Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gold Crowns, Macular Degeneration, No Vitamin D


SandyStPeteFL

Recommended Posts

SandyStPeteFL Rookie

I was diagnosed in Nov of 2008 with the endoscopy and the blood work. In the past six months I have been having bleeding gums with my gold crowns are on my teeth. The dentist has done x-rays and such and can see no problems except that I am having bleeding and irritated gums. But only where the gold crowns are.

Also, upon my last visit to the eye doctor, I have been diagnosed with the beginnings of dry macular degeneration.

Also, upon my last visit to my GP my blood work shows my Vitamin D level is at 15. Should be between 30 and 100. So now I am on 50,000 units of Vitamin D once a week for three months. She also threw out the word Fybromyalgia.

Does anyone else out there have these issues as well? Just curious or am I just the lucky one??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gfb1 Rookie
I was diagnosed in Nov of 2008 with the endoscopy and the blood work. In the past six months I have been having bleeding gums with my gold crowns are on my teeth. The dentist has done x-rays and such and can see no problems except that I am having bleeding and irritated gums. But only where the gold crowns are.

Also, upon my last visit to the eye doctor, I have been diagnosed with the beginnings of dry macular degeneration.

Also, upon my last visit to my GP my blood work shows my Vitamin D level is at 15. Should be between 30 and 100. So now I am on 50,000 units of Vitamin D once a week for three months. She also threw out the word Fybromyalgia.

Does anyone else out there have these issues as well? Just curious or am I just the lucky one??

sjogren's disease can be found in celiac patients; there are reports of an increased frequency of sjogrens among celiacs -- but, i can't remember the exact number:

here is some info:

Open Original Shared Link

mostly, but not exclusively, occurs in women and often mistaken for fibromyalgia... my wife was diagnosed with this 2 yrs after the celiac diagnosis. she has the ductal plug (in the lower tear ducts) to keep what tears she produces in the eye (like plugging a drain...), and uses artificial tears frequently throughout the day.

bleeding from gums CAN be due to overly dry mouth, irritated by crown; it is also a classic symptom of other nutritional deficiencies as well, but, i would hope that your doc would have seen those....

SandyStPeteFL Rookie
sjogren's disease can be found in celiac patients; there are reports of an increased frequency of sjogrens among celiacs -- but, i can't remember the exact number:

here is some info:

Open Original Shared Link

mostly, but not exclusively, occurs in women and often mistaken for fibromyalgia... my wife was diagnosed with this 2 yrs after the celiac diagnosis. she has the ductal plug (in the lower tear ducts) to keep what tears she produces in the eye (like plugging a drain...), and uses artificial tears frequently throughout the day.

bleeding from gums CAN be due to overly dry mouth, irritated by crown; it is also a classic symptom of other nutritional deficiencies as well, but, i would hope that your doc would have seen those....

Thanks for that information. My doctor had also mentioned that a couple of months back but I had forgotten about it until you wrote that. I have had dry eyes like crazy for about 6 months as well as dry mouth. I drink about 6, 17 ounce bottles of water a day, plus coffee and ice tea and juices. I go back to see her in another month and a half and I will ask her to re-visit that issue.

Agaom. tjamls fpr tje omfp/

gfb1 Rookie
[snip]

Agaom. tjamls fpr tje omfp/

another symptom is the inability to feel the little bumps on the letters 'F' and 'J' on your leba;ird///

:)

(btw -- don't wait on the artificial tears... just eyedrops and they help significantly. also water is notorious for being unable to make dry-mouth feel better... try a little salt or baking soda in water and rinse periodically. my wife found that sipping gatorade made her feel better -- but, avoid purple so your tongue doesn't change color...)

mushroom Proficient

I had the bleeding irritated gums adjacent to crowns--long ago, pre-gluten-free. I argued a long time with my periodontist about metal allergy; he finally recommended replacing them with ceramic crowns and, miracle of miracles, gums cleared up.

Huge numbers of celiacs have low vitamin D and also osteopenia/osteoporosis.

gfb1 Rookie
[snip]

Huge numbers of celiacs have low vitamin D and also osteopenia/osteoporosis.

it certainly appears that the population at-large (esp those in the north -- with less sun) have greater insufficiencies (if not deficiencies) of VitD than previously thought. although, i don't know of any evidence that celiacs are unique in this regard.

as far as osteoporosis; the prevalence of celiac disease among osteoporotic patients is increased to 1.5-3.0% (as opposed to 1%) and is well accepted. the converse (that celiacs have more osteoporosis than the population at large) has not been appropriately tested.

mushroom Proficient
it certainly appears that the population at-large (esp those in the north -- with less sun) have greater insufficiencies (if not deficiencies) of VitD than previously thought.

Don't forget those in the south too :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SandyStPeteFL Rookie
another symptom is the inability to feel the little bumps on the letters 'F' and 'J' on your leba;ird///

:)

Took me a minute on that one.....thanks, I needed a laugh....

SandyStPeteFL Rookie

My doc gave me a bone density test about four years ago (because of my age) and after I was diagnosed last year, she gave me another one....everything appeared to be okay at the time. Then the blood work on the vit D came back low. She told me to sit in the sun at least 15 minutes a day if I can and take the 50,000 units of vit D once a week. Then I will get tested again in two months. I know I do have more color in my face now...not quite so pale.

I go back to the dentist in June for another cleaning.....I will mention the allergy to metals then. He has already suggested removing the gold crowns and replacing with porcelain. Might try just one side of my mouth first. I have three gold in the back on the right and two in the back on the left.

I have an appointment with my doc on Monday upcoming so I will remind her about the Sjogrens and the new issues I have now.

Thanks to all of you for your help and information.....

Jestgar Rising Star
(btw -- don't wait on the artificial tears... just eyedrops and they help significantly.

I use Open Original Shared Link. comes in different formulations (which get thicker). I find I can use the 'moderate' a couple times a day, as opposed to using cheaper stuff every couple hours.

SandyStPeteFL Rookie
I use Open Original Shared Link. comes in different formulations (which get thicker). I find I can use the 'moderate' a couple times a day, as opposed to using cheaper stuff every couple hours.

Thanks, I appreciate the information on the eyedrops. I will check into it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,090
    • Most Online (within 30 mins)
      7,748

    Kerischultz
    Newest Member
    Kerischultz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for following up with us on the results. This might be helpful to you now:  
    • Kiwifruit
      Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    • Scott Adams
      I agree that the gastritis may go away after you've been on a gluten-free diet for a while. If you are concerned, it might make sense for you to do a follow up biopsy after  a year or so on a gluten-free diet. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Scott Adams
      Getting tested for celiac disease is a valid concern, especially given your history of microscopic colitis and the potential risks associated with undiagnosed celiac disease, such as cross-contamination, nutrient malabsorption, and increased cancer risk. Since you’ve been gluten-free for years, reintroducing gluten for the standard celiac blood tests or endoscopy would be challenging, as it requires consuming gluten for several weeks to months, which could worsen your symptoms and disrupt your daily life. Gene testing (HLA-DQ2 and HLA-DQ8) through a lab like EnteroLab could be a helpful first step. While these genes are present in nearly all celiac patients, having them doesn’t confirm celiac disease—it only indicates genetic susceptibility. If you don’t have these genes, celiac disease is highly unlikely, which could provide some peace of mind. However, if you do have the genes, it doesn’t confirm celiac disease but suggests further testing might be warranted if you’re willing to undergo a gluten challenge. Another option is to discuss with your doctor whether a follow-up endoscopy or other non-invasive tests (like stool tests for gluten antibodies) could provide insights without requiring a gluten challenge. While a formal celiac diagnosis can be important for ensuring strict dietary adherence, access to gluten-free options in hospitals, and monitoring for complications, it’s also worth weighing the risks and benefits of reintroducing gluten. If you’re already strictly gluten-free and managing your symptoms well, the urgency of a formal diagnosis may depend on your personal health goals and concerns. Consulting a gastroenterologist familiar with celiac disease and Microscopic Colitis can help guide your decision.
    • Scott Adams
      Steatorrhea (oily or fatty stools) can indeed be a symptom of malabsorption, which is often linked to gluten exposure in individuals with celiac disease. While it’s possible that a single glutening event, like cross-contamination at a restaurant, could trigger temporary steatorrhea, it’s also worth considering whether there’s a more chronic source of gluten exposure, such as in medications or ongoing dietary mistakes. Since you’ve been less careful recently and experienced this symptom after eating out, it’s plausible that the fries or other cross-contaminated foods could be the culprit. However, if the steatorrhea persists, it might indicate ongoing gluten exposure or another underlying issue, such as pancreatic insufficiency or bile acid malabsorption. Until you can see a GI doctor, it might help to strictly avoid any potential sources of gluten, including cross-contamination, and monitor your symptoms. If the issue continues, it’s important to investigate further, as persistent steatorrhea can lead to nutrient deficiencies. In the meantime, keeping a detailed food and symptom diary could help identify patterns or triggers. Good luck finding a new GI doctor—hopefully, they can provide clarity soon!  
×
×
  • Create New...