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Celiac Disease Noob Xd


Myles

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Myles Newbie

So a few weeks ago I was diagnosed with Celiac Disease and a bunch of other stuff I can't even remember XD. When I found this information out, the first thing I thought of was, "There has to be a forum on it!!!" XD and there is!!!

I'm relieved that they finally know what it was....but at the same time I have had this my whole life. I remember being a kid and not wanting to go to kindergarden let alone preschool because I always had the "runs".

I live a little over 2 hours away from the Mayo Health clinic in Rochester, MN. I've had tons of tests done my whole life...and had more colonoscopies than all four of my grandparents put together XD. They couldn't find out what was wrong with me, because they always thought it was in my head, and I would cause myself to have diarrhea from stress and depression. However, the whole reason why I had stress and social anxiety was because I didn't want to be out in public and get hit with diarrhea hahah so that sucked.

Anyways I wont rant on and on about my life XD. However, i'm just frustrated that it took them my whole school life wasting all this money on tests. To in the end send in one stool sample and get all these results back that I do in fact have Celiac disease and that my body is allergic to tons of different food. Eggs being the MOST. On the chart it shows 600 as high..and i'm 2892 O:

So now I just need to think of...since this caused me to fail college...now what do I do ><. Atleast now I can live a


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mushroom Proficient

Congratulations on finally solving the puzzle after all these years. If you do much reading around here, you will find you are far from alone. Most of us have spent years trying to convince doctors that there is nothing wrong with our heads but something seriously wrong with our bodies. It is incredibly frustrating and wasteful of medical resources.

Sounds like you will have quite a few dietary changes to make if you are intolerant of other things as well (again, many of us are). You will find a recipe and cooking thread on here which should be of some help, and of course if you just google for a recipe listing the things you want it to be free of, you should come up with some choices. I do hope you like to cook :ph34r:

Feel free to drop in and ask questions any time.

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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