my body alignment and past injuries

skin rashes...comes and goes...I thought it was my mild dust allergy

The most annoying symptoms are lethargy, lack of mind clarity and my sinus inflammation, runny nose and persistent dry caughing + post nasal drip. If I could just get rid of these without giving up on bread and pastry

Now, do you think I have only a gluten intolerance or I could have celiac disease as well?

Nadia2009

ps. could anyone tell me if oil pulling makes my symptoms worst? I started oil pulling about 6 months ago.

[ang1e0251]

It's hard to say. It could really be either one. If you want to be tested, you must continue to eat gluten. It's harder to stop and then have to start again. If your tests are negative, you could still be gluten intolerant and the gluten-free diet will still give you relief. You can still eat your favorite foods, you just must make them from gluten-free grains. I can convert most any recipe.

[Nadia2009]

It's hard to say. It could really be either one. If you want to be tested, you must continue to eat gluten. It's harder to stop and then have to start again. If your tests are negative, you could still be gluten intolerant and the gluten-free diet will still give you relief. You can still eat your favorite foods, you just must make them from gluten-free grains. I can convert most any recipe.

Thank you Ange0251

I had to stop gluten containing food this past week-end because I was really not feeling well. I don't know if doing oil pulling and other cleansing could trigger this but I have like 10 symptoms many being from celiac or gluten intolerance. I will go back eating gluten once I have an appointment with the dotor. I don't know about eating my favourite foods since I get many things from the shelves.

Not eating gluten is really working for me. I have already realized when I tried Eat for your type the blood type diet. But just in the last 2 days my health has improved so much and my cold symptoms are going away and this morning, I was soo happy: I felt light, I could finally breathe, I was still tired but not like before.

I am already shopping for all the comfort foods without gulten that I can find on the market. I found potatoes, maple syrup for the sweet taste...etc

[ang1e0251]

I know about that kind of relief. It feels wonderful! Frankly, I wouldn't get tested because I wouldn't go back on gluten. It does sound like you want to be tested. Just know that many dr's want you on gluten for 3 months before testing. a day or two before your appointment won't cut it. So just keep that in mind while you decide.

[Nadia2009]

I know about that kind of relief. It feels wonderful! Frankly, I wouldn't get tested because I wouldn't go back on gluten. It does sound like you want to be tested. Just know that many dr's want you on gluten for 3 months before testing. a day or two before your appointment won't cut it. So just keep that in mind while you decide.

I only want to get tested so that I know the seriousness of the situation and see if my intestin is damaged and if I have always been like that. I suffered from stomach pain from an early age and I frequently vomited as a child. Also, I would probably keep up with the strict diet if I knew I had celiac disease.

I have been free of gluten for about 3-4 days only (there are still things I am not sure about...I had pop corn and maple syrup because I was looking for comfort food without gluten but i am not completely sure they are free of gluten). I am seeing the doctor tomorrow and I don't know how long it will take to get an apointment with a allergist. I would keep eating some gluten but I want to fight with my lethargy. I am always behind at work and I dread cleaning chores at home. I keep calling a cleaning lady and it makes me feel even less good about me because I don't have a big house. I was so sad today because I couldn't finish all tasks at work and I felt weak.

Actually, yesterday was a big relief day I was feeling much better than the week-end but this morning wasn't so good. I had strawberries this morning but had them yesterday too.

I now increased my vit B 50 complex to a 100 (2 caplets) and I stopped some of the pills I was taking these last two weeks for a metal detox. I wasn't beeing very consistent but I had two types of detox going on actually: one with pills and the other with oil pulling. Do you know if these things could have made my symptoms worst?

[gfb1]

[snip]

I now increased my vit B 50 complex to a 100 (2 caplets) and I stopped some of the pills I was taking these last two weeks for a metal detox. I wasn't beeing very consistent but I had two types of detox going on actually: one with pills and the other with oil pulling. Do you know if these things could have made my symptoms worst?

um...

ok, i'll bite;

what is metal "detox" and "oil pulling"??

needless to say, my spidey-sense is tingling....

[maile]

um...

ok, i'll bite;

what is metal "detox" and "oil pulling"??

needless to say, my spidey-sense is tingling....

Oil pulling is an Ayurvedic therapy said to help/cure a variety of symptoms, there's a thread in Gab/Chat about it if you so inclined (it's also very popular in low carb forums, not sure what the connection is)

[gfb1]

Oil pulling is an Ayurvedic therapy said to help/cure a variety of symptoms, there's a thread in Gab/Chat about it if you so inclined (it's also very popular in low carb forums, not sure what the connection is)

thanks for the reply! i am also 'not sure'...

cheers.

[Nancym]

I have an acquaintance who lost her asthma when she gave up dairy. I think these things are often related!

[Nadia2009]

um...

ok, i'll bite;

what is metal "detox" and "oil pulling"??

needless to say, my spidey-sense is tingling....

Sorry for the confusion. I meant Heavy Metal and toxin removal detox. For the last years, I have been working on eating well and also detoxifying my body. I did a colon cleanse and after that learned that the next step is usually to do a Heavy Metal detox. Last year, I had a severe sinus inflammation that gave me headaches for months, the first month I was so worried and didn't even know it was my sinus. Then, I googled and looked for things that could match my symptomes and I learned that having toxins/heavy metal can make you feel lethargic (I dont remember the other symptoms). I didn't know about gluten and it poisonous side yet. Anyway, I am not into taking the pills has been just sitting around and now that the expiry date is there, I am trying to use them.

Actually, I read on Earthclinic.com that it is good to start eating healthy before oil pulling but too bad, I was already passionately in love with bread and pastry. It is funny though how I want to detox but I am someone who gets only 5-10 min to eat lunches. That's where all my problems started this year, I didn't eat that much bread until now but when you have no real time for lunch, all you can eat is a sandwich.

[Nadia2009]

Oil pulling is an Ayurvedic therapy said to help/cure a variety of symptoms, there's a thread in Gab/Chat about it if you so inclined (it's also very popular in low carb forums, not sure what the connection is)

Thanks for explaining what oil pulling is. The connection between the detox techniques with gluten is the following: would it be possible that my gluten related symptoms are strongly showing because I am detoxing my body? During a detox, bad bacteria fight your body and you have all sorts of secondary effects before being cured.

Now, I always had some of the symptoms asthma like spasmodic persistent caughing. I also had mouths aphtes, mineral deficiences etc But 2-3 weeks ago, something new was pouring milk to my the gave me nausea. I am getting more and more lethargy too. I am thinking my list of symptomes is growing.

The only thing I dont really have is flatulence and diarrhea.

Today, the doctor sent me to do the blood tests: 3 different ones. But I have a question: what is the difference between the gluten blood test and the food allergy testing done with allergists? Can't the allergist check if I am allergic to wheat (the culprit found on all shelves) anyway?

[Nadia2009]

I have an acquaintance who lost her asthma when she gave up dairy. I think these things are often related!

That's a great news. I got checked for asthma but was told I wasn't even though had some symptoms. My doctor told me I was just so close and could use some spray. I wonder why doctor never suspect food and why they are not trained for that. I did allergy testing twice and each time was only check for environmental allergies and I am doing pretty fine there with some mild dust allergy.

I think my discovery of the century is that gluten and milk are big trouble makers! I always wondered why I am the one in my family who had all these cavities but also the one who kept going to the dentists for all check ups and cleanings. How fair is that

I think if my test comes back negative I am not going to be happy. I'll have nothing else to blame for all the problems. If gluten and lactose could just come here and confess their evil doing, it would be much easier.

[maile]

But I have a question: what is the difference between the gluten blood test and the food allergy testing done with allergists? Can't the allergist check if I am allergic to wheat (the culprit found on all shelves) anyway?

the celiac panel checks for specific antibodies in your blood that show that your immune system is attacking your body as a reaction to the gluten you've ingested

the allergy tests try to provoke a histimane reaction to a specific food/substance

it is possible to be both celiac/gluten intolerant AND allergic to wheat

[Nadia2009]

the celiac panel checks for specific antibodies in your blood that show that your immune system is attacking your body as a reaction to the gluten you've ingested

the allergy tests try to provoke a histimane reaction to a specific food/substance

it is possible to be both celiac/gluten intolerant AND allergic to wheat

Thank you. I understand they are 2 different things now.

[her-never-ending-muse]

Nadia,

If you want to take the Celiac test do it right away - this is much much better than waiting until the gluten is all out of your system and going back onto gluten and taking it then. I heard a horror story about a person going back onto gluten containing food in order to take the test and she ended up with permanent damage to her health. Gluten is very very bad for gluten intolerant people and it can destroy your body if you keep eating it - as you have been noticing!

You do not need to take a test to be diagnosed gluten intolerant. My doctor listened to my story of how I always feel crummy when I eat gluten and feel better when I stop and she said "You definitely should not be eating gluten!!!! You are gluten intolerant for sure!"

Getting sick every time you eat gluten is just as empirical as a test result. If a food makes you sick, quit eating it. I won't say you don't have to go to a doctor, but I can say that if you keep doing something and getting the same result, you are probably correct in thinking it is bad for you!

I am already shopping for all the comfort foods without gulten that I can find on the market. I found potatoes, maple syrup for the sweet taste...etc

You can get gluten-free versions of just about any kind of wheat containing food at the store or by mail order. Cookies, chocolate, bread sticks, pasta, anything you want. Whole foods, Trader Joe's and health food stores are great places to check for gluten free foods. Many grocery stores have gluten free sections - call around. Certain name brands have lots of gluten free choices like Frito Lay and Jelly Belly Jelly Beans. Jelly Bellys kick ass especially because you get to have like fifty flavors without worrying about checking fifty labels for ingredients! For anything that can't be found at the store (say... baklava) there are gluten-free recipe books!

Try searching for your favorite types of food in a search engine (Example: "Gluten free chocolate") and see what you find. Many of those brands are carried at normal grocery stores and you can see on their websites what exact locations they are stocked in! I was surprised to find my favorite gluten free ice creams at Jewel!

[ang1e0251]

Don't forget that if your blood test is negative, that does not mean you are not sensitive to gluten. There is no test for gluten intolerance besides dietary response and you already have that answer....Positive!!

[Nadia2009]

Thank you her_never-ending_muse. I know what you mean by not needing a blood test but I would like to know if I am intolerant to something else and not really all gluten. Today, I was reading an article on someone who always thought she had celiac but she actually had fructose malabsorbtion.

I for example don't have to rush to the washroom after eating gluten. I can eat all I want and be fine that day. But if I a spoon of honey, I will suffer right there and start sweating and have pain in my stomach and pain everywhere...the last time I thought I had pain in my back but a scary feeling because I was alone. I have been sick with honey as long as 8 straight hours where I was throwing up but not getting any relief. And I know it is not the pollen as I tried different honey from different continents.

I will be doing the test very soon but I did start eating bread and pastry again yesterday. One surprise is that I don't have the same terrible craving I had just before I stopped eating them. I feel less good today but it is mostly tiredness, feeling of "burning" in my eyes (I dont know how to describe burning is too strong but it is just tired eyes), a lot more mucus production and post nasal drip. I had 8 hours of sleep but it wasnt enough. I just got up because it was time.

For many years, I have been trying to eat good carbs (more rice brown rice and others) and less sugar containing diets. I never use sugar in hot drinks for years...dont drink soda drinks, avoid commercial fruit juices. Also, I wasn't addicted to pastry because I never had a sweet tooth. Even now when I crave sweet, I dont crave anything. I only like one or two things. I always prefered big foods meaning good main dishes and maybe a little on the salty side. But in the last 2 years, I got tired of eating healthy and not feeling that good anyway. I am the one with all the healthy tips but I still catch every cold and flu and I take more sick days than people who eat KFC and Mac donald. So, I decided I needed a little comfort food: more croissants, a backlava here and there and so on...I started eating more wheat and sugar. I thought it was related to SAD (seasonal affective disorder) and lack of natural light in the winter.

[Nadia2009]

Don't forget that if your blood test is negative, that does not mean you are not sensitive to gluten. There is no test for gluten intolerance besides dietary response and you already have that answer....Positive!!

True. But how do I know if I am gluten intolerant or just having a bad reaction to the sugars in wheat for example? Also, it is easy to stay gluten free in North-America (people are more aware and we can find gluten free food) but I have relatives who live in different parts of the world and when I go there it is difficult to refuse their food. I need something to back me up. That's how I feel now but I don't know what I'll do if the test is negative.

[gfb1]

Sorry for the confusion. I meant Heavy Metal and toxin removal detox. For the last years, I have been working on eating well and also detoxifying my body. I did a colon cleanse and after that learned that the next step is usually to do a Heavy Metal detox. Last year, I had a severe sinus inflammation that gave me headaches for months, the first month I was so worried and didn't even know it was my sinus. Then, I googled and looked for things that could match my symptomes and I learned that having toxins/heavy metal can make you feel lethargic (I dont remember the other symptoms). I didn't know about gluten and it poisonous side yet. Anyway, I am not into taking the pills has been just sitting around and now that the expiry date is there, I am trying to use them.

Actually, I read on Earthclinic.com that it is good to start eating healthy before oil pulling but too bad, I was already passionately in love with bread and pastry. It is funny though how I want to detox but I am someone who gets only 5-10 min to eat lunches. That's where all my problems started this year, I didn't eat that much bread until now but when you have no real time for lunch, all you can eat is a sandwich.

please stop this. you are wasting your time, money and effort. if you have heavy metal poisoning -- and it IS possible. you can blood test for the appropriate metals. my wife had manganese poisoning after consuming nutritional supplements recommended by a 'nutritionist'. the supplements are unregulated, and had 100-times (yes, one hundred) the RDA of manganese. her blood manganese levels were higher than manganese miners. i did not object to the supplements at the time as i reasoned that, 'if it makes her feel better -- it can't hurt.'

i was as wrong as can be.

it CAN and DID hurt.

further, gluten is NOT a toxin (at least in the traditional sense of the word), some people have a strong reaction to gluten. further, there is no way that rinsing your mouth with oil, or cleansing your colon will remove proteins (or metals for that matter) from your bloodstream.

as for alternatives to a sandwich... try a lettuce or rice-paper wrap. corn tortillas are tasty. a cup of soup or even a cup of yogurt. i'm sure that there are many people in the forum who can give you suggestions for a fast gluten-free lunch.

[Nadia2009]

please stop this. you are wasting your time, money and effort. if you have heavy metal poisoning -- and it IS possible. you can blood test for the appropriate metals. my wife had manganese poisoning after consuming nutritional supplements recommended by a 'nutritionist'. the supplements are unregulated, and had 100-times (yes, one hundred) the RDA of manganese. her blood manganese levels were higher than manganese miners. i did not object to the supplements at the time as i reasoned that, 'if it makes her feel better -- it can't hurt.'

i was as wrong as can be.

it CAN and DID hurt.

further, gluten is NOT a toxin (at least in the traditional sense of the word), some people have a strong reaction to gluten. further, there is no way that rinsing your mouth with oil, or cleansing your colon will remove proteins (or metals for that matter) from your bloodstream.

as for alternatives to a sandwich... try a lettuce or rice-paper wrap. corn tortillas are tasty. a cup of soup or even a cup of yogurt. i'm sure that there are many people in the forum who can give you suggestions for a fast gluten-free lunch.

I am sorry to hear that your wife had got sick with supplements. You know I bought the stuff I am taking last year after my mom liked the colon cleanse products I bought for her from the same company. It was before I realized I had other issues and things could be coming from the carbs I eat.

Would you mind telling me more about your wife's condition and from which company she bought her supplements? I hope it is not going against the rules of the site.

It is hard to believe but oil pulling is great for tooth cavities and overall health. Before I started, one of my tooth was hurting I should have been gone to the dentist a long time ago but I didn't. And now, I can bite with that molar again. At least the oil won't hurt and I am not sure about the rest but even if it helps me with my cavities, I'll be glad. The supplements could be dangerous. Thanks for your warning and I will follow your advice...I am not so fond of them anyway and I am going to put them all in the garbage except the probiotics.

[her-never-ending-muse]

But if I a spoon of honey, I will suffer right there and start sweating and have pain in my stomach and pain everywhere...

is mostly tiredness, feeling of "burning" in my eyes (I dont know how to describe burning is too strong but it is just tired eyes), a lot more mucus production and post nasal drip. I had 8 hours of sleep but it wasnt enough. I just got up because it was time.

The eye pain and depression - and of course the digestive symptoms - sound like they could be Crohn's disease. It is often confused with gluten intolerance. Intestinal infection can be a complication of Crohn's disease and that could explain why you are having problems with sugar: bacteria thrives on sugar. Also Crohn's might explain how you have been feeling crummy no matter how healthy you eat. I can not diagnose you but I thought it might be one possibility for what is going on. Sometimes the doctors miss something, so it is good be an informed patient because then you will have intelligent questions to ask your doctor and if they misdiagnose you, having the information gives you a better chance of realizing you've been misdiagnosed and going out to get a second opinion.

Open Original Shared Link

[Nadia2009]

The eye pain and depression - and of course the digestive symptoms - sound like they could be Crohn's disease. It is often confused with gluten intolerance. Intestinal infection can be a complication of Crohn's disease and that could explain why you are having problems with sugar: bacteria thrives on sugar. Also Crohn's might explain how you have been feeling crummy no matter how healthy you eat. I can not diagnose you but I thought it might be one possibility for what is going on. Sometimes the doctors miss something, so it is good be an informed patient because then you will have intelligent questions to ask your doctor and if they misdiagnose you, having the information gives you a better chance of realizing you've been misdiagnosed and going out to get a second opinion.

Open Original Shared Link

Thank you very much HNEM.

I just saw your message and will check the link. Yes, doctors do miss stuff.

Had my blood tests results. they came negative. My doctor prescribed a few more tests on the same day and the nurse at his office called me to say I have a Vit D deficiency only and I should be taking 800 units of vit D. But I actually take many vitamines B complex (50-100), D(1000 units), C (500-1000) and Calcium-magnesium (1000 calc-500 mag) + fish oils. I wonder if it was because I stopped drinking all milk altogether and I never liked yogurts.

I want to have a food allergy testing done and I am going to stay away from gluten. But I wonder if I need a colonscopy or if I am ok since I dont present any other deficiencies.

[smalltownslackermom]

Nadia - I am familiar with oil pulling. While I know there is clinical data showing it reduces amounts of plaque buildup - great for oral health - there is no other evidence (except anecdotal...) of it doing anything else. Hey, if you can buy a bottle of good cooking oil and use it as mouthwash every morning and feel better, what big pharma company is going to pay to research that unless they can genetically engineer some seed to produce a better oil-pulling oil?

This being said, I tried it and it did so many wonderful things for my health I am not skeptical about its benefit. Doing oil pulling was sort of the beginning of the road to me finding out more about celiac. I was thinking, "this is weird. why would mouthwashing with some oil in the morning ease my sinuses and joints and help my skin? why?" my unprofessional opinion is that I was not absorbing fats properly - celiacs often don't, right? Soaking oil in your mouth for 20 minutes gives your body the opportunity to soak up some of the oil via sublingual or buccal (cheek) tissue. Sublingual delivery is used for meds all the time, why not fatty acids? the oil pulling was so good I started taking omega-3s and that was beneficial to me too. So all this is to say that, imho, if oil pulling does a whole lot of good for a person, they may want to look into why; like maybe they aren't getting all the fatty acids they should out of their diet. Villous atrophy perhaps?

[Jestgar]

Nadia - I am familiar with oil pulling. While I know there is clinical data showing it reduces amounts of plaque buildup - great for oral health - there is no other evidence (except anecdotal...) of it doing anything else. Hey, if you can buy a bottle of good cooking oil and use it as mouthwash every morning and feel better, what big pharma company is going to pay to research that unless they can genetically engineer some seed to produce a better oil-pulling oil?

This being said, I tried it and it did so many wonderful things for my health I am not skeptical about its benefit. Doing oil pulling was sort of the beginning of the road to me finding out more about celiac. I was thinking, "this is weird. why would mouthwashing with some oil in the morning ease my sinuses and joints and help my skin? why?" my unprofessional opinion is that I was not absorbing fats properly - celiacs often don't, right? Soaking oil in your mouth for 20 minutes gives your body the opportunity to soak up some of the oil via sublingual or buccal (cheek) tissue. Sublingual delivery is used for meds all the time, why not fatty acids? the oil pulling was so good I started taking omega-3s and that was beneficial to me too. So all this is to say that, imho, if oil pulling does a whole lot of good for a person, they may want to look into why; like maybe they aren't getting all the fatty acids they should out of their diet. Villous atrophy perhaps?

This has got to be the most sensible explanation of the action of oil-pulling that I have ever seen.

[Nadia2009]

Nadia - I am familiar with oil pulling. While I know there is clinical data showing it reduces amounts of plaque buildup - great for oral health - there is no other evidence (except anecdotal...) of it doing anything else. Hey, if you can buy a bottle of good cooking oil and use it as mouthwash every morning and feel better, what big pharma company is going to pay to research that unless they can genetically engineer some seed to produce a better oil-pulling oil?

This being said, I tried it and it did so many wonderful things for my health I am not skeptical about its benefit. Doing oil pulling was sort of the beginning of the road to me finding out more about celiac. I was thinking, "this is weird. why would mouthwashing with some oil in the morning ease my sinuses and joints and help my skin? why?" my unprofessional opinion is that I was not absorbing fats properly - celiacs often don't, right? Soaking oil in your mouth for 20 minutes gives your body the opportunity to soak up some of the oil via sublingual or buccal (cheek) tissue. Sublingual delivery is used for meds all the time, why not fatty acids? the oil pulling was so good I started taking omega-3s and that was beneficial to me too. So all this is to say that, imho, if oil pulling does a whole lot of good for a person, they may want to look into why; like maybe they aren't getting all the fatty acids they should out of their diet. Villous atrophy perhaps?

I agree with Jetsgar. It makes sense! I think I have been soaking up some of the oil. Do sesame oil contain omega 3?