Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many P.p.m. (gluten) Can You Safely Tolerate?


doodle

Recommended Posts

doodle Rookie

Hey everyone, we are busy baking up a storm for our first day of gluten-free baking at the market and much to my horror I had a call from a supplier I know to inform me that he had one of "our" (his and mine from the same distributor) flours tested independently and found that they were over our Canadian "legal limit" of 20 p p m. (parts per million) All the rest were fine but it was just one product that was a bit over our Cnd safety standard.

It is my understanding that in the states, your allowable p p m is much higher than that and I wanted to find out how many celiacs are able to tolerate:

any VS some VS up to XX p p m of gluten in their flours and products.

I realize in a perfect world it would be great to have 0 ppm but that seems to be unrealistic according to my research. The cost to have each and every bag of flour tested would be astronomical and then what can I do with "almost" gluten free product :( ?

You see as it turns out, my distributor takes every precaution to avoid cross contamination but I have no control as to what has happened before it gets to my doors. So I would appreciate hearing from you to help me with my dilema.

And yes I am diligently sourcing another supplier , it's just the short term issue I need to deal with and your information would be very helpful.

thanks , doodle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tim-n-VA Contributor

It is a long article and I don't have time to sort thru it but a recent discussion on this cited this article as a source for threshold info:

Open Original Shared Link

nutralady2001 Newbie

In Australia gluten must be <5 ppm to qualify as gluten free (but must still be stated on the label)

  • 2 weeks later...
jrc121 Newbie

Zero.

I have celiac disease.

psawyer Proficient

This is one of those seemingly simple questions that does not have a simple answer.

The reason is that ppm is not the real issue. You must consider the total amount of gluten consumed over the course of time, say, a single day.

If I eat four slices of bread which are 5 ppm that is the same as one slice of bread that is 20 ppm.

MaryJones2 Enthusiast

Tim and Peter are correct about the PPM being a complex beast. 20PPM is generally accepted in the US but not yet a regulation. This is also a good explanation of PPM: Open Original Shared Link (There is one update to the doc - Europe also set their limit to 20PPM recently)

Did your supplier say what a bit over was? There are quite a few suppliers of flours made in dedicated facilities that would consistently fall well under 20ppm so maybe going with one of those companies would make you feel at ease knowing that you didn't have to test every batch that came in or worry about getting a call like that after the fact.

As you said, the immediate concern is the "almost gluten-free" bread and what to do with it. My concern is that you serve it to people who can't tolerate it and they get sick. People talk a lot when a product makes them sick and it could potentially hurt your future sales. Maybe if you put up a sign explaining the situation and let your customers know that you're getting a new supplier? The ones that know they are very sensitive would wait and the ones that know they could eat your bread would certainly try it. I think everyone would appreciate the honesty.

Tim-n-VA Contributor

A standard in PPM makes sense as a way to keep us from doing complex arithmetic in the grocery store. It does have implied assumptions. The two big ones are that a typical celiac can eat some small amount of gluten without clinical results and that a "reasonable" amount will be consumed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Oh doodle, I am so sorry this happened to you.

I know you were trying really hard to undertake the new business the best and most respectful way possible. You really did your homework. I bet you are hopping mad. I would be :-(

Yes, I think if I were in your shoes, I would put a special label on that batch of product to explain what happened-- maybe you can give an approximation of the ppms you know about. I don't know what "slightly over" means, exactly. If it were 21 ppm, say, many people might not feel so bad about eating it. But if it is more like 50ppm, a lot more people wouldm't touch it. But people who are gluten light would.

Unfortuantely gluten is such a tricky beast and it turns up in so many places you don't expect in small quantities. I saw a post on here about Domata flours that said they actually walk the fields to make sure there are no gluten grains growing nearby or mixed in with the crop. Maybe you can check them out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      11

      Insomnia help

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      43

      My journey is it gluten or fiber?

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

    4. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      45

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,098
    • Most Online (within 30 mins)
      7,748

    BothySmithy
    Newest Member
    BothySmithy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
    • xxnonamexx
      I have taken the vitamins for a week. Haven't noticed any major changes but I will give it more time to see.
    • knitty kitty
      @Charlie1946,  Sorry I sidetracked your thread a bit.  Apologies. Proton pump inhibitors, like Omeprazole, change the pH in our gastrointestinal systems which allows opportunistic microbes to move in and take over.  Have you been checked for SIBO?  There's a significant link between length of Omeprazole use and SIBO.  I had SIBO, thrush (Candida) and lichen planus and other problems while I was on Omeprazole.  I had to stop taking it.  It was a horrible time, so I understand how painful and frustrating it is.   You change your microbiome (the bacteria and microbes living inside you) by changing what you eat.  They eat what you eat.  Change the menu and you get different customers.   I changed my diet.  I cut out dairy because I was reacting to the casein and lactose.  I cut out all processed foods and most carbohydrates. I ate meat and veggies mostly, some fruit like apples and mandarin oranges.  By cutting out all the excess carbohydrates, lactose, and empty carbs in processed gluten-free foods, the opportunistic microbes get starved out.  SIBO bacteria send chemical messages to our brains demanding more carbs, so be prepared for carb cravings, but don't let the microbiome control you!   The skin and digestive system is continuous.  The health of our outside skin reflects the health of our gastrointestinal system.  Essential B vitamins, like Thiamine B 1 and especially Niacin B 3, are needed to repair intestinal damage and keep bad bacteria in check.  Niacin helps improve not only the intestinal tract, but also the skin.  Sebaceous Hyperplasia is linked to being low in Niacin B 3.  Lichen Planus is treated with Niacinamide, a form of Niacin B 3.   Vitamins are chemical compounds that our bodies cannot make.  We must get them from our food.  If our food isn't digested well (low stomach acid from Omeprazole causes poor digestion), then vitamins aren't released well.  Plus there's a layer of SIBO bacteria absorbing our vitamins first between the food we've eaten and our inflamed and damaged villi that may have difficulty absorbing the vitamins.  So, taking vitamin supplements is a way to boost absorption of essential nutrients that will allow the body to fight off the microbes, repair and heal.   Doctors are taught in medical learning institutions funded by pharmaceutical companies.  The importance of nutrition is downplayed and called old fashioned.  Doctors are taught we have plenty to eat, so no one gets nutritional deficiency diseases anymore.  But we do, as people with Celiac disease, with impaired absorption.  Nutritional needs need to be addressed first with us.  Vitamins cannot be patented because they are natural substances.  But pharmaceutical drugs can be.  There's more money to be made selling pharmaceutical drugs than vitamins.   Makes me wonder how much illness could be prevented if people were screened for Celiac disease much earlier in life, instead of after they've been ill and medicated for years.   Talk to your doctor and dietician about supplementing essential vitamins and minerals.   Interesting Reading: The Duration of Proton Pump Inhibitor Therapy and the Risk of Small Intestinal Bacterial Overgrowth: A Systematic Review and Meta-Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC12250812/#:~:text=The long-term use of,overgrowth dynamics is less clear. Lichenoid drug eruption with proton pump inhibitors https://pmc.ncbi.nlm.nih.gov/articles/PMC27275/ Nicotinamide: A Multifaceted Molecule in Skin Health and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC11857428/
    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.