Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Else Can I Eliminate? I Still Don't Feel Better.


B R I A N A

Recommended Posts

B R I A N A Apprentice

So I don't mean to be like a downer and I mean this as just not a bad way.

But like the oxalate diet I was looking into it and soy is a high oxalate and I eat a lot of soy, not because I think it's healthier but because I'm a vegan. Peanuts also they were saying is a high oxalate food, and I eat them for protein.

I don't mean to sound complicating or anything, I really appreciate the feed back. I just... don't know what I'll eat for the time I am watching my oxalate intake. You know?

I don't know why, but like when I stopped eating gluten, I didnt mind, it was easy same with dairy and not eating meat. Just... I'm not sure.

The constant urination, is definately annoying. If anything I'd like to fix that.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



B R I A N A Apprentice

So I don't mean to be like a downer and I mean this as just not a bad way.

But like the oxalate diet I was looking into it and soy is a high oxalate and I eat a lot of soy, not because I think it's healthier but because I'm a vegan. Peanuts also they were saying is a high oxalate food, and I eat them for protein.

I don't mean to sound complicating or anything, I really appreciate the feed back. I just... don't know what I'll eat for the time I am watching my oxalate intake. You know?

I don't know why, but like when I stopped eating gluten, I didnt mind, it was easy same with dairy and not eating meat. Just... I'm not sure.

The constant urination, is definately annoying. If anything I'd like to fix that.

Link to comment
Share on other sites
Zachnap Newbie

^Well, I am very certain that your problem is with oxalates - almost 100% from what you have said. In fact, I think that many of the people here who are claiming problems from corn and soy are actually problems with oxalates. I though the same for a while until I figured it out.

You say you are a vegan - that is fine, I don't want to tell you that there is something wrong with that. But, you don't have to be a vegan. You can continue to eat foods which are causing chronic problems for your body at the moment like soy and the others or I'll post some stuff that you should be able to eat. Maybe you can just eat some meat here and there for now - I don't know your reasons for being a vegan but...

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

So, I guess dairy is out too right? Can you get by with going just vegetarian for now or do they not eat dairy either? I mean not all animals are raised on factory farms - there are organic farms and such. Just imagine if plants, animals and people all had the same rights - we could only eat rocks. Sucks to think about that. Just having fun, forget that, I know you are serious about not eating animal stuff.

But essentially there are some vegetables(some lettuce (romaine, iceberg I think), cauliflower, broccoli, I've been okay with small amounts of orange/yellow tomatoes), herbs and a couple nuts and beans (black-eyed peas, split peas and mung beans). Now, once you get your daily oxalate content down, you can get away with small amounts of Medium Oxalate foods but it might be possible for you to eat Low and Medium now - it just depends on you. I seem to be very sensitive to oxalates at the moment but those symptoms we talked about are gone 75% of the day now only occurring when I eat to much of something with medium content. Again, you might only be unable to eat foods high in oxalate, find some stuff of low to medium content and swap them out for soy. See if that helps. Eat Black-eyed peas and split peas instead of peanuts for Protein and Flax seed for folate. You'll need some B12 and Vit D since you aren't eating meat and dairy. See what happens. Just try it for a couple weeks.

They are working on a probiotic containing Oxalobacter Formigenes (think I spelled that right) which is a natural bacteria that breaks down oxalates and present in the digestive tracts of most people. Things like Celiac can destroy the bacteria cultures in the intestine which could be one of the reasons why you and I have problems with these foods. This probiotic will help re-culture the intestine.

Ultimately, what you do is your decision. Eat some stuff that you may not want to at the moment(such as meats/dairy) and eliminate soy/peanuts, continue taking anti-inflammatory meds which may cause severe problems down the road or just deal with the pain. Did you say you were taking calcium supplements? Continue to take that as it locks up oxalic acid (oxalates) into calcium oxalate before it can enter the blood-stream. Just drink lots of water to flush that out.

Link to comment
Share on other sites
shirleyujest Contributor

Have you been tested for bladder infection and/or kidney infection? Just an idea. I would definitely drink more water, 8 glasses/day and don't forget extra salt cuz the water w/o salt is not good either. Someone here correct me but think we need 1/3 tsp. salt daily and when you cut out all processed food you don't get enough unless you add it.

In my case I have very low blood pressure and get light-headed w/o making a point of adding salt to food or eating salted nuts.

There's a ton of nuts and nut butters out there so you don't have to eat peanuts for protein. I eat a alot of almonds and almond butter, plus chopped walnuts, sprinkle them on my gluten-free waffles.

Also I'm inclined toward one of the other posters who suggested adding a little meat or at least eggs to your diet. Healthy people can get sufficient protein being vegan but you have enough health problems and are so limited in foods it may be that you are one who needs small amounts of meat. If you're concerned about how animals are treated you can buy free-range eggs pretty much everywhere now; organic meats are also widely available. I don't want to disrespect your choice though, if you have a strong conviction about eating vegan then I'm sure you'll find your way.

Link to comment
Share on other sites
yttap Newbie

I am shocked! If Rice Dream contains gluten for sure then that is where I have been glutoned from 2 weeks ago! I have wracked my brain trying to figure out where. For sure gluten ? Why?

[/quote

=============

why do you use rice milk if you re concerned about the gluten?? I use almond and goat milk. I use the Pacific brand of almond milk (from Trader Joes) but I think Whole Foods has it too. It doesn't have all the crap in it like the other brands. Just because you are watching the gluten/wheat-- doesn't mean you can't be sensative or allergic to other stuff like MSG or regular table salt. I use only sea salt.

Link to comment
Share on other sites
knittygirl1014 Rookie

Everyone has made a lot of good suggestions, but I just wanted to add some products that I like that are safe.

I am currently off eggs, dairy, soy and gluten, so I can relate to your troubles. I do eat meat though. When I was still eating all these things I used to get those stabbing pains in my chest too. My doctor freaked out and made me get an EKG, but it was normal. When I cut out all those things, the pains stopped. If you were drinking Rice Dream and getting glutened before, that could be the problem. You might want to check all your condiments and stuff for hidden gluten.

If you are concerned about getting enough protein, health food stores sell those big jars of protein that you stir into a shake. I got some that is made from rice protein and it's processed without chemicals. I can't remember the name but it comes in a white plastic jar with a brown lid (it's chocolate flavor). I mix this with Westsoy rice milk in the morning and have a piece of fruit with it.n Also keep in mind that most Americans eat twice as much protein as is really necessary. I started logging my food in a program that tracks the nutrients, and it's not really that hard to get enough protein to satisfy your body's requirements. Just keep in mind it should be complete protein, i.e. a good balance of amino acids.

I don't use margarine because it usually has soy. Instead I got Spectrum shortening which is just palm oil, and it has no trans fat. Coconut oil was a good suggestion too, but I don't like the texture as much. Avocadoes are also a great way to add some texture and fat to vegetables or a meal. Olive oil also.

As for potatoes, the taro suggestion was good, but if you just need something carby and delicious, consider plantains as well. They are like a banana, but more starchy. I'm not sure if you'd be able to get them fresh all the time, but there are plantain chips available.

If you cook at all, making bread with bean flours can be helpful, although the taste is stronger than other gluten free flours. If you look in Indian food stores, they usually have a variety of flours you can use, like millet, rice and bean flours. It might be worthwhile to learn an easy recipe for flatbread. Usually it's just flour, oil and water and a little salt. I know it's hard to be able to just grab something and go when you have so many dietary restrictions, so I always keep something like that around.

OK just another random tip... I discovered a lot of great websites about the raw food diet. Although I'm not anywhere near that extreme, it helped me discover a lot of interesting and delicous foods that I could add to my diet so I wouldn't feel deprived while cutting out all those other things.

I hope you feel better soon!

Link to comment
Share on other sites
Sprite Newbie

Have you been tested for vitamin, mineral and essential fatty acid deficiencies? With your limited food categories that could be a real problem for you. Taking multivitamins isn't enough if you're already deficient and some vitamins depend on other vitamins for good absorption (i.e. a vitamin D deficiency hinders calcium absorption and vitamin D deficiency is a very common problem). Maybe that's why you're peeing out calcium?

Either way, it's worth discussing with your doctor if you haven't been tested for deficiencies yet.

Signs of Fatty Acid Imbalance (from the book "Smart Fats")

Dry skin

Dandruff

Frequent urination

Irritability

Attention deficit

Soft nails

Alligator skin

Allergies

Lowered immunity

Weakness

Fatigue

Dry, unmanageable hair

Excessive thirst

Brittle, easily frayed nails

Hyperactivity

"Chicken skin" on backs of arms

Dry eyes

Learning problems

Poor wound healing

Frequent infections

Patches of pale skin on cheeks

Cracked skin on heels or fingertips

Open Original Shared Link

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OptimisticMom42 Apprentice

Wow, lots of great advise! Did anyone suggest adding coconut milk to your diet? It's pretty safe and easy. I use it in place of butter in recipes or half it with water to use as milk. Much healthier than soy. It also has a good protein level and is easy to find in the ethnic foods section of any grocery store for about $2.00 a can.

Also read up on corn. It sounds like some of your problem foods contain a lot of corn.

The elimination diet is really easy and the safest way to figure this all out.

best wishes

Link to comment
Share on other sites
Looking for answers Contributor

May I make a few suggestions? I went through all of this as well.

I think you need to focus on repairing your intensitnal track, and the first place to start with this is to eliminate ALL processed foods for a while. If you have blood sugar problems and don't eat meat (I used to be a vegan too and didn't eat meat), you really need to be sure you're getting a lot of protein with each meal, and not processed protein like soy products. For the dirty dozen vegetables/friuits (google to find this list) eat these organic, it will really help boost your immune system.

Next, I can't stress how much this helped me. Get on a GOOD probiotic and digestive enzymes and get away from the antiacids. I went through the same thing and it only gets worse unless you address the underlying issues, which probiotics and enzymes will help greatly with. I suggest checking our Dr. Brends Watson's line . . . she has many wonderful products to help replenish intestinal tracks and her probiotics are awesome, albeit a bit pricey.

May I also suggest taking a whole food supplement and not snthethic ones. You will be able to absorb them better and you can take them on an empty stomach because they're just food...no more stomach upset, ever! I take the New Chapter brand (more reasonable on vitacost.com). I agree with the others, take Omega 3 supplements and take lots of vitamin d (i take 5,000 IUs a day)...it helps with inflammation.

I really hope this helps. It breaks my heart to hear your pain...I've been there before but now I'm super healthy and strong!

Link to comment
Share on other sites
Korwyn Explorer

Hi Brianna,

Given what I've read so far, I'd really suggest you take a look at the GAPS (Gut And Psychology Syndrome) diet. Its specific focus is on rebuilding the correct healthy flora balance in your gut. Once that is done, as some people have pointed out already, a number of other issues may resolve themselves.

As a vegan though it may create a problem for you as it is heavy on the meat and protein, but I have resolved that by getting locally raised grass-fed organic eggs, chicken, pork, and beef from local farmers. On the positive side once you move past the first couple of months you could look at reducing the meat intake as long as you continue to get sufficient non-processed animal fat into your diet.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,675
    • Most Online (within 30 mins)
      7,748

    Pua
    Newest Member
    Pua
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @MomofGF! I know you said you are not looking for a dx but the symptoms you describe scream of celiac disease as opposed to NCGS (Non Celiac Gluten Sensitivity). Celiac disease does not damage the stomach lining but rather the lining of the small bowel, i.e., the intestinal area right below the stomach. This is the area where all of the nutrition from what we eat is absorbed. This lining is made up of millions and millions of microscopic finger-like mucosal projections that create an enormous nutrient absorbing surface area. Celiac disease causes chronic inflammation of this lining (when gluten is consumed) that wears down the finger-like mucosal projections or causes "blunting" of them as we say. This greatly reduces the nutrient absorbing surface area of the small bowel. All this explanation to make the point that long term undiagnosed and untreated (by a gluten free diet) celiac disease typically results in vitamin and mineral deficiency related medical problems and other symptoms, even for those who are eating well. Several of your daughter's symptoms and health issues, such as hair loss, fatigue and irregular menses could well be caused by celiac nutrient malabsorption. And nausea and diarrhea are certainly classic celiac disease symptoms. The problem is, as she has already been eating gluten free, an official diagnosis of celiac disease would require her to undertake a "gluten challenge" for a period of weeks. Given the severity of her reaction to gluten consumption, that does not seem advisable. I would suggest you consider getting her genetically tested for possessing the genes that have been connected with celiac disease. We know that two genes, RLDQ 2 and RLDQ 8, are primary markers associated with the development of celiac disease. Since 40% of the population possesses one or both of these genes, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out and, therefore, push the diagnosis toward NCGS instead.  To answer your original question, let me assure you, as a moderator and one who has participated on this forum for many years, all of the symptoms your list in connection with your daughter's gluten-related disorder are common to the celiac/gluten sensitive community with the possible exception of the epidermal brown spots. Oh, yes, for an adult in often takes two years or more for thorough healing of the small bowel lining once going gluten free. Less for young people, probably. Regular mistakes in gluten exposure will extend that of course. I also wanted to add that it sounds like your daughter should be on some high potency vitamin and mineral supplements. And I'm talking about more than a multivitamin. All supplements must be gluten free as wheat starch can be used as a filler in pills.
    • MomofGF
      I also forgot to add, her menstrual cycle is not regular. She gets maybe 5 periods a year. 
    • MomofGF
      Hey all I have a 17 year old daughter. Since last May 2024, she has not been able to digest gluten period. I want to be clear that I am not looking for a diagnosis but just someone who may be experiencing the same things. Here is what she has as symptoms; 1) first off, if she eats anything with gluten she is violently ill. She is bloated. Has extreme pain in her abdomen. She vomits and has diarrhea. This may last up to a day or it can go up to 3 at most. She was a camp counsellor this summer and the chef contaminated the gluten-free zone and a lot of people were sick but she was out for 2 days in their clinic.  2) extreme fatigue (she has fallen asleep in school a couple times) 3) joint pain and/or muscle pain 4) hair loss 5) frequently nautious 6) brown spots on skin (not a rash) Also, I heard it was genetic. I checked with my family and no one has any issue with gluten. I thought she might have had addisons disease because that’s where it could have developed but her blood was ruled out for that. They didn’t blood test her for Celiac weirdly and I didn’t know that is how you can be diagnosed to be honest. I am just worried. This girl feels ill everyday. I did read another blog where it was said it can take a year for the stomache lining to be ok again, would this be the reason for her feeling sick despite not have gluten in her diet what so ever?    Thanks 🙏 for all your advice/feedback if any and have a great day   MomofGF    
    • knitty kitty
      @Louise Broughton, Some types of interferon drugs can precipitate a Thiamine deficiency, by destroying thiamine and blocking its absorption.  Thiamine deficiency symptoms encompass all the symptoms you listed.  Gastrointestinal Beriberi caused by Thiamine deficiency has symptoms of vomiting, bloating, abdominal pain and diarrhea.  I've experienced this.  I took high dose Thiamine in the form Benfotiamine, and a B Complex. Thiamine can also be low on the Gluten free diet.  Talk to your doctor about supplementing with Benfotiamine and the B vitamins.   Interesting Reading: Gluten-free diet intervention reduces thiamine intake in two weeks, increases glycaemic response and decreases body weight in four weeks, with no long term nutritional deficiencies https://pubmed.ncbi.nlm.nih.gov/34583628/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • knitty kitty
      Hi, @Blue Roan, I have Sjogren's Syndrome that made my salivary glands under my jaw swell.  I also have dry eyes from Sjogren's.  Yes, Sjogren's is yet another fun autoimmune disease that can occur in Celiac Disease.  It starts in the salivary glands. Vitamin D deficiency can also make salivary glands swell.  I was very deficient in Vitamin D also.  Vitamin D is instrumental in regulating the immune system and lowering inflammation. My dentist checked for stones blocking ducts in the salivary glands, too, but I didn't have any of those.  Yeah!  Try cutting out the antihistamines, because they make everything dry up.   Correcting my Vitamin D level to 80-100 nmol/ml has helped immensely.  I also supplement with Omega Threes (flax seed oil, oil of evening primrose) which has also helped my dry eyes and reduced my enlarged salivary glands.   Hope this gives you some direction to go next on your journey.  Wish it was better news.  Keep us posted on your progress!   P.S. Interesting Reading: Association Between Vitamin D and Minor Salivary Gland Inflammation https://pmc.ncbi.nlm.nih.gov/articles/PMC9807185/ Outline of Salivary Gland Pathogenesis of Sjögren’s Syndrome and Current Therapeutic Approaches https://pmc.ncbi.nlm.nih.gov/articles/PMC10342367/
×
×
  • Create New...