Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many P.p.m. (gluten) Can You Safely Tolerate?


doodle

Recommended Posts

doodle Rookie

Hey everyone, we are busy baking up a storm for our first day of gluten-free baking at the market and much to my horror I had a call from a supplier I know to inform me that he had one of "our" (his and mine from the same distributor) flours tested independently and found that they were over our Canadian "legal limit" of 20 p p m. (parts per million) All the rest were fine but it was just one product that was a bit over our Cnd safety standard.

It is my understanding that in the states, your allowable p p m is much higher than that and I wanted to find out how many celiacs are able to tolerate:

any VS some VS up to XX p p m of gluten in their flours and products.

I realize in a perfect world it would be great to have 0 ppm but that seems to be unrealistic according to my research. The cost to have each and every bag of flour tested would be astronomical and then what can I do with "almost" gluten free product :( ?

You see as it turns out, my distributor takes every precaution to avoid cross contamination but I have no control as to what has happened before it gets to my doors. So I would appreciate hearing from you to help me with my dilema.

And yes I am diligently sourcing another supplier , it's just the short term issue I need to deal with and your information would be very helpful.

thanks , doodle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tim-n-VA Contributor

It is a long article and I don't have time to sort thru it but a recent discussion on this cited this article as a source for threshold info:

Open Original Shared Link

nutralady2001 Newbie

In Australia gluten must be <5 ppm to qualify as gluten free (but must still be stated on the label)

  • 2 weeks later...
jrc121 Newbie

Zero.

I have celiac disease.

psawyer Proficient

This is one of those seemingly simple questions that does not have a simple answer.

The reason is that ppm is not the real issue. You must consider the total amount of gluten consumed over the course of time, say, a single day.

If I eat four slices of bread which are 5 ppm that is the same as one slice of bread that is 20 ppm.

MaryJones2 Enthusiast

Tim and Peter are correct about the PPM being a complex beast. 20PPM is generally accepted in the US but not yet a regulation. This is also a good explanation of PPM: Open Original Shared Link (There is one update to the doc - Europe also set their limit to 20PPM recently)

Did your supplier say what a bit over was? There are quite a few suppliers of flours made in dedicated facilities that would consistently fall well under 20ppm so maybe going with one of those companies would make you feel at ease knowing that you didn't have to test every batch that came in or worry about getting a call like that after the fact.

As you said, the immediate concern is the "almost gluten-free" bread and what to do with it. My concern is that you serve it to people who can't tolerate it and they get sick. People talk a lot when a product makes them sick and it could potentially hurt your future sales. Maybe if you put up a sign explaining the situation and let your customers know that you're getting a new supplier? The ones that know they are very sensitive would wait and the ones that know they could eat your bread would certainly try it. I think everyone would appreciate the honesty.

Tim-n-VA Contributor

A standard in PPM makes sense as a way to keep us from doing complex arithmetic in the grocery store. It does have implied assumptions. The two big ones are that a typical celiac can eat some small amount of gluten without clinical results and that a "reasonable" amount will be consumed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Oh doodle, I am so sorry this happened to you.

I know you were trying really hard to undertake the new business the best and most respectful way possible. You really did your homework. I bet you are hopping mad. I would be :-(

Yes, I think if I were in your shoes, I would put a special label on that batch of product to explain what happened-- maybe you can give an approximation of the ppms you know about. I don't know what "slightly over" means, exactly. If it were 21 ppm, say, many people might not feel so bad about eating it. But if it is more like 50ppm, a lot more people wouldm't touch it. But people who are gluten light would.

Unfortuantely gluten is such a tricky beast and it turns up in so many places you don't expect in small quantities. I saw a post on here about Domata flours that said they actually walk the fields to make sure there are no gluten grains growing nearby or mixed in with the crop. Maybe you can check them out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    2. - knitty kitty replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    3. - Wheatwacked replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

    4. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,578
    • Most Online (within 30 mins)
      7,748

    BilboB
    Newest Member
    BilboB
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      Most people are already deficient in minerals.  I can understand the concern. However, if you do happen to get enough through supplementation, drinking pure distilled water is not going to matter.  I happen to get over 100% of rda vitamins and minerals.   I push myself to get 4000 mg of potassium a day through food, drinks, and supplements combined. I don’t know anyone else that does. The rda is closer to 4700 mg a day. For anyone else that might be deficient, I suppose tap water might be a better option.  I personally can’t stand the taste of most city tap water sources.  I don’t mind mineral water and prefer it when possible. I recently found out we would need to drink 5 liters of San Pellagrino mineral water a day to get enough lithium to satisfy the suggested 1 mg a day. Unfortunately, this and other mineral waters can also have trace amounts of uranium that occur naturally in nature. Uranium is not a good thing to have in your water. I wouldn’t want that or naturally occurring lead in my water.  There is no perfect solution for drinking water.  Smart water distills and then adds back in some electrolytes.  I could evaporate two gallons day of tap water or mineral water and the remaining sodium, potassium, calcium, magnesium, iron, etc… wouldn’t amount to what I already consume on a daily basis. I’m not worried about drinking distilled water. 
    • knitty kitty
      Reverse osmosis water pulls electrolyte minerals out of the body.  If used for cooking, RO water will even pull even more electrolytes out of the food.  If you're not replacing electrolytes because you're eating food cooked with RO water, you can suffer from Electrolyte Imbalance.  The symptoms of Electrolyte Imbalance are similar to those that occur with being exposed to gluten.   Also consider that many people with Celiac disease have malabsorption issues and may already be low in electrolytes.  Exposure to RO water may create some health changes more quickly than in healthier individuals.   RO water impacts the body in many ways.  Read this fascinating study.   Long-Term Consumption of Purified Water Altered Amino Acid, Fatty Acid and Energy Metabolism in Livers of Rats https://pmc.ncbi.nlm.nih.gov/articles/PMC11122726/ Drink mineral water.  
    • Wheatwacked
      Library paste and paper mache.  I have in passing read of wheat based glue used to glue fish tank filters together so it is not surprising they might be in refridgerator filters. Seems the issue with bottled water would be at the personal filters rather than the mass filtering.  Just have to boycott the brands that effect you.  Gatorade drinks all have either gums, modified starches or stevia that might be affecting you.  Looking for energy or hydration try Red Bull.  It has the vitamins, minerals, antioxidant Taurine, sugar and glucose to process the sugar from mouth to ATP and clean up. Taurine is essential for protecting mitochondria from damage, such as from reactive oxygen species (ROS) or calcium overload. If you are exclusively drinking bottled water you may want to consider taking Lithium Orotate 5 mg.  We need about 1 mg a day of Lithium and mostly it is gotten from ground water.  Lithium deficiency can cause anxiety and suicide.  I find it helpful. Lithium in the public water supply and suicide mortality in Texas: Journal of Psychiatric Research Is Lithium a Micronutrient? From Biological Activity and Epidemiological Observation to Food Fortification
    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.