Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Krispies

Guest andy_uk

By Guest andy_uk
in Gluten-Free Foods, Products, Shopping & Medications

Recommended Posts

Guest andy_uk
Guest andy_uk
Posted

Are rice krispies suitable for celiacs as it says on the ingredients contains barley malt flavouring and on some sites it says it is allowed but on others it says it isnt the reason i ask is because i had a rather large bowl of these and am now suffering with diarrhea yes graphic i know sorry but i want to work out if it was that or something else that caused it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Rice Krispies are not ok for us. They contain barley malt and are a definite no for us. Hope you feel better :D

One cereal we can have are cocoa and fruity pebbles...they are manufactured by Post which is a branch of Kraft foods so they will not hide anything.

Guest andy_uk
Guest andy_uk
Posted

oops i automatically presumed rice krispies aka rice doh bloody keloggs i really cant get used to this at all it is hard

KaitiUSA Enthusiast
KaitiUSA
Posted

How long have you been on a gluten free diet? I know it can be hard at first since it is a tough adjustment and your not sure what you can have or not have but it gets easier...if you need any help just email me or something and I can help you out

Guest andy_uk
Guest andy_uk
Posted

i have only just started i was ill for around 7 weeks constantly having major diarrhea etc so i just ate potatoes and chicken as that seemed to stop it then when i told the doctor this he said i had done the right thing and that i was halfway there to finding out what was wrong as it seemed to be food related he then suggested to try not eating gluten and wheat to see if that helped the situation and he ordered some bloods to be done since i have stopped having it i have been fine and felt 100% ok until i ate these and the symptoms returned he did however say after so long to try having something with it in to see if it returned but i have been apprehensive to try it guess i found out by accident instead lol just waiting for the results coming back now :blink:

KaitiUSA Enthusiast
KaitiUSA
Posted

That's great you were able to feel better so quick from it. I didn't see a major difference till 3 months and then took me another couple months to get back to normal. Did you get your tests done while you were still on gluten? That can make tests come back negative for celiac if you have been gluten free.

Good luck with everything :D

Guest andy_uk
Guest andy_uk
Posted

Well what i meant was i didnt have diarrhea anymore still didnt feel like me or how i used to anyway but at least i aint doing the 100 meter dash now whenever i eat something i had the tests done while staying clear of gluten but i have only been avoiding it for about 1 - 2 weeks i had my tests done yesterday so they will be around 1 week before i get the results i dont know how quick american doctors are but british doctors tend to be on a go slow most of the time in a way im kind of relieved that the rice krispies gave me diarrhea but at the same time it gets to me as it is yet another thing i cant have anymore its hard as it seems like everything i used to eat contains it so now i am avoiding it im sure you know the feeling

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

Yeah I know how it feels...took me a while to get used to the diet and it annoyed me but I was reminded constantly...it could be worse. Being off of the diet 1-2 weeks prior to testing could change results...hopefully it does not change results in your case but it very well could.

Over here doctors can be the same way. It took me about 4 days to get results and for the in depth panel took about a week.

Talk to you soon :D

celiac3270 Collaborator
celiac3270
Posted

My results got back from the lab pretty quickly, but the doctor took a couple days longer to contact me about them. <_< Well, if the average American celiac has the disease for 11 years before getting diagnosed, I guess a few extra days isn't that big a deal.

It is very overwhelming at first--and depressing for that matter--to cut out all those foods and try some gluten-free foods that are...mediocre at best! A few months, though, and you'll know all your favorites, have to think only twice (not 4 times) about what you can eat. Just hang in there. Also, you'll be told sometimes, that you need to go 100% gluten-free immediately. My GI, though, is giving a talk at the celiac conference in New York about how you'll go crazy trying to be 100% gluten-free the first week...it's better to ease your way into it and really plan. Don't worry about the Rice Krispies...nearly all of us (myself included) had a couple slipups in the beginning--right now, just try to work out the kinks. ;)

Guest nini
Guest nini
Posted

I buy Erewhon Crispy brown rice, to me tastes just like rice crispies, only it's gluten-free

The first few months I was gluten-free I made some mistakes, and I paid for them, but it is an adjustment period, and even after being gluten-free for 2 years now, I still make a mistake every now and then, I assume something is safe and it's not. Like I assumed that Corn Pops were still gluten-free and didn't realize until it was too late that they had changed their formula. Always double check labels even on products you've bought many times before.

minibabe Contributor
minibabe
Posted

I just finished a box of erewhon crispy brown rice and it tasted a little burnt. I dunno if it was just the box I got or it was the cereal? maybe I should try another box?

KaitiUSA Enthusiast
KaitiUSA
Posted

In my opinion that brand tastes a little on the burnt side. I use them only for rice krispy treats because they taste the same to me then. I don't eat them plain...for plain cereal I like Envirokidz and Cocoa and Fruity Pebbles.

Guest BellyTimber
Guest BellyTimber
Posted

Hello Andy. I'm from the UK too. I've had more than the couple of slip-ups celiac3270 mentioned and am two years in. Your doctor sounds relatively efficient and sharp - so far!

Because the majority of forum users are U.S. with a few Canadians and others the brand names and company policies are sometimes different. We have a UK section of the forum for UK specific products, places etc but sometimes the issues are just the same in the U.S. so I think you did the right thing there.

I moved home twice after having to go gluten-free and have ended up in a place with a kitchen one-tenth the size so am having to convert half the flat into a kitchen extension, with extra shelves to hold equipment and food stocks.

Keep us posted about your doctor & any more food queries.

Re toasted rice things, Kallo do rice puffs that are plain with nothing else (plus a version with honey) which are relatively expensive. Big Oz do organic ones (lots of food miles :lol: ) ditto. One or two health food shops do an own brand that may be slightly cheaper.

Best of wishes,

Guest andy_uk
Guest andy_uk
Posted

Yeah i seem to be getting towards normal again :) thank god its hard to know what you can and cant have there is so much rubbish in some things that you just have no idea or i dont at least lol and then there are the annoying manufacturers ho seem to think its funny to not list there ingredients making life harder for us :angry:

Guest BellyTimber
Guest BellyTimber
Posted

:) Queries about products & places are particularly good to raise under "UK & Europe" which I regularly check but on universal ingredients, cooking issues, symptoms and just plain coping the other portions of the forum are ideal.

Keep us posted about your tests, everyone seems to undergo a different procedure, and mine in particular is not a textbook story.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    2. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
    3. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
    4. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test. In...
    5. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Seeking advice on potential gluten challenge

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covere...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,153
    • Most Online (within 30 mins)
      7,748
    Jenn18
    Newest Member
    Jenn18
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      Have I got coeliac disease

      By trents · Posted

      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.