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Celiac Disease Noob Xd


Myles

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Myles Newbie

So a few weeks ago I was diagnosed with Celiac Disease and a bunch of other stuff I can't even remember XD. When I found this information out, the first thing I thought of was, "There has to be a forum on it!!!" XD and there is!!!

I'm relieved that they finally know what it was....but at the same time I have had this my whole life. I remember being a kid and not wanting to go to kindergarden let alone preschool because I always had the "runs".

I live a little over 2 hours away from the Mayo Health clinic in Rochester, MN. I've had tons of tests done my whole life...and had more colonoscopies than all four of my grandparents put together XD. They couldn't find out what was wrong with me, because they always thought it was in my head, and I would cause myself to have diarrhea from stress and depression. However, the whole reason why I had stress and social anxiety was because I didn't want to be out in public and get hit with diarrhea hahah so that sucked.

Anyways I wont rant on and on about my life XD. However, i'm just frustrated that it took them my whole school life wasting all this money on tests. To in the end send in one stool sample and get all these results back that I do in fact have Celiac disease and that my body is allergic to tons of different food. Eggs being the MOST. On the chart it shows 600 as high..and i'm 2892 O:

So now I just need to think of...since this caused me to fail college...now what do I do ><. Atleast now I can live a


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mushroom Proficient

Congratulations on finally solving the puzzle after all these years. If you do much reading around here, you will find you are far from alone. Most of us have spent years trying to convince doctors that there is nothing wrong with our heads but something seriously wrong with our bodies. It is incredibly frustrating and wasteful of medical resources.

Sounds like you will have quite a few dietary changes to make if you are intolerant of other things as well (again, many of us are). You will find a recipe and cooking thread on here which should be of some help, and of course if you just google for a recipe listing the things you want it to be free of, you should come up with some choices. I do hope you like to cook :ph34r:

Feel free to drop in and ask questions any time.

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    • Scott Adams
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    • Scott Adams
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    • Bebee
      I have been diagnosed with Microscopic Colitis (LC) for quite a few years, so I have been gluten-free and DF.  I would like to get tested for Celiac Disease because of the possibility of cross contamination and colon cancer.  And if you were hospitalized and didn't have a celiac diagnosis you could not get gluten-free food, I don't know if that is true or not.  Also because there is chance of colon cancer so I want to know if I have Celiac Disease and need to be on very restrictive diet.  The only testing I did was a sigmoid scope and Enter Lab but no gene testing.  I know I can go back to eating gluten for a few months, but I would worry you would have to stay home for the few months while getting gluten.  What other options do I have?  Should I do the gene testing?  Maybe through Entero Lab?  Any other tests?  How important is it to have Celiac diagnosed? Thank you! Barb
    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
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