Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Many P.p.m. (gluten) Can You Safely Tolerate?


doodle

Recommended Posts

doodle Rookie

Hey everyone, we are busy baking up a storm for our first day of gluten-free baking at the market and much to my horror I had a call from a supplier I know to inform me that he had one of "our" (his and mine from the same distributor) flours tested independently and found that they were over our Canadian "legal limit" of 20 p p m. (parts per million) All the rest were fine but it was just one product that was a bit over our Cnd safety standard.

It is my understanding that in the states, your allowable p p m is much higher than that and I wanted to find out how many celiacs are able to tolerate:

any VS some VS up to XX p p m of gluten in their flours and products.

I realize in a perfect world it would be great to have 0 ppm but that seems to be unrealistic according to my research. The cost to have each and every bag of flour tested would be astronomical and then what can I do with "almost" gluten free product :( ?

You see as it turns out, my distributor takes every precaution to avoid cross contamination but I have no control as to what has happened before it gets to my doors. So I would appreciate hearing from you to help me with my dilema.

And yes I am diligently sourcing another supplier , it's just the short term issue I need to deal with and your information would be very helpful.

thanks , doodle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tim-n-VA Contributor

It is a long article and I don't have time to sort thru it but a recent discussion on this cited this article as a source for threshold info:

Open Original Shared Link

nutralady2001 Newbie

In Australia gluten must be <5 ppm to qualify as gluten free (but must still be stated on the label)

  • 2 weeks later...
jrc121 Newbie

Zero.

I have celiac disease.

psawyer Proficient

This is one of those seemingly simple questions that does not have a simple answer.

The reason is that ppm is not the real issue. You must consider the total amount of gluten consumed over the course of time, say, a single day.

If I eat four slices of bread which are 5 ppm that is the same as one slice of bread that is 20 ppm.

MaryJones2 Enthusiast

Tim and Peter are correct about the PPM being a complex beast. 20PPM is generally accepted in the US but not yet a regulation. This is also a good explanation of PPM: Open Original Shared Link (There is one update to the doc - Europe also set their limit to 20PPM recently)

Did your supplier say what a bit over was? There are quite a few suppliers of flours made in dedicated facilities that would consistently fall well under 20ppm so maybe going with one of those companies would make you feel at ease knowing that you didn't have to test every batch that came in or worry about getting a call like that after the fact.

As you said, the immediate concern is the "almost gluten-free" bread and what to do with it. My concern is that you serve it to people who can't tolerate it and they get sick. People talk a lot when a product makes them sick and it could potentially hurt your future sales. Maybe if you put up a sign explaining the situation and let your customers know that you're getting a new supplier? The ones that know they are very sensitive would wait and the ones that know they could eat your bread would certainly try it. I think everyone would appreciate the honesty.

Tim-n-VA Contributor

A standard in PPM makes sense as a way to keep us from doing complex arithmetic in the grocery store. It does have implied assumptions. The two big ones are that a typical celiac can eat some small amount of gluten without clinical results and that a "reasonable" amount will be consumed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Oh doodle, I am so sorry this happened to you.

I know you were trying really hard to undertake the new business the best and most respectful way possible. You really did your homework. I bet you are hopping mad. I would be :-(

Yes, I think if I were in your shoes, I would put a special label on that batch of product to explain what happened-- maybe you can give an approximation of the ppms you know about. I don't know what "slightly over" means, exactly. If it were 21 ppm, say, many people might not feel so bad about eating it. But if it is more like 50ppm, a lot more people wouldm't touch it. But people who are gluten light would.

Unfortuantely gluten is such a tricky beast and it turns up in so many places you don't expect in small quantities. I saw a post on here about Domata flours that said they actually walk the fields to make sure there are no gluten grains growing nearby or mixed in with the crop. Maybe you can check them out.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,244
    • Most Online (within 30 mins)
      7,748

    Peter McGill
    Newest Member
    Peter McGill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      There are thirteen essential vitamins:  eight B vitamins, four fat soluble vitamins, and Vitamin C.  They all work together.   If you are deficient in one, you are probably low in the other dozen.  Celiac Disease affects the absorption of all the vitamins, and the dozen or so essential minerals, as well.  Cobalamine Vitamin B12, needs Folate B9 and Pyridoxine B6 to function properly.  Pyridoxine B6 needs Riboflavin B2.  Vitamin C is needed to interact with B12 as well.  Thiamine B1 and Niacin B3 are also needed to provide the energy for these vitamins to function properly.  If one is also low in Folate and Pyridoxine, B12 Cobalamine is not going to be able to function properly and the body doesn't bother to absorb it.   Vitamin D is safe even in high doses.  Vitamin D3 should be supplemented.  Vitamin D2 is not as well utilized because it's synthetic, not a form the body can utilize easily.  Vitamin D must be activated by Thiamine Vitamin B1.  Insufficient Thiamine B1 will make one feel "dopey".  Thiamine is needed for brain function.  The brain uses as much energy just thinking as your muscles do while running a marathon.   Multivitamins do not contain sufficient amounts of essential vitamins to correct nutritional deficiencies.  Supplementing with ALL eight B vitamins, extra Thiamine (don't use the form thiamine mononitrate because it's not absorbed nor utilized well), Vitamin C and the four fat soluble vitamins will be more beneficial than just supplementing one or two vitamins by themselves. With sufficient amounts of essential vitamins, the immune system gets regulated and becomes less reactive to other things like pollen, molds and animal dander.  Sleep apnea is frequently found in Thiamine insufficiency.  The eight essential B vitamins are water soluble and easily excreted if not needed.  The B vitamins all work together.  Supplement them together. Thiamine deficiency disorders: a clinical perspective https://pubmed.ncbi.nlm.nih.gov/33305487/  
    • Jane07
      i have been gluten free for about 2 yrs i had a ttg recently done my blood test was .7 higher then last time. i must be doing something wrong im still not in the normal range. What advice would anyone give?
    • Michelle Amirault-Packard
      He should definitely have his vitamin D and Vitamin B12 checked.  I have celiac and i always felt tired, sometimes i described it as dopy.My vitamin D is always low at times extremely low which can affect you. But  I also did some research and contacted my doctor to see if she checked my Vitamin B12 and She said she didn’t check my vitamin B-12 because a wasn’t Anemic and the normal protocol is , if you are not Anemic they don’t test for B-12.  She had no problem doing the test for me and it came back super super deficient . So I was given a shot of B12 once a week for 4 weeks and I give myself 1 shot intramuscular once a month now for 18 years. Once your B12 is low it can take a long time to bring it back up and sustain it. I think it took about 6 months to get a decent number and about a year to get it right. I do get my Vitamin D checked but not yearly more like every other year because it is a more expensive test and I tend to always be low. I do take a vitamin D supplement but I would talk to your doctor before taking a supplement to make sure you don’t take too much especially if you are already taking a multivitamin. Because too much D can also have some bad side effects.  Celiacs tend to be able to take a higher dose due to our digestive and malabsorption issues but always talk to your doctor before taking. Other things could be making him feel extremely tired  like new allergies like pollens, animals, molds etc.. sleep apnea is a huge one( cause extreme fatigue) and some medications. Just other things he can have checked! Good luck 
    • knitty kitty
      I suggest you eliminate dairy from your son's diet next.  Cow's milk protein, Casein, can trigger tTg IgA antibody production, the same as gluten, because casein contains segments of proteins that resemble gluten protein segments.   Mucosal reactivity to cow's milk protein in coeliac disease https://pmc.ncbi.nlm.nih.gov/articles/PMC1810502/ I cannot consume dairy products.  Some people find they can tolerate A2 dairy without a reaction. Corn is another frequently hard to tolerate food because the protein zein in corn also resembles the protein structure of gluten.   Do research in Dr. Derrick Lonsdale and TTFD thiamine.  Taking TTFD really can make a dramatic difference, speaking from personal experience. https://hormonesmatter.com/energy-deficiency-asd/ Keep us posted on your progress!
    • Scott Adams
      It sounds like you're doing everything right with your gluten-free diet, yet still experiencing significant discomfort, which must be frustrating. Since your stool sample came back normal but symptoms persist, pushing for further investigation—like a colonoscopy or biopsy—is a reasonable next step. You might also want to discuss the possibility of additional conditions, such as IBS, microscopic colitis, or other inflammatory issues, with your doctor. Tracking your symptoms, diet, and triggers in detail could help identify patterns. Don’t hesitate to advocate for yourself—if your current doctor isn’t addressing your concerns, seeking a second opinion or a referral to a gastroenterologist could be beneficial. You’re right to seek answers, and I hope you find relief soon. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...