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Short Bowel Syndrome

wildones

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wildones Apprentice
wildones
Posted

I have 7-1/2 yr old triplets, two of whom have either confirmed or suspected celiac disease. One of the boys also has short bowel syndrome-he had 70%+ of his small intestines removed, his ileocecal valve removed and part of his colon removed. He already has extremely challenging nutrition needs w/ short gut. Adding a gluten free diet to the challenges he faces is REALLY overwhelming to me right now. He has been gluten free for @ 7 months and has improved greatly as far as pain/nausea/constipation goes. Celiac patients can be CONSTIPATED and not just have diarrhea. I think in a strange way the celiac (constipation) helped his short bowel symptoms.

Does anyone else have a child with other signifigant nutrition challenges besides celiac ?

I posted 2 similar posts because I didn't see where the first one showed up :huh: I realized that I had posted once it had been 7 months, and the next time 9 months of being gluten free for my son. Both my sons are now gluten free, one for 2 months longer.

I am easily confused sometimes, due to severe sleep deprivation for over 7 yrs :unsure:

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